Cancer Support Thread 98: support for those diagnosed and going through treatment

[FcukBreastCancer]

Hello 👋

Sorry to hear this @Ventress. My day went a little haywire as had an allergic reactions to paclitaxal and couldn't breathe! The other treatments were OK.

@Sbmpp @Ventress

That all sounds really tough 💐💐

@Pieceofpurplesky sorry to hear it didnt go quite to plan. Hopefully now they know next time will be much smoother.

I came away fron my appt with higher dose steroid cream and antibiotics for the rash.
Though I've now spoken to 3 consultants who don't want to think about it being the Phesgo, even though its listed as a side effect, and I've been quite clear that it happened after my second injection, it was doing much better until I had injection number 3 when it flared up again. So in my view its the Phesgo or the combination of the two which my body doesn't like.

@ventress - sorry to hear you have to have another chest drain, did they discover this from ct scan or your appointment yesterday?

@Sbmpp I am sorry to hear there are more tests for you to go through too, they do love a test - can you say no thanks? Surely the PET scan has given them enough information.

@Pieceofpurplesky sorry to hear that you had a reaction - I had a bad one on my second chemo but different one to yours, at least they know now to be cautious with you, so it means they are extra careful and sometimes slow the infusions down.

@Ted27 I am not surprised that they are trying to say its not phesgo. While you are on chemo and phesgo they can try that line but once you are on phesgo alone they have to admit it is phesgo - I have seen other women say this too.
I hope the new medications work for you.

Bless you all its such a slog at times, wish we could all get a break,

Thank you all. I’m okay. Worried about you guys though. Sounds like you all have some horrible side effects. I’m sorry you are going through this.

i completely agree with evey@cantbelieveIamhere says - she’s very wise.

i got the diagnosis yesterday @cantbelieveIamhere. I had a call with the bcn nurse in the morning and told her about the drop in oxygen levels and tightness in my chest/breathing. When I went in to have my Zoledronic acid infusion the bcn listened to my chest and messaged the pleural team. They have called today and I have booked in for Tuesday. I really can’t fault the hospital team , they are fantastic 🌟

i.do hope the new medications work @Ted27definitely sounds like it’s the phesgo to me. I hope the medications can be balanced for you. 🤞

@Pieceofpurplesky- oh no, that’s horrible! How awful for you 😢 are you feeling better today ? When I had the paclitaxel I did see a man have an anaphylactic reaction - poor thing. They did deal with him brilliantly though. I hope your team was just as good.

oh @SbmppI’m sorry to hear your update 🤗 as @cantbelieveIamheredays, can you refuse the additional tests?

@ventress thank you for the wise compliment - actually I think we are all getting pretty wise here and I value everyones contributions - we all help each other which is lovely. Best wishes for Tuesday I hope it goes smoothly, I am in hospital on Tuesday for phesgo, so let the extra itchiness begin!

The team were amazing @Ventressin five minutes I was ok again! Breathing and BP stabilising. Scary for a while though

I’m pleased to hear that @Pieceofpurplesky. So scary! I’m glad you are feeling better now.

you are wise @cantbelieveIamhere. I tend to agree that we are all getting wise now. Rather a bummer given our situations but inevitable I guess. How was the phesgo?

I’m back on about 30 tablets a day but pretty good otherwise. Yesterday was odd - I felt lousy during the bulk of the day but felt much better in the evening. It’s usually the other way around.

I hope everyone is enjoying the fine weather we are having. Isn’t it glorious?

DH and I had a fall out with 18 year old DS the other day, but yesterday we cleared the air and are good again. That’s a relief as I hate falling out with my son.