My best friend's 7month old died this week

[galaxy]

and I feel so sad. The poor little love was diagnosed with an enlarged heart 2 months before he was born and it was touch and go as to whether he's survive the birth.

He was in special care at St Thomas's for 2 weeks then allowed home. He was doing really well and then ten days ago, she took him to the GP as he was unwell and they said nothing was wrong. She took him again a couple of days later and they said the sameme. On Thursday, she took him into hospital and he didn't survive the emergency operation.

We met in hospital when our dd's were born and I feel so very sad for her.

PLease say a prayer for her and her family xx

Puts many things into perspective. Thinking of your friend and her family, and also you xxxx

Oh the poor love, poor little mite.
Very sorry to hear this galaxy.

. How awful.

How terribly sad. My thoughts and prayers are with you and the family.

and ((((((HUGS))))))) to the poor family.

so, so sorry. I can't even imagine her heartache.

Poor soul. Prayer said,

Did you see the light a candle website I posted on the London threads? It might help a little:

www.gratefulness.org/candles/enter.cfm

Oh how awful and tragic.

Sending my thoughts to the little angel and all the family

Galaxy, I'm so sorry to hear this.
Nearly nine years ago my best friend's first son was born with a rare condition affecting his heart and liver and he died in hospital aged just five months. A lot of people have forgotten him over the years.
I know you won't ever forget J's short life and that will be a comfort to your friend forever. It really will make a huge difference after the flowers and cards are put away etc.
Thinking of everyone who loved him. XXX

Galaxy,

Just seen this thread and I am so sorry for your friend, and for you as I can tell it's really affected you too.

my prayers are with your friend and her familyxxxxxxxxxxxx lots of love beagx

so galaxy for your friends loss,my thoughts are with her.x
Message for marina;sorry to be a pain,just wanted to ask you what was the condition your friends little baby had that affected his heart and liver?Was it detected before he was born?did your friend know/warned about it before?My first born son was stillborn at 33wks with a rare condition that affected his liver and heart,so was just curious...many thanks.x.x

xxx

(off topic) Shelly, it was Alagille Syndrome. It turned out to be a spontaneous genetic mutation so they had no idea beforehand and it was picked up after birth. He was badly affected - it is not always fatal.
You can now be screened for it apparently but back then you couldn't be.
Was this what your little boy had Shelly?

no,it wasn't a syndrome,it was a liver malformation-he had developed an additional vessel that went from the liver straight back to the heart,meaning that he was pumping blood straight back to the heart without it being filtered through capalliries,so it eventually caused his heart to fail in the end.Like your friend it is a totally rare thing that we've been told will never happen again,but it doesn't make it any easier to deal with I just saw the words 'heart','liver','condition',and wondered if it was something similar.It doesn't matter how our babies become angels,it hurts (sorry for changing the subject on this thread.x)

Thank you for all your lovely messages. I am going to call her tomorrow and find out about the funeral. I'll print this off and give it to her at a time in the future when I feel she needs it.

galaxy xx

A printed thread with kind messages is a huge comfort in a treasure box. All the lovely messages I got for Tom are there safe and sound.
Thinking of you all, Galaxy XXX

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Galaxy, I am so very sorry for the your friends little baby boy. It is very hard to read a tragic story like this, and I cannot bring myself to think about what they are going through now, it is just too raw and too painful.
I'm sure your friend has many happy memories of her little boy, but I also know that it is so inadequate and unfair.
I hope your friend is getting lots of support and help.
She will certainly be in my thoughts and prayers.
Much Love to you all
XxX Joy

Thank you all. The funeral is on Friday afternoon and I am telling my boss I will be taking the afternoon off whether she likes it or not.

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