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Original poster

Joe vs. The Cancer

999 replies

TrazzleMISTLEtoes · 08/12/2012 23:26

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

OP posts:
dikkertjedap · 14/01/2013 21:50

I just don't know what to say .... Sad

Yes, it is horrible and the treatment is horrible. Sad

All of us can only hope that Joe beats it.

I so much hope that at least one of the trials (as there are so many at the moment in various parts of the world) results in a breakthrough.

I feel for you, how this disease is impacting on all of you.

If there is anything I can do, to help make it ever so slightly more bearable, just ask/pm.

Lots of hugs and wishing you lots of strength.

TeaMakesItAllPossible · 14/01/2013 22:43
Sad

I think you're amazing and have a tonne of respect for everything you are doing and managing. This is a tough time for you and your Joe.

And along with dikker, and many others on this thread, if there is anything that you want that makes the next few weeks more bearable for even one second I/we would do what I/we could to help in a heartbeat.

And you're right. Cancer is a bastard.

Hassled · 14/01/2013 22:53

I've been reading this and just never what to say that can be of any comfort or use - but you're in my thoughts, a lot. I'm in awe of the strength you have - will keep thinking of you.

Trazzletoes · 14/01/2013 22:56

Honestly, I'm not strong. I saw a friend at the weekend who I haven't seen for ages and he said I'm titanium. I wish. I'm a marshmallow.

God, sorry this is so self-indulgent tonight!

Hassled · 14/01/2013 23:04

I think all of us who are parents read this and think "how would I cope if it were my DS?". I just don't know - I guess you find the strength you have to have; you don't have much of an option, so you? But to show the dignity and humour and resilience you've shown - that takes a special sort of person, a special type of strength.

Praying4Beatrice · 15/01/2013 01:11

This reply has been deleted

Withdrawn at the user's request

minmooch · 15/01/2013 07:07

Hi trazzle I shall be thinking of you all today and the coming days. Try and just get through these days and face the high dose chemo when that happens. I know it's so very hard to do, but I kelp trying to do that with my Ds, worry about today because there's nothing I can do about tomorrow until it comes.

I remember changing wards a couple of times with Ds and if does make you feel extremely vulnerable. You have to get used to new faces, new routines and that makes you very tired on top of the stress you are already feeling. I hope the procedure goes smoothly as can be. I also remember when Ds had his stem cell harvest not only do you have the big machine in the room all day but you also have the specialist nurse in there all day too - it makes for a very hot room. My mum came in to sit with us for the day and we were stripped down to nearly underwear!

I hope your asthma/chest is feeling better. xxxxxx

chocolateistheenemy · 15/01/2013 07:13

A great big squeeze and a fat splodge of light from Devon (((((trazzle)))))

BarmeeMarmee · 15/01/2013 08:44

A big fat splodge still splodging from me Trazzle and if I may I'm sending an accompanying hug too today. Gingers firmly crossed!

ToffeeWhirl · 15/01/2013 09:27

Big splodge of light here in Sussex, Trazzle. Thinking of you and wishing you and Joe so much luck today ((hugs)).

thewhistler · 15/01/2013 18:49

Trazzle, more splodges here.

ShiftyFades · 15/01/2013 18:52

Trazzle I'm still here, still thinking and praying for you and Joe daily.

It's a hard time for you right now but you are the worlds best mummy, Joe is very lucky to have you to help him through this.

And Joe is an amazing little fighter, his body is doing a great job at winning this battle. And all of MN are right behind him.

If I could take the worry away from you, even for just a day, I would do it without hesitation. You are wonderful.

Happy 1st birthday to DD xxx

tholeon · 15/01/2013 20:27

Just wanted to send a splodge from surrey. Wish I could do more. Bastard bastard cancer. Happy birthday to your lovely dd. xx

Trazzletoes · 15/01/2013 22:17

Thanks. It's her birthday on Monday. Stem cell harvest went well. Should have got plenty enough cells today but delays meant we are staying in overnight for results tomorrow. Sigh. Should hopefully be out by midday and shrinkage of main tumour means surgery should be "less extensive" than previously thought, though still major surgery.

dikkertjedap · 15/01/2013 22:36

Very good news that the stem cell harvest went well. Smile

Very good news that surgery is likely to be less extensive.

Hope that tomorrow goes smoothly and you'll be home soon.

x

extracrunchy · 15/01/2013 22:43

Go on Joe - you can beat it! Thinking of your mummy and family too x

TeaMakesItAllPossible · 16/01/2013 08:49

Sorry to hear about the extra night in but so pleased that the surgery is likely to be less intensive.

Joe ... Keep up the good work.

narmada · 16/01/2013 12:18

Thinking of you on yet another results day. HOpe all goes well today.

Trazzletoes · 16/01/2013 13:07

We're back home and an excitable Spider-Man is fighting his DGma

onedev · 16/01/2013 13:32

Yeah! Glad you're home & he's doing well.

Trazzletoes · 16/01/2013 14:39

Just had a call from the hospital to say his feeding tube is too high and needs to be pushed down a specific amount. This has only been picked up from yesterday's x-rays now we've left Hmm.

Fortunately a nurse is coming here to sort it but I am not. Best. Pleased.

TeaMakesItAllPossible · 16/01/2013 14:48

Hurrah for home. Boo for feeding tube needing an adjustment.

ToffeeWhirl · 16/01/2013 16:37

So glad you're home and that Spiderman is so energetic! Hope you get to rest tonight, you must be exhausted.

IwishIwasmoreorganised · 16/01/2013 17:15

Great to hear that you're home.

Tube repositioning should be easy enough for the nurse to do, just a pita for you and joe.

thewhistler · 16/01/2013 17:46

Great that Spiderman is energetic . Nuisance about feeding tube but better that they spotted it.

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