Joseph's ongoing journey with Neuroblastoma

[Trazzletoes]

I've lost count of the thread number now, but my 3 year old DS, Joseph, was diagnosed with an aggressive cancer called neuroblastoma last year.

Part-way through treatment he has relapsed (currently still clarifying that, but it's almost guaranteed) and at that point long-term survival is less than 5%.

He is beautiful and wonderful.

We are just sat in hospital waiting for Joe's blood transfusion to finish. THANK YOU SO MUCH FOR YOUR BLOOD!!!!!!!

Just had a chat with Joe's consultant about various things and also talked about Make a Wish. He, quite sensibly, thinks nothing (ie none of the potential wishes) would be possible until Joe has finished his treatment but they should all be possible then so fingers crossed! We will see, anyway.

He sounds so lovely Trazz. It must be lovely having him a bit more back to his normal cheeky self. I have never heard of Make a Wish but will have a look at making a donation. xx

Just thinking of you Trazzles You must be thoroughly sick of sitting in hospital waiting rooms!! Hope transfusion goes OK. Good to have potential trip to look forward to x

ah i am sure they can get fireman sam to visit him in hospital :)

i know lots of medically fragile kids go on makeawish to florida they have nursing teams etc. hope he is ok soon to be able to go

YAY for mumsnet blood! It is the very best kind, although Joseph might develop a slight viperish streak and a penchant for gin :)

If Joe happens to be A+ I will be topping up supplies on Tuesday

A-!!! So close... all blood welcome though! Thank you xxx

How's he been this week trazzle? Will you get to spend much time all together at home this weekend?

A anything are the best blood groups Joe is just a bit more rare and special than me

I'm just boring O+, but I'm in good company apparently, so is the queen! Elizabeth, not Justine :o

Oh fantastic news that the treats are on the cards and wonderful for mumsnet viperish blood .
What a lovely boy and brilliant big brother to reassure his little sister like that. [sob!]
Gingers crossed for a peaceful and relaxing weekend for you.

YAY for northern and her luvverly bloooooood:)

Oh he is so wonderful isn't he!?
:)
Still thinking of you all xxxx

Ah I am A- but in Belgium where they don't want it due to mad cow disease in the 90s.

Did you have mad cow disease Porto? I always thought there was something strange about you

Fizzy me too common as muck...

J has been great all week, if a bit tired but that's to be expected due to the treatment and daily anaesthetics.

He is getting stronger and can now stand and take steps with only a little support.

His fingernails are starting to go though and DD ripped his thumbnail off today (yuck!) so have to try and stop that from getting infected. That's yet another side effect from the high dose chemo that we were expecting but it's still disgusting. I hate nails!

We are spending tomorrow with DH's family and then hoping to go to a Sealife centre maybe as the Octonauts are visiting! Joe is just a little obsessed...

Just to clarify, Joe's consultant thinks he won't have time to do anything amongst all the treatment, not that he won't be well enough. Although he might not be feeling that great!

Trazzle, lovely to hear this though Sorry about the nails.

Fireman Sam is wonderful.

Isnt he full of emotional intelligence? What a delightful person he is.

Glad the ambulance got dds breathing better fast.

Hope the weekend is good.

Am still lurking and pleased things seem to be going as they should
Hope you enjoy the weekend

and nother blood request sent. I don't remember it being this difficult in the past, and they also used to have a session in the village next to ours. Think I just used to drop in which would imply the last time was 6 years ago+
I am B+

Fantastic updates (other than his poor nails!) long may it continue. xx

Glaik, no mad cows disease here, thought it might explain a lot. The Europeans are still very suspicious though.

The Americans are very suspicious too - wasn't allowed to give blood at all when we lived there - quite scary really, makes you wonder what they know that we're being kept in the dark about! Anyway Trazzles, I can & do give in the UK, & when it's my turn again, I'll definitely be thinking of Joe.

Ooooh, Trazzle, my blood is A Rhesus Negative! It's good to think my blood might be helping Joe - and the alcohol level in it might help him sleep .

Really hope you made it to the Sealife Centre today.

Unbelievably brilliant news Fabulous. Amazing. Incredible. Just wow

I donated blood again this week, unfortunately it's not A- but maybe one of Joe's new little friends might get it instead :)

Biggest happy hugs
xxx