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Bereavement

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We had to say goodbye to our baby and my heart is broken (TfMR spina bifida)

100 replies

AlexaPlayWhiteNoise · 17/11/2020 10:01

It was such an awful week. Anomaly scan on Monday, worst case scenario confirmed on Wednesday. Incredibly poorly baby and comments like "incompatible with life" and "unlikely to survive" and that was with major operations and invasive procedures.

So we chose to let him go, we didn't want him to suffer. And when I got to the hospital my cervix was already open, so they thought we would have lost him naturally anyway very soon. And he was born, and he was so strong, he lived for an hour and a half at 21 weeks and four days gestation. He was a miracle. And we heard his heart beat thudding away. And then it slowed, and he passed. And I can't bear my grief and sadness.

I'm on day 3, so post birth hormone crash as well as the loss of him. But it's making me want to throw myself off something high.

I'm being a shit Mum to my eldest boy, who is almost four, and doesn't understand what's going on. I couldn't even grow his little brother properly without causing catastrophic damage.

We're going to see him this afternoon, to say goodbye properly, and wrap him up and tell him how much we love him and how desperately we wanted him. It all feels like a bad dream.

OP posts:
BigFatLiar · 17/11/2020 10:02

So so sorryFlowers

formerbabe · 17/11/2020 10:03

I'm so sorry Flowers. I hope you have a good support network around you

TheDogsMother · 17/11/2020 10:06

This is so incredibly sad. How completely heart breaking for you but please don't say you are being a shit Mum and please don't blame yourself for losing him. Life is utterly shit sometimes and this has happened to you. Please have a virtual hug from me and Flowers. Thinking of you while you spend some time with your beautiful baby.

Svelteinmydreams · 17/11/2020 10:07

Aw OP, I am so so sorry for what you are going through. And it’s all so raw for you now.

You are not a shit mum, and please don’t blame yourself. Your phrase ‘not grow his little brother...catastrophic damage ‘ just breaks my heart. Please don’t think this.
Can you talk this through with someone in rl? Or the Samaritans?
💐for you and your family .

scoobiedoobiedoo · 17/11/2020 10:07

I am so sorry for your loss.

PatchworkElmer · 17/11/2020 10:09

I’m so sorry OP Flowers

cringyminge · 17/11/2020 10:09

This reply has been withdrawn

This has been withdrawn by MNHQ.

olympicsrock · 17/11/2020 10:10

You are not a shit mum . You are a wonderful mother going through the most pain a mother can bear through NO FAULT of yours. This is be one of the saddest days of your life. No wonder you cannot function normally. So sorry and sending you all my love.

flapjackfairy · 17/11/2020 10:13

Oh how terribly sad. I am so sorry for your loss. There are no words but many on here will shed a tear for your lovely boy and say a prayer for you all.
Sending love xx

MarshaBradyo · 17/11/2020 10:15

I’m so sorry, so hard Flowers

Closingtime94 · 17/11/2020 10:15

Please do not think you're a shit mum because you're not, these kind of problems can happen to any babies that's why they do the scan - it's just chance and I'm so very sorry this happened to you Thanks you're incredibly brave, don't forget that. He's still your little boy, he just wasn't ready and he is now resting peacefully. He never knew pain and suffering, he spent his little life comfortable in his mummy's womb, happy and content. I know saying goodbye will be very difficult but I hope you find peace soon Thanks

SlipperTripper · 17/11/2020 10:19

OP I have been exactly where you are. We said goodbye to our daughter in September after a scan showed medical issues that were 'incompatible with life', there's absolutely no pain like it. I have my two Stepdaughters at home, but felt I parented them in a fog, and felt like the worst person in the world not being able to help them through their grief in the early stages. I understand 100% how you feel x

I'm not saying it gets any easier, but there are ways to work through every day. I might have done it all wrong, but I'm here, and the days are easier. If you'd like to talk, please do send me a message.

Go easy on yourself, you've been through the worst possible trauma xxxx

HollyBollyBooBoo · 17/11/2020 10:25

Oh Op, I'm in floods, I can't imagine how hard that must have been and how inconsolable you must feel.

So so sorry x

AlexaPlayWhiteNoise · 17/11/2020 10:52

I just want my baby back, safe and snug in my warm body. I've made him a little hat and I've slept with a blanket so he can be cremated in. So he knows my smell. And then the one he's wrapped in now I can keep. I just want him back.

OP posts:
Worldwide2 · 17/11/2020 10:52

Oh I am so so sorry you are going through this. This is awful heartbreak. I can't even begin to imagine what you are going through. Sending you hugs 💙 for you and your precious boy xx

AlexaPlayWhiteNoise · 17/11/2020 11:06

Thank you everyone who has responded. It really does bring some comfort. I feel like I'm putting so much on my close friends and I don't want to upset them or make them uncomfortable. But it feels like I'm drowning.

Slipper I'm so so sorry for your loss. It is the worst pain.

I do have a really amazing support system. My husband has been amazing, and my parents. They are grieving too, but it feels different from mine. I felt him move and kick. He knew my heartbeat and warmth. He was my secret until I started to show. He is so beautiful, and perfect. A tiny perfect angel.

OP posts:
WitchesBritchesPumpkinPants · 17/11/2020 11:10

(((HUG)))

Of course you just want him back, safe inside you. 💕

You're not a shit Mum, you've been a very brave Mum. You did what you thought was best for baby DS. It was the hardest thing for you, but you did it because you thought it was the best for him.

This makes me feel so upset I couldn't even grow his little brother properly without causing catastrophic damage

You mustn't blame yourself. Sadly, things like this happen, it's a sad part of life, not something you can control!! Years ago you'd have likely list him 'naturally' & never known why. We are living in a time where we have come to expect medicine to fix everything. Our expectations are unreasonable.

It's an even more dreadful time to be going through this.

You're not being a shit Mum to DS1 either, you're going through hell and doing your best. Perfection isn't required. Just cuddle him loads & he'll be fine.

I'll be thinking of you today, lots of us will, & sending loads of strength & love xx

CaraDuneRedux · 17/11/2020 11:18

Flowers OP, I can't even begin to imagine the grief you're feeling.

But I do know you're not a shit mum. You are a lovely mum.

Queenofthemadouse · 17/11/2020 11:22

So sorry for your loss @AlexaPlayWhiteNoise. Nothing can take away your hurt and pain but please please tell yourself that you are not a shit mum. You are a wonderful mum to your DS, you're just grieving right now. Allow yourself to feel the hurt but also try and get some comfort in the small things from your DS. He loves you so much and he'll be really sad that you're hurting x

endofthelinefinally · 17/11/2020 11:26

I am so sorry for your loss.
This isn't your fault.
Flowers

Sprig1 · 17/11/2020 11:30

So sorry to hear this. It must be unbearable for you. I am wishing you the strength to carry on and hope for happier times in the future.

ChaosTrulyReigns · 17/11/2020 11:32

I am so so sorry for your loss.

Your precious blankets will wrap each of you with love and help to comfort.

Thanks
MyGhastIsFlabbered · 17/11/2020 11:36

Oh gosh that's so heartbreaking. Please be kind to yourself and don't blame yourself for this, or think you're a shit mum.

EmBeEmBe · 17/11/2020 11:42

Sending you love OP.

AlexaShutUp · 17/11/2020 11:43

Oh I'm so sorry, OP. Flowers That's heartbreaking.

You made the kindest choice for your little baby, with his needs in mind. Your older son might not fully understand what's going on right now, but maybe that's a good thing as he will not share your pain in the same way. You're not a shit mum at all. I'm glad that you have a loving and supportive family around you.