Help! Temp going up not down.

[EmmaRoyd]

DS is 12 months. Fine all day but didn't eat his tea, very unusual. Put him to bed at 6pm as I thought he was overtired and noticed he seemed a bit warm and his hands were shaking. This stopped after his milk so wondered if it was blood sugar/hunger making his hands shake. Took ages to go to sleep, no crying just whimpering. 8.30 his temp was 39.8 so gave him calpol. Midnight violently sick everywhere, gave him water and stripped the bed and he went back down. 1.30am more sick and temp 39.9. Don't know what to do. DH abroad and DD 2.8 asleep. I'm panicking he's getting hotter.

Sounds like they may be an option for you to go to then. We were really so pleased with the care DD had at the Evelina. They are so good with the kids and really approachable we found. (she had acute renal failure after she had septicaemia this year)

God that sounds awful! Is she better now?

She is doing well now thanks, has renal follow up in November but bloods have been good recently so hopefully just a formality for her. She also lost half a foot due to blood flow issues when she was so poorly and that has been hard for us to adjust to, though for her seemingly just a minor annoyance as she is charging around on it like nothing happened. I guess this might tell you why I was so insistant you should seek help with his temp going up at the start of all this?! I'm glad I didn't take no for an answer either as DD had seen A&E the morning before and GP the same morning she was then admitted and transferred to ICU later that evening when I returned to A&E.

Your poor DD! My god how stressful for you.

Well it's 3.30am and DS is currently 39.5, this time I'm not getting fobbed off.

Are you taking him back to hospital Emma? Hope you get to the bottom of things very soon. They really should have admitted him the first time .

Goodness, how stressful. Hope you get to the bottom of things and ds is feeling better soonest.xx

Good luck xxx

I have just spent two hours hovvering with a sample pot an inch away from his willy, dying to go to the loo myself but not daring to move incase I missed it, the private consultants secretary phoned, I turned my back for a second to answer the phone and he peed all over the floor.

I could have cried, especially as she said the consultant is abroad and no-one else is available

So I have a 'sit and wait' appointment with the GP at midday.

I've been reading about upper UTI's and how left untreated they can cause permanent kidney damage and now I'm beating myself up that he had this for so long before getting any antibiotics in him and now has scarring to his right kidney.

Forgot to mention that next steps is a different type of scan (forgot the name of it) where radioactive dye is administered by cannula.

How did you get on at the GP?

Hospitals have special bags to catch wee from baby boys, could you get some or could a friend pick some up from a nearby hospital? You tape them and they work very well. Otherwise, sips of water for 30-45 minutes whilst watching his favourite TV program and having something to catch it ready at all times, it will work with persistence (and some mess).

Have you considered going to Portland Hospital, at least there is always a team available.

Hope he improves soon. Best wishes.

GP prescribed antibiotics.

My local hospital doesn't use those bags, the A&E dept gave me a pad to put in his nappy and they then syringe the wee out but on the ward they asked for a clean catch into a sterile bowl.

Persistence is the word dikkertjedap. I finally managed to get a sample this afternoon after 3 hours of Mr Tumble and just patiently waiting, waiting, waiting.. Probably why he has a UTI, because he holds his wee for hours!

His temp was 40.5 by 4pm and he vomited when I put him to bed tonight.

Have you considered taking him to A&E at St Thomas? You might have a better chance of getting over to the Evelina renal team that way?

I second going to another hospital. He needs tests and investigations, not this "wait and see" attitude you are currently getting. Gah I really dislike the NHS in circumstances like this one.

I've been following this but have nothing to add, apart from wishing you and your little boy manage to get some help and answers soon and he feels better :(

Just read this and wanted to add my best wishes. Really hope he gets the attention he needs and that all will be ok. Nothing worse than seeing an ill child

thanks for all the good wishes.

He woke on the hour every hour last night from 6pm until about 2am, but he hasn't had a temperature all day today and seems a bit happier so I think the antibiotics are taking effect. He's not eaten anything but has drank plenty of fluids.

I'm seeing the private paediatrician on Friday but so far apart from getting an ultrasound done a bit faster I've found going private is a bit of a waste of time. The private hospital doesn't have a nuclear medicine dept so we're having the DMSA scan done back at my local hospital where we first began. And this week the private paediatrician has been abroad and I was told no one else at the private hospital was available so ended up at my GP's for antibiotics.

At least it's on DH's company insurance and I'm not paying for it.

I'm going to put some thought into going to St Thomas because I'm getting fed up with the crapness of both my local NHS and private hospitals.

Poor little boy, I hope you can have the scan done soon. Apart from St Thomas, would it be worthwhile to check whether you can get him in Great Ormond Street? Hope you manage to get some proper treatment for him soon. Best wishes.

As if we haven't had enought to-ing and fro-ing between hospitals, I just got letter to say that while he was in the childrens ward when we were first admitted, he was in contact with someone with tuberculosis so DS and anyone who was with him during his stay i.e. me and DH will have to go in and be screened. For DS that ismeans having a needle test on his hand and then going back in again later to see if it's reacted. For me and DH it's chest xray.

God above, still best be cautious about these things

I have just read this whole thread. I'm so sorry I have no advice but do want to add my best wishes and hope your DS gets better soon.

How unlucky. For what it is worth, we have had the same. I don't think it was a needle in dc hand though (can't really remember, but they did need to get a blood sample I vaguely remember). It wasn't too traumatic - try to have things to distract him and him looking at you, without him seeing his hand if it is in his hand. Noisy board books with buttons etc. are good at distracting in my experience (we use that for inserting canulas, which is equally unpleasant).

I would look for another hospital if you can though. Mind you we were exposed to tuberculosis at UCH, which apparently is a London flagship hospital

Actually, I think it was called Mantoux test (or something like that), we got it written in the red book. I don't think it was too bad. Better safe than sorry. Good luck.

For anyone who's interested DS has had a DMSC scan which showed he has one kidney smaller than they other and they are working (if that's the right terminology, prob not) at 27% and 73%.

He needs to have another dye scan so see if there is any reflux which would make the urine flow the wrong way up to the kidneys. We have definitely got to stay on antibiotics at least until the next scan and probably much longer.

He's been referred to a specialist at Evelina Children's Hospital. He's also on a prophylactic dose of antibiotics for the forseeable future.

I remember reading your original posts, you poor thing and your poor DS. Thank goodness you persevered with the various docs. I hope he starts to improve soon