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Carers

Caring for elderly relatives? Supercarers can help

Attendance allowance and general support as a fairly new official carer

26 replies

AlternativelyWired · 02/06/2022 00:26

Hello, I am now officially my mum's carer and she has just been awarded Attendance Allowance. I'm not sure yet if it's the basic rate or the higher rate just that several hundred pounds has been paid into her account and she is waiting on the letter to explain it all.

I've cared for my mum at various times over the years after bad injuries due to accidents and at her most dependent I was there 10 hours a day whilst breastfeeding my youngest and getting the two older ones to and from school and was/am a single parent. It's been tough at times but I love helping my mum. I'm the only one who helps her and I get pretty annoyed that my siblings don't do more but I'm glad that mum can rely on me. There have been carers in the past after injuries but they were rubbish as they couldn't come at the times she needed them and weren't very professional. I'm a retired nurse and set high standards and mum very much appreciates everything I do. My dc help out too when they can with my middle child cooking a meal for her some times if I'm busy with after school stuff. It's becoming a real team effort.

Mum might improve but she might not. She's independent with lots of things like all her personal care but can't stand to cook or hang out laundry or clean etc. the pain medication makes her a bit fuzzy at times and I am always on call to help her remember things and re-explain things. Otherwise she's fully with it and her only issue is her mobility. She's working hard with the physio and improving psychologically too as that was a big barrier for her. She's in her 80s but more like early 70s so she's very frustrated by her situation.

I don't feel happy taking any money off her for what I do but she has said the attendance allowance is partially for me. Yes, I do a lot for her but she's my
Mum and I'm happy to help. Is anyone else in a similar position? At the most I'd accept money for my transport to her house because I don't drive and use taxis when I have big bags of shopping or laundry to transport. Most times we walk. It would be maybe £20 a week for bus and taxi fares.

In addition to the money side of things has anyone any advice for support for me when things sometimes get a bit much? We had a couple of bad weeks a while ago and it's very tiring. My eldest is very troubled and lives with her dad; suicidal, truant, drinking, you name it. My middle one and I are waiting for autism assessments and I have chronic physical conditions too as well as working part time. I'm doing ok but I'd like to know where to go for support should I need it.

Sorry that was very long!

OP posts:
LilacPoppy · 02/06/2022 00:42

The attendance allowance is just for your mum it’s carers allowance that you can claim.

LilacPoppy · 02/06/2022 00:44

But obviously your mum should pay for the travel costs don’t feel bad about that.

AlternativelyWired · 02/06/2022 01:00

Hi, thank you. I'm not sure I can claim carer's allowance as I work part--time and earn more than £135 a week which I think was what it says online. I claim UC.

OP posts:
LilacPoppy · 02/06/2022 01:11

You can claim Carer’s element in UC regardless of your earnings. Just put a note in your journal.

AlternativelyWired · 02/06/2022 01:26

Really? That would be great as I earn £200 a week but sometimes zero in the holidays.

OP posts:
Zpoa · 02/06/2022 01:28

My dad gets attendance allowance and pays for carers. The carers happen to be a mixture of family and family friends (not me). The allowance is paid to support care and the needs of someone disabled. I get PIP and use it for a cleaner, gardener, window cleaner and hairdressers.

TooManyPJs · 02/06/2022 01:52

Don't put a note in your journal. Report a change in your home tab. They will add the Carer's Element. It also means that UC won't be asking you to go anything in order to claim UC eg you won't be required to look for more work.

AlternativelyWired · 02/06/2022 09:39

Thank you. I'll wait for mum's letter of confirmation to arrive then I'll report a change once I know what's what.

OP posts:
Tiani4 · 02/06/2022 10:03

You've had good advice re carers allowance / UC above from others that know more about DWP- carers allowance is what the carer claims direct once their carer for person gets AA or PIP and you're right it has strict criteria of who can claim that (including your income and if you do over ?35 hours care to her a week?)

I'm an adult social worker, I can't give you individual advice as haven't assessed but possibly can make comments in general terms of what publicly available info would tell you.

Your mums AA (attendance allowance) is to pay for additional support/ care she needs as a disabled person.

Yes she can pay you using her AA, and her using it to pay for your travel costs to visit to help her is also fine!! Or more than that, she can pay you for helping her! It has to be her choice of how she spends her AA and how much.

It is perfectly appropriate for her to use it to pay you or anyone that is providing her care support. Yes people sometimes pay their relatives using AA- as your list of prompting and reminding her and being available to her (etc) (when she has already been recognised as having a level of care and support needs, as she's entitled to AA) falls under you providing her with care support.

I imagine your mum far prefers paying you or giving you a bit of money towards the help you provide, than paying a formal carer through a care agency or employing a PA (personal assistant)

Do be aware if she formally pays you for care hours, rather than donates towards your costs directly extra to you for helping her, that may be considered an income by HMRC for you. (You'd have to read HMRC /UC info yourself)

For more help with care for your mother, you can discuss with her whether she would agree to you making a referral for her to have a social care assessment (under the Care Act 2014) by her local adult (care) services.

It may be a wait to get that assessment booked in but they can identify many options including telecare (lifeline alarms) and community facilities (lunch clubs, etc) which are useful as can help as preventative services. As well as identufying if she isn't managing with current support and has needs for a care package or funded services, like day care etc. That's financially assessed under LA charging policy , but they may take into account if she is using her AA to pay for care that might have been funded by LA otherwise (eg your support). Do have a look at her county councils adult care website as there will be plenty of info on there.

Also as her main informs carer, if she is assessed as having eligible needs under the care act herself, even if she doesn't have a formal care package, you can ask for a carers assessment in your own right. At this stage that may not get you anything funded for you (ie if you aren't doing 24/7 care in need for funded carer break cover) , but it's a chance to talk about impact on you and be given advice on carer support services such as local peer groups, and for eg local dementia support groups for carers and many other local community support carer initiatives in the area.

Sorry I can't help with children in need (ie child disability) services options as CSD (children services dept) is different to work done in adult care services dept, under different legislation- but there should be info online for that CSD in your LA too.

Hope that is helpful

Ikeptgoing · 02/06/2022 10:06

Sorry a couple typos
I meant 'cared for person' not 'carer for person'
And 'informal carer' not informs

AlternativelyWired · 04/06/2022 23:14

My mum has had confirmation of attendance allowance and receives the higher rate. It's been backdated to March.

If I claim carer's allowance will this be backdated too and would I then have an overpayment of universal credit?

OP posts:
DPotter · 04/06/2022 23:24

Could your Mum also claim mobility allowance?

LilacPoppy · 04/06/2022 23:29

@DPotter No she can’t.

LilacPoppy · 04/06/2022 23:30

Op you don’t need to claim Carers allowance to claim carers element but yes it can be backdated.

AlternativelyWired · 04/06/2022 23:43

I didn't realise that there was a carers element and carers allowance hence my confusion. Doesn't take much these days! I've reported the change in my journal and I'm hoping I won't be worse off.

OP posts:
whattheydidtoFresnoBob · 05/06/2022 00:04

Have a look through this page OP, there are some expenses deductions (pension etc) you can apply to qualify if it helps.

https://www.gov.uk/carers-allowance/eligibility

If your earnings are sometimes more than £132 a week you might still be eligible for Carer’s Allowance. Your average earnings may be calculated to work out if you’re eligible.

Not sure how that interacts with UC though.

Ikeptgoing · 05/06/2022 23:00

DPotter · 04/06/2022 23:24

Could your Mum also claim mobility allowance?

@DPotter
Attendance allowance (AA) is the disability benefit for older people. It doesn't have a Mobility component. You're thinking of PIP (previously DLA ) which has mobility and care components- and is the (instead of) disability benefit for younger people, new applicants age limit is 65 for PIP. People apply for AA after that age.

Ikeptgoing · 05/06/2022 23:07

AlternativelyWired · 04/06/2022 23:43

I didn't realise that there was a carers element and carers allowance hence my confusion. Doesn't take much these days! I've reported the change in my journal and I'm hoping I won't be worse off.

It's definitely worth going to CAB (citizens advice bureau) and getting some advice on what you are entitled to, re UC / carers allowance or carers element. You ring them and book in an appointment in our area, but they will give you sound advice as are very good on benefits. DWP isn't always 💯 % great on telling you what you can claim or what will work out best for you - CAB are entirely independent will look to maximise what you may be entitled to and are very helpful

CAB may be able to help you maximise what you can claim in benefits for your children's needs too and explain it all very clearly

Thisbastardcomputer · 05/06/2022 23:18

@Tiani4 this is brilliant advice.

We got lots of help and advice through mums social worker and as time went on, equipment to help, ours was brilliant helping with end of life care.

Social workers get a lot of stick, the ones who helped us were invaluable

AlternativelyWired · 07/06/2022 09:37

I've been awarded carers element for this month. It's not been backdated.

OP posts:
LilacPoppy · 07/06/2022 18:00

@AlternativelyWired you need to request the backdating

AlternativelyWired · 07/06/2022 19:37

Thank you. I have done that now and hope they will do it as it's 2 months money.

OP posts:
LilacPoppy · 07/06/2022 20:54

As long as you request within a month of your mums letter awarding AA, then they have to backdate it to the date AA was awarded from.

AlternativelyWired · 07/06/2022 21:49

Mum got the letter on Saturday and I've requested they backdate it today so fingers crossed they do.

OP posts:
AlternativelyWired · 08/06/2022 17:18

My request has been forwarded to someone in charge of these decisions it would be rather fabulous to get the back payment. I'm very grateful to all the posts here giving me information and advice. Whilst some isn't relevant at the moment, should I need to involve adult social care for example in future I am armed with lots of information to help mum (and me).

OP posts: