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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

See all MNHQ comments on this thread

Original poster

Likely ovarian. Terrified. Anyone available for a hand hold?

983 replies

Ohjoyohbliss · 29/07/2025 19:15

Blood test yesterday: Serum CA 125 level over 35 indicates possible cancer. Mine is 213. Shit.

DH knows and one friend but I don't want to worry anyone else until I know how bad it is; hence I've name changed for this post. I'd love to know how anyone else has coped / is coping.

CT scan Saturday and USS on Monday. GP has made 2ww gynae referral today.

OP posts:
Thread gallery
5
nabanna · 25/09/2025 18:21

Hopefully won't be a long by wait,
was going to suggest going home and getting OH to collect them tomorrow morning , but suspect your drug regime requires drugs to be taken at exact times so that won't work

Angelil · 26/09/2025 03:29

Hopefully you’ll soon be home @Ohjoyohbliss

Enigma54 · 26/09/2025 13:53

How’s it going @Ohjoyohbliss?

Original poster
Ohjoyohbliss · 27/09/2025 15:49

Thursday I was sick at lunch time and again as soon as I got home in the evening. At least I wasn't sick in the car. Yesterday I thought we'd cracked it, because I wasn't sick all day, although I really didn't feel well.

This morning I felt a bit better but I've just sicked up my lunch. One step forward, two steps back.

OP posts:
possomblossom · 27/09/2025 23:23

Watching your posts and praying for a good recovery, OP. I hope you were able to eat something this evening and that it stayed down. Hopefully now you're getting some sleep. And I hope tomorrow is a better day. Hugs.

Words · 28/09/2025 15:36

So glad you're at home. The vomming is just awful. I am so sorry.

Have you tried clear soup? They call it bone broth these days and Ocado will deliver. Packed with nutrients and easy on the digestion.

Sending love and thoughts on the eastbound m 62

DrAmeliaShepherdMD · 29/09/2025 22:27

Thinking of you @Ohjoyohblisshope you’re feeling a little less sick today

Original poster
Ohjoyohbliss · 30/09/2025 10:11

I'm just sick of being sick. Yesterday I stayed in bed all day because I only tend to feel sick when I'm sitting up or standing. It worked until the evening, when I had to go sit on the loo for a few mins. I went straight back to bed afterwards but started throwing up a couple of minutes later.

OP posts:
Enigma54 · 30/09/2025 10:14

Oh gosh, this is awful. And this is chemo induced sickness? What anti sickness did they give you in the end?

LilacRos · 30/09/2025 16:15

@Ohjoyohbliss you poor thing. I had hyperemesis in pregnancy and remember the only way I could eat was lying in bed. Plain boiled rice. Once you start throwing up it seems to escalate and you can't stop. I had it with chemo as well but the drugs helped. I'm so sorry they haven't managed to give you something that works.

DrAmeliaShepherdMD · 03/10/2025 08:10

I read something ages ago about ginger lollipops, I wonder if you’d be able to suck on them for a bit of energy and nausea relief?

Original poster
Ohjoyohbliss · 03/10/2025 10:56

Now that my hair is nearly gone, I have wondered why I didn't get the option of a cold cap for the chemo, so I've been reading about it. There are two reasons:

  1. A cold cap isn't particularly effective at preventing hair loss caused by the specific chemo and immunotherapy drugs I'm on, and

  2. With blood cancers like lymphoma, the cold cap can allow some of the cancer cells to "hide" in the scalp and not get targeted fully by the chemo.

Cold capping is much more appropriate for solid cancers such as breastfeeding cancer.

I'm glad to have the explanation now, although I wish someone had explained this to me earlier, because I was feeling a bit like a poor relation not getting the options that other people get.

OP posts:
Original poster
Ohjoyohbliss · 03/10/2025 11:02

Enigma54 · 30/09/2025 10:14

Oh gosh, this is awful. And this is chemo induced sickness? What anti sickness did they give you in the end?

It's unlikely to be chemo-induced sickness now, as the chemo drugs should be out of my system. I started being sick well before I started chemo, so it's a symptom of the cancer itself.

I'm currently on Cyclizine and Ondanzatron but have been on others as well, which I expect I documented up thread.

OP posts:
LilacRos · 03/10/2025 11:38

@Ohjoyohbliss There's every chance it would not have worked and you'd have put yourself through additional suffering for nothing.
I refused the cold cap when I had chemo for breast cancer. Partly because I didn't want anything else to add to the already stressful and unpleasant experience. Also because even for breast cancer there is a small risk of cells surviving in the scalp. I couldn't justify taking that risk just for temporary vanity. I did find this very upsetting, not because I cared about my hair, but because I felt pressured to "just try it". As if I wasn't doing cancer properly 🙄.

EachandEveryone · 03/10/2025 16:25

It never crossed my mind to use the cold cap and I had gorgeous hair. It grew back very quickly and looks better than it did before. I was over winter so had lots of nice woolly hats. And a great wig but I wasn’t fussed about wearing it either.

Tiberius12 · 04/10/2025 00:26

Ohjoyohbliss · 03/10/2025 10:56

Now that my hair is nearly gone, I have wondered why I didn't get the option of a cold cap for the chemo, so I've been reading about it. There are two reasons:

  1. A cold cap isn't particularly effective at preventing hair loss caused by the specific chemo and immunotherapy drugs I'm on, and

  2. With blood cancers like lymphoma, the cold cap can allow some of the cancer cells to "hide" in the scalp and not get targeted fully by the chemo.

Cold capping is much more appropriate for solid cancers such as breastfeeding cancer.

I'm glad to have the explanation now, although I wish someone had explained this to me earlier, because I was feeling a bit like a poor relation not getting the options that other people get.

I just wanted to say Hi. I have lymphoma and was also originally diagnosed at Pinderfields.
I also wasn't offered the cold cap and didn't know why. But it is because the chemo for blood cancers needs to be able to get everywhere including your scalp.

Hope you're starting to get over the sickness

Original poster
Ohjoyohbliss · 04/10/2025 10:44

Tiberius12 · 04/10/2025 00:26

I just wanted to say Hi. I have lymphoma and was also originally diagnosed at Pinderfields.
I also wasn't offered the cold cap and didn't know why. But it is because the chemo for blood cancers needs to be able to get everywhere including your scalp.

Hope you're starting to get over the sickness

Show quote history

Hi! How are you doing now? What kind of lymphoma do you have?

OP posts:
Tiberius12 · 04/10/2025 12:32

Ohjoyohbliss · 04/10/2025 10:44

Hi! How are you doing now? What kind of lymphoma do you have?

Show quote history

I have Primary mediastinal B cell lymphoma so its in my chest. Ive had quite the journey of various chemos and Car T which have all worked to seem extent but not got me into remission. Ive been transferred to The Christie in Manchester now for a clinical trial of immunotherapy which seems to be working so far.

itsmeafterall · 06/10/2025 21:22

Hi @Ohjoyohbliss just popping in to see how you are today.

Enigma54 · 06/10/2025 21:34

And me.. also saying “ Hi “ hope the sickness has subsided?

Original poster
Ohjoyohbliss · 09/10/2025 11:51

The sickness does seem to be subsiding. It's now Thursday and the last time I was sick was Monday afternoon when I got home from hospital. I had a morning appointment but had to wait hours for blood test results before they would let me go home. Hadn't anticipated that, so I missed my 2pm anti-emetic, then the car journey probably didn't help. I've always suffered motion sickness but not normally on such a short journey. I'm thinking that my current predisposition to sickness is exacerbating it.

Yesterday I had my pre-assessment for Friday's chemo at Dewsbury. I wore my travel wrist bands for the journey. Felt fine when we got home, so we took MIL for a pub lunch as a small thank you for all of the driving to/from appointments etc. I had a child portion because I still can't eat large portions.

This was a VERY BIG DEAL for me because it's the first time I've been out anywhere except hospital since mid August. This afternoon I'm meeting one (or hopefully more) of the lovely book club ladies for a drink and maybe a pudding.

OP posts:
Original poster
Ohjoyohbliss · 09/10/2025 12:17

Tiberius12 · 04/10/2025 12:32

I have Primary mediastinal B cell lymphoma so its in my chest. Ive had quite the journey of various chemos and Car T which have all worked to seem extent but not got me into remission. Ive been transferred to The Christie in Manchester now for a clinical trial of immunotherapy which seems to be working so far.

Show quote history

I really hope that the immunotherapy trial drug does the trick for you. How long are you on it?

OP posts:
Moreteaandchocolate · 09/10/2025 15:06

@Ohjoyohbliss I’m so glad the sickness is subsiding and you managed a small meal out - that’s brilliant news. Hope you enjoyed your drink and pudding out too 🍮

Enigma54 · 09/10/2025 16:35

Ohjoyohbliss · 09/10/2025 11:51

The sickness does seem to be subsiding. It's now Thursday and the last time I was sick was Monday afternoon when I got home from hospital. I had a morning appointment but had to wait hours for blood test results before they would let me go home. Hadn't anticipated that, so I missed my 2pm anti-emetic, then the car journey probably didn't help. I've always suffered motion sickness but not normally on such a short journey. I'm thinking that my current predisposition to sickness is exacerbating it.

Yesterday I had my pre-assessment for Friday's chemo at Dewsbury. I wore my travel wrist bands for the journey. Felt fine when we got home, so we took MIL for a pub lunch as a small thank you for all of the driving to/from appointments etc. I had a child portion because I still can't eat large portions.

This was a VERY BIG DEAL for me because it's the first time I've been out anywhere except hospital since mid August. This afternoon I'm meeting one (or hopefully more) of the lovely book club ladies for a drink and maybe a pudding.

Good news @Ohjoyohbliss
Getting out is a major thing. I remember going to pizza express with DP in July, after months of being unwell. I thought I was in heaven! Enjoy!

Mischance · 09/10/2025 16:56

Big deal indeed! - well done!