Grade 1 breast cancer

[ohdoriswheresthesalad]

I have been diagnosed with grade 1 Non specific type breast cancer today with dcis in situ. Lymph nodes clear from ultrasound.

I am massively worried. has anyone had any experience of this?

• [Title and first post edited at OP's request - originally titled Stage 1 breast cancer]

I was initially told I had stage 2 but when they operated it was actually much smaller than they thought and it was downsized to grade 1. No idea what the rest of it was but I like to tell myself my body had built a wall around it :)

I remember the confusion well - it’s difficult because, yes, you've been diagnosed with cancer, and yes, the treatments are tough. And being told it’s “not that bad “ in some way feels like it invalidates your fears and panic, especially when you don’t know much about all the different sorts and all the different treatments.

I can still feel like this now. When I’m going through a tough patch.

I’m sorry i tried to read that and it set me off reading about prognosis and stages and that. It’s made me feel physically sick that I may not be here in 5 years time 😭😭😭😭😭

I haven’t been told any staging. I’ve been told grade 1 that’s it so when I have the op it’ll be staged after that?

Your OP said stage 1 though? I think that’s what you were told?

I meant grade 1. Grade 1 no specific type with DCIs in situ, ER 7 +

I can not read forums or help sites atm. I have just vomited and got myself in a right state after reading about prognosis and that.

That’s what my paperwork said. I clearly got muddled in the shock and upset of it all.

This is far to overwhelming for me to deal with, I feel like I can feel the cells in my breast right now it’s pulsating so bad. I know I can’t really but it’s so overwhelming

Kindly OP, you should probably reach out to your GP about your anxiety. This is a huge shock but the prognosis ( based on your current diagnosis) is very good. It is highly unlikely to be something that means you are not here in 5 years time.

I already have citalopram given by docs.
yes it’s all based on current diagnosis which when I’ve had the op could change couldn’t it. Could change after mri.
I’ve just read stage is different to grade and depends how big the mass is and if it’s spread.

But they may well have said stage 1, even if not on paperwork.

To be honest with you I don’t remember much from the conversation in the room, I called th nurses up after and went over it but I will call Monday and ask for some advice about my anxiety and reassurance. Apparently the MRI isn’t a nice experience?! I’ve never had one so I’m worried about that now too!

The MRI is fine op, I’ve done it a couple of times honest for me it was really absolutely fine please don’t add that to your worries.

@Nonamelasseverything is worrying me. Any little thing.

@ohdoriswheresthesalad
To reassure you, survival rate after 5 years for stage 1 and 2 breast cancers is 99%. It is exceptionally unlikely that you will not be here in 5 years especially if your cancer is grade 1.
Please ignore Google and just get your information from Breastcancernow and MacMillan websites and ideally join their forums. The posters are lovely and supportive.

Oh I quite like the mri. 15 mins of total peace!

it’s a bit noisy but honestly, last time I nearly fell asleep!

oh gosh I’m really sorry :(

It’s not your fault, I just can’t read it. I don’t want to join forums and look at other people’s stories it just triggers me when I read some worse than mine and think that’s how I will end up. I can’t even read breast cancer now website or macmillan. I haven’t even looked at my pack I was given yesterday. It’s too frightening for me to do.

My cells were grade 2 and I fully intend to be here when I’m over 80. The prognosis was really good. I’m taking tamoxifen but even considering giving that up - going to be asking for some help with deciding that, or some extra meds to help, at an appointment soon.

Don’t read any of it. Just know that they’ve got you firmly on a well evidenced path with excellent care.

and it’s been caught very early indeed.

But then my brain tells me if I don’t read it and prepare myself for the worst possible outcome then I’ll be blindsided and scared even more. So I can’t win. I don’t look and I’m terrified. I look and I’m even more terrified. What do I do. I can’t imagine not feeling like this.

Can you spend some time looking at outfits for your 40th?

you’ll deserve to splash out! ;)

you will feel very different. Trust me. This too shall pass

You’ll be on mn in 6 months holding someone else’s hand through it ❤️