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Can we start a new asthma support thread now dreaded winter season is looming?

987 replies

Knackeredmother · 21/09/2011 09:26

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

OP posts:
alibobins · 22/09/2012 13:43

Ds2 is settled at the minute he managed to go 4 hours and only had 2 puffs this time so I will see how he goes x x it will be tonight when the worry starts again Sad

alibobins · 22/09/2012 20:23

All was going well until I put the little man to bed Sad

Sirzy · 22/09/2012 20:32

Oh dear Ali :(

Same with DS, aswell as his wheeze has has threatened to start his croupy cough a few times so I am just hoping that doesnt develop. I am meant to be out all day tomorrow an hour away from here but starting to put plans in place incase I can't go.

alibobins · 22/09/2012 20:35

Just gave him ten puffs as a last bid to stay at home as long as he settles after I will be happy x x

cedmonds · 22/09/2012 20:46

Oh o shame here ds has just gone to sleep and sure enough cough cough cough is all i can hear from upstairs. Hope everyone stays at home..

cedmonds · 22/09/2012 20:46

opps lots of typos sorry

alibobins · 22/09/2012 20:53

At lunch today I was so tempted to go to A&E and get him checked out then he had a mad few hours. Now he sounds like a grunting wheezy monster Sad Sad

cedmonds · 22/09/2012 21:09

What are his stats? Just done ds and they are 95 so as long as they stay like that he ca stay were he is

alibobins · 22/09/2012 21:15

His sats always drop at night they are hovering between 92 and 96 Sad dh just on the phone to the ward to see what they want us to do x x
Cedmonds hope u manage to stay at home too it's so rubbish not knowing x

Sirzy · 22/09/2012 21:33

Hope they both settle soon.

alibobins · 22/09/2012 22:33

We are on the ward waiting for the doctor Sad hopefully just for a check up Sad

Sirzy · 22/09/2012 22:34

Oh no, hope your home soon xx

alibobins · 23/09/2012 08:28

Still in although ds2 is quite happily tucking into banana and toast Smile
His sats dropped into the 80's so he ended up on oxygen and nebs through the night x-ray shows no infection hopefully home today.
Hows everyone else x

cedmonds · 23/09/2012 09:35

Hope you are home soon Alli
Ds managed to stay at homeSmile he seems a lot more settled today but he is sitting colourig at the momet which is unheard of!!Was going to take him up to see his pony to get him out of the house but it has just started to rainHmm Hopefully it will dry up soon.
How is DS Sirzy?

cedmonds · 23/09/2012 15:19

Ds has been to a&e back home with more pred and 10 puffs of ventolin every four hours and open access to the ward

cedmonds · 23/09/2012 15:21

Sorry posted to soon hope everyone else is ok

alibobins · 23/09/2012 17:22

Still here Sad ds went to sleep and sats dropped to 89 again and didn't come back up without support Sad so they want to monitor tonight and have started him on pred x x
Sorry to here you ended up back in x x

Sirzy · 23/09/2012 19:48

DS isn't to bad, still plodding along with just extra ventolin.

Ali - hope you get home soon x
Cedmonds - hope your DS manages to stay home now x

cedmonds · 23/09/2012 20:57

Hope ds comes home soon Ali
Sirzy hope ds stays with just extra ventolin
DS went to bed saying his chest was tight and he couldnt breath. His stats were 94 so will see how he is all quiet at the moment. No school tomorrow it thinkSad

butterfingerz · 23/09/2012 21:16

This is the second weekend of my 16 month DS flaring up with his wheezing after a long spell of being symptom free. We went to A+E last Sunday but he improved once there so didn't stay for long.

This weekend it seems he's picked up my DDs very bad cold, she has a hacking cough but doesn't have asthma so she can handle colds quite well, my DS however... he's been wheezing like a trooper, we give him some pred we had left from last weekend as well as regular ventolin. Not quite ruled out a A+E trip for tomorrow though. Fed up!

alibobins · 23/09/2012 22:03

Must be the change in weather or something in the air the ward is full of wheezy coughing little ones Sad ds us settled and fast asleep with just a waft of oxygen. He really does seem better tonight so cross everything.

butterfingerz · 24/09/2012 03:58

I'm currently with DS on children's ward. We took him to A+E about 11pm as his wheezing turned quite bad. He's had two nebs on resus and has improved, now in bed on ward on 4 hourly ventolin. He had a chest X-ray but they've not mentioned it so hopefully it's clear.

Think you're right about the weather. I can hear a poorly little girl next to us coughing and crying, poor thing. The weather here has turned cold very quickly, I remember last September being very warm and sunny, I think even October was good.

Sirzy · 24/09/2012 06:24

I think Ds is going to end up in a and e in the next few hours. Seems worse still this morning. Think he is at the point where it's best to get checked.

alibobins · 24/09/2012 07:41

Sorry to see that your on the ward too butter Sad and sirzy hope u manage to get home quickly sometimes it's safer just to get them checked out x x
The nurse turned ds oxygen off at around 2 this morning he was still dipping on and off but able to recover himself they want him to be able to manage on 3 hourly inhalers then we can come home. His follow up with his consultant is next Wednesday anyway x x
They've mentioned the flu jab but jot sure ds1 has never had it due to his anaphylaxis to eggs.

Sirzy · 24/09/2012 09:40

Butter and Ali hope you are both home soon.

Been to a and e with Ds and back home already. On 8 puffs 4 hourly for the next 48 hours and go back if he gets worse.