It wasn't ovarian, it was lymphoma

[Ohjoyohbliss]

My original thread is nearly full, hence starting this one.

I knew I probably had cancer in late July 2025 but it took until the end of August to get a definitive diagnosis: Diffuse Large B-cell Lymphoma, Stage 4.

I have had six rounds of chemo, the last of which was on 12 December. Had a lot of nausea and vomiting, plus an infection which left me hospitalised on oxygen and IV antibiotics for a while. I am extremely weak now, and waiting to find out whether the cancer is still active. (A scan at the half way point showed it was.)

Obviously things will be very different in 2026 and go one of two ways, depending on the scan result, which I will find out on Friday 16th January.

Previous thread:
https://www.mumsnet.com/talk/cancer/5382361-likely-ovarian-terrified-anyone-available-for-a-hand-hold

(Not sure why that takes you to the middle of the thread; sorry.)

Oh joy Joy! Didn't see your update.. I'm sending hugs through the air waves..
X

Thanks everyone.

I've been for my IVIG today and am having some booster vaccinations on Friday so I'm as protected as possible. A nurse who, by her own admission, has been off work with a severe cold (who knows, it might have been covid) was back on the ward today and not wearing a mask. I asked if she could please put one on and she said "I don't have one" and carried on her conversation. It's a hospital, FFS! They will have masks somewhere. Obviously I put one on myself, but because my infusion takes hours, I need to eat and drink, so I had to take it off at times. Surely a nurse who knows she has an infection should wear a mask, especially when around immuno-compromised patients?

I'm thinking of contacting PALS but, as ever, I'm worried about being "that patient" because I need more treatments on that unit.

Woah! I am extremely surprised re not wearing a mask.They must have a policy in place surely? I understand that you don't want to be 'that' patient but they have a duty of care. They are caring for vulnerable people!

"I don't have one" ... can she be serious!?
I would be tempted to be "that patient", but I get how you feel.

I am so happy to read the word remission in your post. That's such amazing news for you and your family

Sorry I am only catching up with your updates. And what a wonderful surprise. I am so so happy for you Joy!!!! 💗
Everything is going the right direction and you can start planning travelling which is what you like doing the most.
Europe is safe and you will enjoy every minute.
I am so happy for you. I didn't have a good day today and this absolutely made my day. Congratulations 🎊

That’s absolutely brilliant news Joy and gave me a real boost. I would be tempted to go to pals re the nurse too but understand your reservations.

Wonderful news Joy, so pleased to hear you are in remission 💕 and well done for all the walking journeys as well, I hope you have a wonderful trip to Europe 🙂

May I suggest you have a look on the AllClear travel insurance website, they cover most health issues, definitely worth having a conversation with them
https://www.allcleartravel.co.uk/

Joy, I have silent been reading and it's wonderful that you are now in remission.

I would be that patient. My husband had to go the cancer treatment ward for me to ask a question and he wasn't allowed in until he was masked (which he was absolutely fine with because he understands the need and I'm high risk of catching things so he does his bit!) A nurse should absolutely know better especially when she has been off sick. Please be that patient.