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High dose chemo and beyond. Onwards and upwards hopefully!

999 replies

Trazzletoes · 25/02/2013 21:42

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

OP posts:
NorthernLurker · 03/03/2013 23:53

Stable is ok. Another day down. Praying for improvement tomorrow Smile

onedev · 04/03/2013 00:08

Another day further forward. Thinking of you all & praying hard for Joe.

Praying4Beatrice · 04/03/2013 04:38

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minmooch · 04/03/2013 07:20

Thinking of you all. I hope that the Drs are able to sort out the fluid build up.

So horrible watching your child so poorly.

Many hugs.

thewhistler · 04/03/2013 07:38

Splodging for a good day today.

ninja · 04/03/2013 07:45

Thinking of you, hope for some improvement today x

TeaMakesItAllPossible · 04/03/2013 08:01

Good to hear he isn't getting any worse. But sorry to hear about the fluid retention. Hoping for improvement very soon.

Thanks for the bra link. I'm still in shock!

Wishing for strength for you all. Xxxxx

RatherBeOnThePiste · 04/03/2013 10:13

Big hugs Trazzle, keeping you all close in my thoughts here.

I need the bra link, and I actually have found my tape measure. Going there now....

Trazzletoes · 04/03/2013 11:44

Stable again. The fluid is still collecting... His poor little tummy is so swollen. And it's bruising from the pressure inside Sad

He is thoroughly miserable and I don't blame him at all. More scans this afternoon to see what the fluid is doing in the areas around his lungs.

OP posts:
TeaMakesItAllPossible · 04/03/2013 11:49

Oh. Poor little love. I hope he's able to get a moment of comfort somewhere in the day.
It must be so hard to watch him going through something so very, very terrible.

SPBInDisguise · 04/03/2013 11:57

So awful. I wish there was something that could be done, as do you I'm sure. Hope the scan is positive.

dothraki · 04/03/2013 12:00

Trazzle - hope it goes well this afternoon - thinking of all of you x

Thumbwitch · 04/03/2013 12:02

Hope they can do something about the fluid and that he not only remains stable but starts to improve. Poor little boy - hope he can watch the Penguins thing on i-Player too. xx

IwishIwasmoreorganised · 04/03/2013 12:38

Still thinking of you all.

Hope that the scans give some useful information to start to resolve the fluid problem xxx

NorthernLurker · 04/03/2013 13:38

Poor little mite Sad I expect actually getting the scans will be a wretched process because of his discomfort but just hold on to the fact that it's needed so you can move forward.

dikkertjedap · 04/03/2013 13:44

Thinking of Joe. Hoping that the scan has helped the doctors find a way of dealing with the fluid build up and that the scan has been bearable for Joe.

So sorry brave little Joe that you have to endure this all. Sad

Also, thinking of you Trazzle, so sorry that you have to see Joe so poorly on a day to day basis.

All gingers crossed for a solution and improvement.

Wishing you lots of strength, positive energy, hope and sunshine. Flowers Flowers Flowers

GlaikitFizzog · 04/03/2013 14:29

I'm watching happy feet two with ds right now. He wants to dance along with them, I want to squeeze and hug him, but he keeps fighting me off. I wish and hope (I don't pray, but I might start) that Joe is on the road to recovery. So you can squeeze and hug him soon. And that he can fight you off when mummy's annoying him.

Trazzletoes · 04/03/2013 15:06

Oh he fights me off Fizzy most times I try to kiss him he shoves my face away Hmm

OP posts:
GlaikitFizzog · 04/03/2013 15:19

That's good to hear! :) Much love to you all.

Badvoc · 04/03/2013 15:43

Does joe like penguins of Madagascar trazzles?
My two love it (and I am quite a fan myself!)
Hope joe has a good day today x

Trazzletoes · 04/03/2013 15:58

He likes all penguins Grin

Still steady today though in pain and grumpy. I just want to make him better.

OP posts:
SPBInDisguise · 04/03/2013 16:08

My Dh was humiliated by a penguin

GlaikitFizzog · 04/03/2013 16:12

Was it shineys penguin spb? :o

We are going to the zoo soon, they have the penguin walk every day. I will take photos for you.

SPBInDisguise · 04/03/2013 16:14

Unfortunately not. No, it was actually the penguin man at the aquarium who ridiculed him for assuming pengiins only live in cold climates. We've never let him live it down

GlaikitFizzog · 04/03/2013 16:17

Has he not seen surfs up!! Another great penguin movie!!

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