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Childbirth

Cardiac arrest during elective caesarian section. Nevergoogle in need of a bit of support.

230 replies

nevergoogle · 06/04/2014 23:07

DS3, who is a lovely bundle of loveliness, arrived by elective c-section a week ago.

For unknown reasons (so far) I had a cardiac arrest during the surgery where my heart slowed to a complete stop. I was resuscitated with CPR and adrenaline before surgery was completed and I was transferred to intensive care. All tests so far point to an otherwise healthy heart. (Usual obs monitoring, ECG's and US)

In time I will be having follow up input from cardiology/anaesthetics/obgyn/perinatal mental health team/intensive care psychology. I'm now home wearing a 24 hour heart trace.

We haven't announced this in RL (apart from close friends and family), so if you know me please be discrete, we're still getting our heads around what happened.

But just WTF? How do I process this? How do I rebuild myself, DH and I feel completely steamrollered. All the while DS3 is BFing on demand 2 hourly, and I have all the usual c-section recovery to contend with. The other two children aren't aware but are starting to question why I keep crying and me saying I'm just so happy to be their mum is being met with Hmm.

I have zero concentration, tv/radio/music is just noise, I can't face phonecalls/visitors and apart from a birth announcement on facebook I just can't do it. I'm not even sure i'm ready for this thread so may bow out if it gets overwhelming.

On the upside, DH and I are being spectacularly kind and patient with each other and the children. We are having lots of quality time and keeping life simple and there is an atmosphere of calm in between my moments of despair and sobbing.

Anybody been through similar?

Sad

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PacificDogwood · 08/04/2014 03:00

Oh, nevergoogle, congratulations and WTAF!? Shock

I am so sorry the happy event of your DS's arrival in this world had the shine taken off it somewhat by something so incredibly rare and scary happening to you.
Be very kind to yourself, do accept any and all offered of help and hopefully you can make your peace with events.
All these tests are important, but may (hopefully) not come up with any answers as to why what happened happened IYKWIM.

The only experience I have of drama during delivery (VB or CS) was with abnormal blood loss - did anything go wrong during your CS?? Or was this some kind of weird vaso-vagal response to the spinal? Hyporeflexia??

Sorry, I am waffling - I am so horrified for you.
Sniff that baby's head for me and rest up and let time pass.
Good grief. Poor you. And your poor DH - scary all round.
{{fierce hugs}}

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nevergoogle · 08/04/2014 11:07

the actual surgery went well. blood loss was minimal although as I lay there feeling my BP drop that was my first thought. It was me who alerted the anaesthetist right before I crashed. I had asked for the baby to be taken from my chest as I was starting to feel unwell.

Vaso-vagal syncope is something I've done before. Usually attributed to IBS but I have collapsed from the loo about every one to two years. It was investigated by neurology as there was some symptoms that resembled a fit. But all was found to be normal.

Over the past 8 years, I've had these collapses. DH has been there for all of them. Always the same pattern, labour like stomach cramps, massive bowel evacuation then collapse to the floor. I know when it's going to happen and DH is able to clear the floor, even put down a soft landing. Paramedics called sometimes, but although HR and BP low afterwards I make a quick recovery and it's always been agreed that these are vaso-vagal syncopes.

The similarities ti the cardiac arrest ;ast week can't be ignored though. Perhaps I have arrested on these occasions before? DH has always maintained that I stop breathing. But I spontaneously recover within 30 seconds, grumble about how embarrassing it all is and go back to bed. Hmm

Because these episodes happen so rarely the cardiologist is considering an implant recorder of some sort that is in situ for 18 months. It may just capture the heart data when it happens again. Unfortunately for DH and I that means waiting for the next one.

I am frustratingly independent. I named DH the 'toilet follower' and insisted he stop worrying, annoyed that me locking the bathroom door causes such distress. There's nothing I like better than to disappear on my own without telling people where I am. That's something that I'm going to have to reconsider. Will I still be able to take the kids on my own to scotland in the summer like I planned?

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nevergoogle · 08/04/2014 11:09

steady with the fierce hugs. only after the boy has had a good feed. Smile

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MinesAPintOfTea · 08/04/2014 11:27

Congratulations on DS3!

His arrival sounds terrifying though, so take your time with recovery and make sure your DH doesn't let visitors in before you're ready. You have enough to deal with.

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ScrambledSmegs · 08/04/2014 11:45

Nevergoogle, my goodness you've been through the mill Shock. Congratulations on the birth of your DS (if she says he's not too bad he must be gorgeous!) and I hope you and your DH are taking it easy now.

Presumably you've passed on the information about your previous episodes? If your DH thinks you stop breathing every time, have you told them/your GP that too?

I can't say that I have anything similar to share, although with DC1 I had a rather unpleasant ventouse delivery followed by retained placenta and severe PPH. Can't fault them on actually saving my life at the time, but the aftercare was traumatising - I've been left with a fear of hospitals which causes problems regularly. Not sure if it's PTS or similar but I was not given a debrief despite asking for it, and no one was bothered about my experience until I was 40+10 with DC2 and refusing to book an induction date. Luckily I had DC2 in the separate MLU otherwise I would definitely have needed sedation. Definitely following up on the risk of PTSD/PND is a good move.

Lots of Thanks for you xxx

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nevergoogle · 08/04/2014 12:27

yes the vaso vagal syncope's were documented on my ante-natal notes, and DH was able to tell them all about it as soon as i crashed. Dh talked through my history with all of the consultants.

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MrsMcEnroe · 08/04/2014 12:47

I saw your thread last night nevergoogle and I wanted to wish you well.

Thought you might like to know that Amanda Holden is quoted in today's Times as saying that she needed counselling for PTSD after her heart stopped during a c-section. Might be helpful for you to have a read? The article is not scare-mongery in any way.

I haven't had a c-section but I have nearly died from anaphylactic shock. I was having flashbacks and anxiety attacks for years afterwards, having initially felt shocked, numb and disbelieving about the whole experience. As someone upthread has said, you need to debrief but take it at your own pace. Therapy helped me enormously.

Hugs to you and your family x

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VenusDeWillendorf · 08/04/2014 12:56

Nevergoogle, just wanted to say congratulations on the bitprth of your uns potty, not too bad baby!

I had a crash section and lost a lot of blood, temperature went way down and started to phase in and out.

I consider my babes birth my own rebirth as well, as I really was in an altered state during it.

Maybe it will be a turning point for you in your new life now.
All in all I used my babes birth to reinvent myself, and cherish every moment.

Try EMDR if you think your have PTS, it's wonderful for releasing terror.

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PacificDogwood · 08/04/2014 17:04

{gentle hug}
Grin

Somebody had referred to someone having had a cardiac arrest during delivery on another thread and I went Hmm. Ooops, just because it's rare does not mean it never happens.
Crikey.

Ok, vaso-vagal collapses - I get those. Like you describe, they are basically a v sudden drop in blood pressure, more common in females (we have lower BP on average and pesky hormones), but they do NOT involved your heart stopping.
If you heart actually stopped while cables up to an anaesthetist's Magic Wheeled Table of Tricks and this was documented then whatever it was you had was not a vaso-vagal thingybob.

There's something called 'hyporeflexia' or 'dysreflexia' which happens to some people with spinal cord problems and I was furiously googling doing research last night if that kind of a thing could happen with a spinal anaesthetic? Don't know. I am no expert. Don't google unless you feel up to reading sad stories about people breaking their spines btw.

Hope you are having a good day and LittleDragonb. is putting his back in to getting your norks comfortable Grin.

Don't lock the bathroom door, woman.
I have not experienced anything as dramatic as you, just a 'normal' emCS and it only came out years after the event that DH was terrified that I +/- DS2 might die at the time. I was worried; he was shitscared.
Be kind to yourself just now, and to your DH. You never know, you might need him to pick you up off the floor one day… and bathrooms are v hard rooms with lots of corners to be falling in. Just sayin'.

Cake

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Tea1Sugar · 08/04/2014 17:15

Fuck I sooo should not have read this. I'm having a section a week today, petrified enough as it is now I need to sit in a dark room!!

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nevergoogle · 08/04/2014 21:40

no, what happened was definitely not a vasovagal. the vasovagal thingy may have increased my susceptability is one avenue of thought. or perhaps i've been having cardiac arrests for the past 8 years on the bathroom floor? i have to leave it to the consultants to figure it out.

today was a fairly good day. i managed to walk up the path a couple of times for some fresh air and a leg stretch. a friend visited with a lasagne. and i've now told everyone what happened. feeling supported by friends and family and am sure we're going to be able to get lots of help, especially once DH back at work.

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PacificDogwood · 08/04/2014 21:48

Tea, get off this thread

I've posted on your thread - this one is not therapeutic for you.
Remember, rare as hen's teeth, rare as hen's teeth, rare as hen's teeth…. repeat after me

Glad to hear you had a good day, nevergoogle, and that you have good support in place.
I don't think that your previous episodes have been 'cardiac arrests' - short-lived rhythm problems, maybe, but not proper electrical conduction defects IYKWIM.

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nevergoogle · 10/04/2014 11:35

flipping norah i'm tired.

the 2-3 hour naps are heaven and as good as it gets i know, but oh for a nights sleep.

found myself getting anxious last night. rib and back pain from cpr, plus tiredness to the point of feeling physically weak, throw in some wheeziness from asthma and i thought i might be getting ill again.

dh took over with baby stuff, made me a paella at 1am, some puffs on my inhalers and paracetamol and i ws feeling more human again. Smile

baby is sleeping longer at night but my boobs haven;t got that memo yet so i end up awake in the night when i needn't be. perfect time to worry and have a sob at the what ifs.

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StealthPolarBear · 10/04/2014 11:40

:(
Sounds like your dh is a star. Does he know that you're awake in the night worrying?
Am I allowed to ask for a pm photo of the newest little dragonfly?

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nevergoogle · 10/04/2014 12:35

This reply has been deleted

Message withdrawn at poster's request.

nevergoogle · 10/04/2014 12:40

DH is aware yes. we've been having our own debrief sessions during the night. i was hideous to be around during the pregnancy with 9 months of hyperemesis so it feels lovely that we are talking and laughing and crying and being lovely to each other again.

here's an example of what i have to put up with. i was in the shower the other morning and he calls from behind the shower curtain.

"There's a clean towel on the back of the door.
and i've put a fresh nightie on the bed.
You're dirty knickers, i've put on the internet".

Damn near burst my stitches.

that and the suggestion that my laundry 'regime' is verging on apartheid. apparently i am a racist for separating the whites and coloreds.

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PopiusTartius · 10/04/2014 12:40

It is relatively well known that spinals can (rarely) cause sudden drops in blood pressure and even through to cardiac arrests. There's a link to an NHS leaflet here that mentions them as possible side effects - i don't know if that might help to reassure you a bit that although rare, it is KNOWN. Really the medical professionals could do with stopping making you feel like such an oddity - that can't be helping you at all - although it sounds like in other ways you're getting good support which is brilliant and will help.

I don't think you will have been having cardiac arrests for the last 8 years - you just wouldn't recover that quickly. I have some medical training. I also have vasovagal episodes every now and then too so I understand that feeling of just wanting to crawl away and hide after one's happened.

Just be kind to yourself. You've had major surgery, in which there were serious complications. Take every scrap of help, kindness and chocolate offered. It will take you time and THAT'S OK xxx

Thanks and Cake to you x

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nevergoogle · 10/04/2014 12:43

*your.

i am exempt from grammar police currently though. i've earned that at least.

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StealthPolarBear · 10/04/2014 12:44

Gorgeous baby boy :o
he looks big!
And cutely serious :)
Well done
pmsl at knickers on the Internet

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StealthPolarBear · 10/04/2014 12:45
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Alibabaandthe40nappies · 10/04/2014 12:46

I'm sure you can ask for bathroom painting!

Some people aren't great at emotional support, but give them a task and they will get stuck right in as their way of showing they care without having to say so.

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nevergoogle · 10/04/2014 12:49

i have a parcel waiting at the post office which i suspect is my goodie parcel from MNHQ as I missed the open day. Feeling impatient that nobody has gone to collect it yet.

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Mintyy · 10/04/2014 12:50

Googly - he is absolutely gorgeous in every way Grin. Will you look at those cheeks.

So sorry to hear about your delivery though. It was a major thing and will take you quite some time to get over it, but you will you know.

Meanwhile Flowers and Cake for you lady!

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Alibabaandthe40nappies · 10/04/2014 12:50

Awww he is gorgeous! Grin He looks just like my two did, big strapping boys :)

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nevergoogle · 10/04/2014 12:53

he was 8lb 4ozs. but he's compact so looks chunky.

some very serious facial expressions and the windy smiles give a clue as to just how he is going to melt us with a grin.

he's flipping ravenous too, feeds like a machine.

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