Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Seeing oncologist

55 replies

TeaAndStrumpets · 30/11/2024 11:20

My DB is elderly and lives alone. In October he collapsed while out doing his shopping. He was admitted to hospital and as well as infection they discovered cancer in stomach, liver and possibly lymph nodes. He had fluid round his lungs which we were told is a sign of the cancer spreading.

He was discharged home after a few weeks but had another fall and lay undiscovered for some days so was readmitted. He has gone in a few weeks from biking everywhere to barely able to walk even with a frame. He is extremely bloated - think Henry VIII. Breathing horribly laboured and bubbly sounding. At the moment he has been placed in a rehab home to improve his mobility. He would like to go home but his home is extremely unsuitable. Absolutely awful. Dirty and piled high with rubbish. Been like it for years, family never allowed in but he would visit their houses quite happily for family events.

OK my question is, while he was in hospital the second time my younger brother (after speaking to a doctor on rounds) got the impression that as the cancer was so widespread, it would be palliative care only and DB would not be seeing an oncologist.

Now we find out he does have an appointment, next week. So perhaps other DB is mistaken that our brother wouldn't need to see a specialist? I thought it seemed odd, but have no experience. It is so frustrating living some distance away, all my information is second hand. Please could anyone tell me if this is standard procedure? What can the oncologist tell him? The home he is in still haven't received his notes, so the system seems somewhat mysterious to me.

Thank you.

OP posts:
TeaAndStrumpets · 11/12/2024 08:55

Thanks @Footle He is such an odd character but we do love him.

It has occurred to me that there must be so many people in his situation. I know the NHS has problems but the organization and communication leaves a lot to be desired.

OP posts:
TeaAndStrumpets · 12/12/2024 08:03

After all our running around, the final obstacle to nursing home or hospice is DB himself. After much questioning he has dug his heels in and says he definitely wants to go home. He is really homesick and wants to be back in his familiar surroundings. He misses his TV and wants to watch his numerous motorbike DVDs on a big screen. He understands he will be confined to bed, but is not bothered. I think the well meaning social interactions in hospital/care home have been a bit overwhelming and he's just had enough.

Anyway, the family now accept his wishes. We were trying to impose our own standards on him but this is what he wants. He says he has no pain and we hope he passes peacefully.

OP posts:
TheSpottedZebra · 12/12/2024 09:03

Oh @TeaAndStrumpets this is all so hard for you. Of course you want him to be where he is safest, but he should also get to choose where he wants to be.

Can you get hospice at home type support for him to remain at home, with good painkillers?

TeaAndStrumpets · 12/12/2024 09:19

TheSpottedZebra · 12/12/2024 09:03

Oh @TeaAndStrumpets this is all so hard for you. Of course you want him to be where he is safest, but he should also get to choose where he wants to be.

Can you get hospice at home type support for him to remain at home, with good painkillers?

Thank you. Yes he will be getting carers 4x a day and a visit overnight. Remarkably he denies having any pain. He has been referred to the Macmillan nursing team so they can monitor if he needs anything. I have a feeling he won't be with us for long. The other day he didn't want any food or drink at all, then perked up again. He is sleeping a lot. Quite peaceful so far. Hope it continues.

OP posts:
whatwouldyoudoifisangoutofkey · 12/12/2024 09:26

@TeaAndStrumpets you sound like the loveliest of sisters and family.
Not everyone would be so understanding or supportive of a relative wanting to go back to their muddled home.
I'm so sorry you're going through this , it seems worse at this time of year I think.

TeaAndStrumpets · 12/12/2024 09:45

whatwouldyoudoifisangoutofkey · 12/12/2024 09:26

@TeaAndStrumpets you sound like the loveliest of sisters and family.
Not everyone would be so understanding or supportive of a relative wanting to go back to their muddled home.
I'm so sorry you're going through this , it seems worse at this time of year I think.

Thank you, that is much appreciated. I have been horribly anxious about it all but now feel at peace. As long as he has no pain.

81 ain't bad. I have a lovely photo of him with his other brother, who died in March, as toddlers. They were pictured sitting on a beach wearing little knitted swimming costumes...one perfect memory.

OP posts:
jay55 · 12/12/2024 12:48

Lovely to have those good memories.

The sleeping will likely increase and increase and then he'll be gone.

Do take care of yourself too during this time.

TeaAndStrumpets · 12/12/2024 13:37

Thanks @jay55 I suspect you are right.

OP posts:
Mumto42005 · 14/12/2024 19:10

I’m pleased that your brother is happy in his choice and has no pain @TeaAndStrumpets. Happy and without pain is all you can wish for at this moment in time. As PP said, make sure you look after yourself too, and spend time talking with him as much as you can. Sending love to you all ❤️

TeaAndStrumpets · 14/12/2024 20:01

@Mumto42005 Sadly things are going downhill quite quickly so he hasn't been allowed home. He is pain-free and sleepy so we hope it will be a peaceful passing. Thanks for your kind words.

OP posts:
TheSpottedZebra · 14/12/2024 20:46

Oh, @TeaAndStrumpets I'm really sorry to hear that.
I wish him a pain-free and peaceful passing, even if he can't be at home as he wished.

Wishing you all well.

TeaAndStrumpets · 14/12/2024 21:04

@TheSpottedZebra Thank you. To think 6 weeks ago he was cycling to the shops. It has been shockingly fast. Awful illness.

OP posts:
TheSpottedZebra · 14/12/2024 21:14

You must be in terrible shock.
Hope you have good people around you, taking care of you?

TeaAndStrumpets · 14/12/2024 22:59

@TheSpottedZebra The remaining three siblings are supporting each other so we are making a good team I think. Our family have lived in the house since 1952 so it will be very odd to close that chapter and move on. DB may have not been at all houseproud (!) but he was happy there so it is a relatively nice ending to a long life.

OP posts:
Mumto42005 · 15/12/2024 07:12

TeaAndStrumpets · 14/12/2024 20:01

@Mumto42005 Sadly things are going downhill quite quickly so he hasn't been allowed home. He is pain-free and sleepy so we hope it will be a peaceful passing. Thanks for your kind words.

Ah apologies @TeaAndStrumpets, I think I misunderstood your post and thought he was now home. As per others, I too wish him and peaceful and pain free passing when it comes.

TeaAndStrumpets · 15/12/2024 08:10

No worries @Mumto42005 he would have been going home and the hospital bed has already been delivered but he is suddenly having breathing difficulties. Now he has been transferred to a nursing home for 24 hour care. Quite a relief actually, I know he preferred to go home but he will get more suitable care now. Thanks for thinking of us.

OP posts:
MyOtherProfile · 15/12/2024 08:21

So sorry for you and your siblings. Your dear brother is so fortunate to have you all.

TeaAndStrumpets · 15/12/2024 13:35

@MyOtherProfile thank you for your kind thoughts.

OP posts:
jay55 · 15/12/2024 20:32

I'm relieved for you that he's having proper care and isn't at home.
It is shocking how quickly things can change.

TeaAndStrumpets · 15/12/2024 21:47

@jay55 Thank you, it is a great relief. The speed has surprised me, but I suppose it must have been growing and spreading for a while.

OP posts:
Mumto42005 · 23/12/2024 20:18

Just wanted to pop by and wish you a lovely last Christmas with your brother @TeaAndStrumpetsas I’ve been thinking about you whilst getting ready for Christmas with my children.

I hope that he is still pain free, happy and you are able to spend some time with him this last Christmas together making memories and showing the love you have for each other ❤️

TeaAndStrumpets · 23/12/2024 20:53

Mumto42005 · 23/12/2024 20:18

Just wanted to pop by and wish you a lovely last Christmas with your brother @TeaAndStrumpetsas I’ve been thinking about you whilst getting ready for Christmas with my children.

I hope that he is still pain free, happy and you are able to spend some time with him this last Christmas together making memories and showing the love you have for each other ❤️

Thank you so much! He is settled in a nursing home and we have all been visiting. We've had some nice chats, but he is exhausted. This last week he has pretty well stopped eating and is sleeping all the time. He has started to need pain killers. He isn't really aware of his surroundings and doesn't wake up now when we go.

I think he's on a steady decline and expect he will just drift off one day soon. We are obviously on stand by in case things suddenly change, but have no idea how long this stage will last.

I am hoping and praying for a peaceful end.

I really appreciate you checking in, there are some very kind souls on here.

OP posts:
TeaAndStrumpets · 26/12/2024 10:42

Thanks for the support on this thread. DB died very peacefully on Christmas Eve. Family had been popping in and out all day but he passed away in between visits. He had been deeply unconscious and very rattly. Now at rest.

It has been a sad year for us, losing two siblings in nine months. However I know we have had merely a glimpse of the heartbreak countless other families are experiencing in private. Love to all of them and all of you.

OP posts:
MyOtherProfile · 26/12/2024 11:55

Oh bless you @TeaAndStrumpets what a tough time for you and your family.

TeaAndStrumpets · 26/12/2024 11:57

Thanks @MyOtherProfile hopefully better next year!

OP posts: