My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

[Trazzletoes]

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

Hope today goes well Trazzles. I was in Leeds General this week and there were lots of posters about neuroblastoma fundraising. It made me think about you all even more. I came home and put all the baby wipe packets I've been collecting for Ellie's fund together and dropped them off at our local collection point.

Another lurker who is very upset to read this news.

I really feel for you and your husband and all the difficult decisions which lie ahead. As others have said - your decisions will be based on love and what is right for Joe. What is right for one family won't be right for another so choose for you and choose for him.

Quality of life is as important as Quantity.

What a beautiful description of him looking into your eyes. You've reminded me that my children used to do the same. I hope Joe keeps looking into your eyes in that way for a long, long time. xxxxx

Sending you many hugs for today Trazzles. Every day is bitter sweet - lovely to hear his laughter and watch games with his sister - but heartbreaking at the same time.

I don't know if it can possibly make you feel any better but my son's tumour is in his brain. He is still him, if you know what I mean. Obviously where in the brain is significant, I know.

Much love coming your way through the ether. Xx

Tazzels and dear Joe, another who mostly lurks, wiping away a tear and sending you love and thoughts.

Still thinking of you Trazzles
And min, I had no idea you were going through tough times too (didn't realise the "we" in your last post was literal), much love xx

Trazzle,

Thinking of you.

And min and p4b as well.

Thinking of you today trazzle. I gave my pint in honour of your little Super Joe. Hugs, love and splodges from me. X

thinking of you all today, will pray that the news is as good as it can be. he sounds so wonderful, I am so pleased he was able to enjoy the puppet show x

Thinking of you and your beautiful little boy. Lots of love and strength xxx

You don't need to thank me for giving blood trazzles. If I can help just 1 person I am happy.
Hope today is ok and the mri results are as good as possible

Have been thinking of you all a lot and checking in. I hope the news today is as good as it possibly can be. How fantastic, and heartbreaking, that Joe is belly-laughing. Splodging for you all xx

Hope today went as well as it possibly could Trazzles. for brave Joe. xxx

Trazzles - I have been following your story for a while now and think of you and your family every day. Four months ago I signed up to run a 10k and a half marathon for CLIC. I haven't done much to collect sponsorship yet but your story has encouraged me to make a concerted effort with that. I don't know if you know but CLIC offer you the chance to support an Especially For You fund which can be in honour of a named individual. It doesn't mean that that individual gets the money you raise but that their story encourages more people to support the work of CLIC and raise money in their honour. I was wondering whether you might consider an Especially For You fund in Joe's name. I would then run for that fund. Other people might be interested too.
Obviously, you have so much to think about at the moment but if you are interested in this please let me know, and I will help set things in motion ...

Thinking of you and your lovely boy. xxx

My heart breaks for you and your gorgeous boy. This should never happen, it is so bloody unfair. I am so sorry Trazzle and I don't even have any words of advice but I am thinking of you all. I am going to give blood too - wish there was more that could be done for Joseph.

Thinking of you all x

Trazzle, still here and thinking of you and your precious family.
Am encouraging all on the blood donating and organ donating and wishing was more that could be done.
Thinking of Joe and his big chuckle at the puppets!
Splodges and love to all Trazzles x

Thanks all. We got pretty much all the scan results yesterday and they are relatively good. The cancer hasn't returned to his bone marrow yet, no obvious lumps other than the ones we already know about.

We still don't know for sure exactly where the lumps are - hope to get that info at the next appointment. Thanks for your support min, I am not so concerned about personality changes but if the tumours are in his brain it would mean one is on his brain stem which worries me because I think that's the bit that controls heart rate and breathing?

Joe is having a month off treatment to recuperate now and so we have some time to think about our options. By the time we need them, there may also be some clinical trials around although again none of these are expected to cure him.

It still feels very odd and tbh I feel a bit melodramatic because, please god, he will be with us for a while yet, but ultimately the cancer will kill him. With any luck he could be around for a couple more years, although equally he is unlikely to be.

Glad that the news was as good as it could have been and he is getting some time to recover from the treatment. You are not being melodramatic in the slightest.

You are not being melodramatic in the slightest. You are facing the hardest thing a parent could ever have to do and you are doing it with grace and dignity.

I hope the month off gives you a little breathing space too.xx

Agree wholeheartedly with Saffron.

Once again, praying for the gift of time for you.

I hope this month is a lovely one for you all.

Dearest Trazzle, do you have any nice plans of things to do together in the next month ? - hopefully days filled with some spring sunshine for you all x
(normal question in crazy times)
Am glad to hear results were reasonably good.
We're all thinking of you and Joe x

Lots of love to you Trazzles xxx

Trazzles so glad that the MRI results were good considering. And that you've got a month off treatments to enjoy your wee boy laughing, playing and maybe even a bit of 3YO mischief.

I don't think you're being melodramatic - I too hope that you can measure your time together in years. And that is the direction I shall channel my Joe candle and all my hopes.