Hi, DS has had another reasonable day today, fuelled mainly by sausage rolls and Maryland cookies
. Apparently the children tend to tolerate each cycle of chemo better. I wish they'd told me that before(!) as I was expecting him to go steadily downhill!!! His appetite has slowed a bit but that's not necessarily a bad thing.
My knuckles are red raw. I have no hand cream so have resorted to a spare tube of Lansinoh. Ow.
DS' naughtiness has carried on today, but he's realising that we won't let him get away with murder just because he's in hospital and feels rubbish. It doesn't help that the other boys who have been in our bay have been kicking everyone in sight and saying things that I don't think are great for DS to hear constantly for a week . One called his dad a turdbrain today and his dad just laughed, for example, so to some extent I think DS is trying his luck.
Happily he loves his gruffalo hat and gloves (thanks for the tip!) and has been putting them on and rrrrrrrrrraaaaaaaaarrrrrrrring all afternoon.
I also have some thank toys but I can't remember who to do will try and PM you all.
In much much sadder news, there are I think 4 children being treated at the hospital with neuroblastoma and one of them tragically passed away this afternoon. He was younger than DS. I didn't really know his family too well but I think he had a very bad infection.
It's utterly terrifying and I can't imagine what his family are going through. It's so bloody unfair. DS is getting an extra big squishy cuddle tomorrow whether he likes it or not and I am thanking my lucky stars that we still have hope.
DD came to visit today and it was lovely to have some special time with her too. And DS asked me for snuggles a couple of times. How could I refuse? Well, I couldn't, of course!