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Children's health

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Original poster

Pyloric Stenosis

39 replies

rachi1990xx · 08/04/2013 22:15

Hi just wanted to raise abit of awareness about Pyloric Stenosis . At 5 weeks My DS Started bringing full feeds back up all the time (that much he chocked once) he also lost 9oz in a week which is drastic at that age apparently . After many tears and explaining myself and pleading with doctors we were told to take him to A and E were after many tests and examinations he was finally diagnosed with Pyloric Stenosis (after being told it was reflux) his gas levels were so high if left any longer it would have been to late and could have been fatal ! He was in hospital for 5 days and had an operation to loosen the muscles around the tube leading too his bowels as this was what was causing the problem. It sometimes goes unseen a the symptoms r very much like reflux so i just wanted to let people know that if they see these signs n symptoms please get DC assessed even if its nothing . Its common in first born boys hod knows what would have happened if nobody had listened to me x

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Sparklingbrook · 09/04/2013 08:56

Hi Rachi. Ds2 had PS at 5 weeks old. DS1 was the sickiest baby ever so didn't think much of it at first just felt cheated I had another sicky one.

Then his fontanelle (sp) sunk and there were specks of blood in the projectile vomit.

He had his Op and all was fine, but v scary times.

Original poster

rachi1990xx · 09/04/2013 20:05

Glad he is fine now it is scary when they are that small and you dont really know what is going on i told people for 2 weeks he was not right but took until he lost drastic weight x

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Sparklingbrook · 09/04/2013 20:07

Yes, he's 11 years old now but I remember it all so vividly. Every time someone mentions a sicky baby on here I think 'oh no'.

You can still see the scar from the Op very faintly.

MonsterBookOfTysons · 09/04/2013 20:16

Ds was 3 weeks old when he had his op at Leicester Royal, brill hospital.
We were not believed till a doctor checking another child witnessed him being sick, we were about to be sent home. we were took to have his bloods done and canula fitted which was horrible :( We were at northampton general before being transferred.
It was a scary time watching my newborn going for surgery but now he likes seeing his scar and hearing the story.
As soon as there is a sickness bout which is prolonged with him the docs end up sending us a and e thinking its to do with ps.
Does anyone find that their child has a weakened immune system from it, ds is always getting illnesses and has a lot of chest infections.

Sparklingbrook · 09/04/2013 20:20

I haven't noticed him getting any more illnesses than DS1, but I do wonder whether it affects him Monster. He does have some foods that seem to go straight through him. (TMI)

We had Ds2 diagnosed at the local hospital but they didn't do the PS Op there so he got transferred to a hospital that did. Unfortunately they had to do all the tests again and wouldn't take the original hospital's word for it.

MonsterBookOfTysons · 09/04/2013 20:23

That's awful sparkling, I hate how its not believed.
I hated the amount of heel prick tests they did, we lost count after 14. His feet were so sore looking!

Sparklingbrook · 09/04/2013 20:26

They couldn't get a canula into him and he was just screaming and screaming. DH and I had to leave we were so upset. They stuck it in his foot in the end. He hadn't had a feed for about 2 days by this point.

MonsterBookOfTysons · 09/04/2013 20:29

We were told he couldn't feed him for a day and half, was awful at night. We have a photo of him drinking his first filling bottle :o
That must of been horrendous to witness sparkling, ds was lucky really, it went in first time.

ceebeegeebies · 09/04/2013 20:40

Another one here

DS1 was diagnosed quite late - he was 8 weeks old. He wasn't a particularly sicky baby when he was first born but it got gradually worse - me and DH hated feeding him as we were always on edge waiting for the milk to come back We literally covered ourselves and sofa in towels and always had a plastic bowl to hand - I do feel sad that what should have been really special bonding times with feeding and cuddling were extremely stressful.

He was misdiagnosed by docs twice - once with a vomiting bug and once with reflux. However, I don't totally blame the docs as both times they asked me if the vomiting was projectile and it wasn't true projectile vomiting so I always said no. It came out with force but we could always catch it in a bowl My mum commented she had never seen a baby vomit that way before and he was sick all over my sister and she commented that an awful lot of milk came back up considering it had been 2 hours since he had been fed - this started alarm bells.

Crunch came when he was sick in the early hours and there were specks of blood - took him straight to A&E, he was admitted, nurse witnessed him vomiting and was fairly sure it was PS and then he had some tests which confirmed it with his blood levels.

He had his op, very straightforward, he has a scar that only we would notice but like a previous poster said, he loves hearing about it now he is 6.

Sending him for his op was horrific - worst moment of my life

No longstanding health issues - very healthy, rarely has time off school. Everytime he gets a cold, it goes to his chest and develops into a cough which he can't control and ends up vomiting - no idea whether this is related or he would have been prone to this anyway.

Whenever I see a thread about a sicky baby, I always think 'oh no' aswell. I really wish I had posted on here about DS1 and hopefully someone would have mentioned PS as I knew nothing about it - I am fairly sure a quick google of the symptoms would have rung alarm bells and we could have got a diagnosis earlier.

MonsterBookOfTysons · 09/04/2013 20:48

Ceebee same as my ds with every cold going to his chest. We were at a and e Easter Sunday as he had a bad chest infection and needed a nebuliser.
Ds is 4 now.

Original poster

rachi1990xx · 09/04/2013 21:00

No 1 would beleive us either and health visitor told me to give him more milk which was making it worse . I also lost count of tests he had he didn't mind cannula but when they put an NG tube in to aspirate he screamed me n DP were in tears . I wouldnt wish PS on anyone as its frightening and the starving them is the worst ive never felt so helpless . Will be keeping eye out for chest problems thank you x

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Sparklingbrook · 09/04/2013 21:07

DS1 was 2 at the time. I think he thought his 5 week old brother had been returned to the hospital. I am not sure whether he thought that was good or bad.

ceebeegeebies · 09/04/2013 21:08

Rachi so glad your DS is ok now. Trust me, the horror of it all does fade in time (me and DH often joke about it now) - just be grateful it was caught in time and try not to think about what could have been

Was a bit nervous with DS2 but he is now 4 and I can probably count on one hand the number of times he has been sick I think me and DH definitely did our fair share of mopping up vomit with DS1!

khaleesidragon · 09/04/2013 21:08

Another one here. Poor little DS started projectile vomiting at 5 weeks. I found out about Pyloric Stenosis on the internet and thought it was that but it took loads of tests and being sent home 2-3 times before they even did a scan for it. Poor boy had to have a lumbur punture test and have 6 nurses holding him down beforehand.

Was so horrible to go through at the time, not being able to feed him for 8 days and having to pump breastmilk the whole time.

Thank goodness for modern medicine!

We were at the Royal in Leicester as well - they spicialise in it there apparently.

ceebeegeebies · 09/04/2013 21:11

The doctors told us that it is almost always boys, particularly first-born boys.

Kate3003 · 09/04/2013 21:15

not always! I had the op as a small baby 34 yrs ago... Then it wasn't key hole and I still have a massive scar on my stomach....

Original poster

rachi1990xx · 09/04/2013 21:17

We were told same ceebeegeebies we were in the childrens hospital and the registrar told us it was that common he had dealt with 5 cases the week before! Personally myself i think there should be more awareness of it and information given as it is so common .

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ceebeegeebies · 09/04/2013 21:17

I did say almost always

Sparklingbrook · 09/04/2013 21:19

And DS2 was a second born boy. Trust him to be awkward.

Original poster

rachi1990xx · 09/04/2013 21:22

Sparkling i was sharing a bay with a woman whos 1st and 2nd DS had it there really should be more info about it x

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ceebeegeebies · 09/04/2013 21:23

I also think that awareness should be higher than it is - I am sure me and DH would have recognised the symptoms and pushed for a diagnosis much earlier instead of being fobbed off.

The 'reflux' diagnosis was the best - we were given gaviscon to give him which just made the vomit even worse - regurgitated porridge anyone?

ceebeegeebies · 09/04/2013 21:26

Wow that is unlucky! I honestly don't think I could have gone through the stress of it all again with DS2

Original poster

rachi1990xx · 09/04/2013 21:26

Ceebeegeebies we were told to give him infacol 1st then gaviscon then change his milks 3 or 4 times the poor love had no idea wat was going on it shud b checked out the moment its mentioned i never took him to A and E because we were fobbed off with reflux x

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Sparklingbrook · 09/04/2013 21:29

DS2's vomit was proper projectile. He was lying in his cot and it just went up vertically towards the ceiling.

Original poster

rachi1990xx · 09/04/2013 21:31

Sparkle DS was the same we ended up co-sleeping after the chocking incident (which he attended hospital for and still nothing was picked up) as we were so scared he would choke on his vomit again x

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