It wasn't ovarian, it was lymphoma

[Ohjoyohbliss]

My original thread is nearly full, hence starting this one.

I knew I probably had cancer in late July 2025 but it took until the end of August to get a definitive diagnosis: Diffuse Large B-cell Lymphoma, Stage 4.

I have had six rounds of chemo, the last of which was on 12 December. Had a lot of nausea and vomiting, plus an infection which left me hospitalised on oxygen and IV antibiotics for a while. I am extremely weak now, and waiting to find out whether the cancer is still active. (A scan at the half way point showed it was.)

Obviously things will be very different in 2026 and go one of two ways, depending on the scan result, which I will find out on Friday 16th January.

Previous thread:
https://www.mumsnet.com/talk/cancer/5382361-likely-ovarian-terrified-anyone-available-for-a-hand-hold

(Not sure why that takes you to the middle of the thread; sorry.)

I've been following and you've been an absolute trooper. Everything crossed for you 🤞

I have everything crossed for a positive scan result @Ohjoyohbliss X

Everything crossed and loads of love sent 🥰

Thinking of you OP. I'm 9 months in remission from Stage IV Hodgkin's Lymphoma. It's hard and shit and the treatment is brutal. Everything crossed that you start to feel stronger soon, and your next scan shows no evidence of disease x

I’ve also been following you and am in awe of your bravery. Hope you get good news soon x

I’ve been following your journey, whilst riding my own rollercoaster. I sincerely hope next weeks scan results are positive and you are finally cancer free. My fingers and toes remain firmly crossed!

Following because I found your previous thread today and I’m wishing you all the best x

Also wishing you all the best and hoping you get the scan results you want and deserve

Adding myself to the support for @Ohjoyohbliss - I’ve been there in a different way.

Was thinking of you today, sending positive thoughts for the 16th.

Just read your previous thread and you have been so strong going through all of this. Wishing you all the best for 2026

I'm not brave. You just do what you have to, to get through it. Although I had chosen BRAVE as my word of the year for 2025, obviously before knowing what it would entail.

For 2026 I have chosen ALIVE.

Again, I'm really not strong. I'm lucky to have a very kind and supportive husband and his family have been great. Mine not so much.

You do do what you have to, but it's not easy and it's not a road you would ever have chosen. And even coping with that day after day rather than stopping and resigning yourself and just fading away regardless of the diagnosis and prognosis (which people do!) is brave. And as you're so good at manifesting things, great word!! ❤️

My Dad has a stage 4 diagnosis of gastric cancer. I was reading your thread last month when he was diagnosed, and I wish you all the best and hope your results are good on the 16th. I hope if I am ever in the same boat as you one day, I will find as much strength as you. You have been amazingly brave through it all.

The hope is that the chemo I've completed has resulted in a cure. This is what they told me was the aim at the start of the chemo. On that basis, it was an easy decision to go through the chemo. (The decision was easy, the chemo wasn't, mostly because of the sickness and the infection I developed. )

However, if it turns out that I'm not cured, I will have to think long and hard about whether to undergo further treatment, depending on what it is, and the likelihood of success. I have pre-warned DH of this, but he doesn't want to think or talk about it until we get to that point.

@Ohjoyohbliss it's a decision only you can make after input from the experts and your loved ones and we will all support you whatever happens. Hoping for the very best news.

Thinking of you, best wishes for the best results

We spent a lot of time waiting around today, as they were running very behind. The lady who rang me yesterday said I would be on my way home by 2pm, but it was much later than that when they started the scan, then we got held up by school traffic so didn't get home until almost 4.

They said it will be 3-5 days to report, so it seems that my doctor was right to defer the MDT and my appointment by a week.

Oh, and I took an anti-emetic this morning because of the car journey, but I still managed to be sick before we arrived at the hospital.

Always feels like a "hurry up and wait" situation with appointments. Don't be late, need to find a parking space, can't miss the scan so be a bit early for that...and then it all runs hours behind. Same for appointments and pushing things through the system: this is urgent, need a scan/treatment/review immediately...but actually that adds up to weeks before any information is shared. That alone is draining.

Watching and waiting in the wings for your news Joy. Well done for completing the chemo and getting through your scan day. The waiting now is awful and, although I can understand the need for MDT’s, keeping you waiting just seems cruel. Fingers and toes crossed for you Joy x

Yesterday DH took me to the pub over the road to meet our financial adviser. It's the first time I've been out, other than hospital appointments, since 11 December.

I had a dessert with cream and ate it all. (Normally I leave some.) Sometimes when I've eaten there, I've got home and sicked it up again. I don't think there's anything wrong with the food, it's just a bit rich for me.

Anyway, I wasn't sick. But I've had diarrhoea overnight, continuing into today. Not good. My tummy is still gurgling and I feel rubbish. My temperature is fine, so it's not an infection.

On a brighter note, the little robin visited again today. I know this is a rubbish pic but at least it shows it's real, not a hallucination.

When a robin appears, a loved one is near x

🤞 for good news on the 16th