Grade 1 breast cancer

[ohdoriswheresthesalad]

I have been diagnosed with grade 1 Non specific type breast cancer today with dcis in situ. Lymph nodes clear from ultrasound.

I am massively worried. has anyone had any experience of this?

• [Title and first post edited at OP's request - originally titled Stage 1 breast cancer]

@Ffififofumare you having to have chemo then

Waiting on biopsy results. Hopefully won’t need chemo. But waiting is the worst.

Yeah absolutely. These 2 weeks were awful. I’ve ended up on citalopram!

I think the guy who did my needle biopsy said something like “Mr Goh says it’s not cancer but I’m not so sure. Your lymph nodes look fine.”

Radiotherapy is mainly lots of waiting around, although I did get really tired towards the end of my 3 weeks.

It’s a scary bugger of a thing to happen OP, but you mainly plod through it in the end as you have no choice.

Have you got support at home?

The cancer nurses at the hospital were amazing.

Also, I found the cancer support thread on here very helpful.

When you say needle biopsy was that before you were diagnosed? I was told by the consultant and the nurses it didn’t look like cancer and was likely to be benign but they had to test to be sure. Then shocked yesterday! The consultant even said she was shocked but as it was so small and grade 1 were in the best shape?

Yeah I have my husband and kids, they’re teens. Haven’t told the kids yet or my parents. They’ll just flap. My friends at work will be brilliant. My sister.

I don’t want to look at too many things and get too much information cos my mind wanders and I get ahead of myself. I’d rather stick to facts and people who have been through the same. I’m worried I’ll see someone with something worse and spiral that’s what I’ll end up with.

Grade 1, small and you know about it. All things to be optimistic about op. Its shit I know, but treatment on the NHS is good.

@FcukBreastCancerno I know. But everyone was so optimistic it wasn’t cancer and it is….i don’t feel optimism is going to get me anywhere atm!

All I keep thinking is am I going to die 😭

Mine was explained to me as - yes it’s shit but on a scale of shit it’s at the better end.
it has a survival rate of 99% at 5 years. You are completely shocked by the news but in all reality, you are not going to die imminently from this.

Imminently? So I could do?

My needle biopsy was one of the tests when I went in on the 2 week pathway.

I get that it’s hard and scary OP. I was 39 and I’d had 3 lumps previously that had been fibroids. It’s easy for me to be calm 7 years later.

You’ll get through it because you have to. Things will feel better once your treatment starts. Some days will be easier mentally than others.

Oh my god I’m freaking out now, so I could die from this!

I’m 39 too @MinnieMountaini really am freaking out now after what @LoudSnoringDog said

Please speak to your McMillan nurse. You’re catastrophising, which is understandable.

I know what you mean. My consultant pretty much told me it wasn't going to be cancer. So I rocked up alone to be told the news.
Try and reach out to your nurse, breast cancer now or maggies. It takes time to process and the initial shock and waiting for treatment is awful.

I've had my surgery and will have radiotherapy in the new year probably.
Plans can change along the way due to test results, I've found that a bit unsettling. The surgery wasn't too bad at all pain wise.
They will look after you.

When someone says imminently that’s means you will eventually!

@FcukBreastCancerwhat changes are likely

It's not that it's likely, but there are tests along the way. Like of the removed area. Everyone will have treatment tailored to them

I think what the other poster was saying is that everyone dies eventually. Not that you are going to die of this.

Please talk to your nurse. Have you been allocated one?

I spoke to her yesterday on the phone I can’t keep calling up every time I have a freak out I’ll never be off the phone!

And she said you won’t die imminently from this meaning I will eventually

@ohdoriswheresthesalad - please don’t panic. It’s been caught really early. It hasn’t spread. It will be removed and you will have radiotherapy as a precaution. I think the comment of not dying imminently was a bit clumsy.

Breast cancer is really well treated these days. I remember telling my hairdresser and she was telling me her mother had breast cancer four times and had just turned 75.

They have caught yours very early.

@Peridot1i an absolutely beside myself now 😭 I’ve just read a girl at 24 had stage 3 breast cancer and it metastases in to lungs and liver now she’s terminal!!!