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I lost my dad to throat cancer *graphic*

33 replies

GermfreeAdolescence · 30/07/2019 20:12

Hello everyone,

I keep writing, deleting and re writing this. My dad was first diagnosed with throat and lung cancer back in 2014, they managed to remove the cancer at the cost of having a laryngectomy.
I lost my dad to throat cancer back in April. He was given 6 weeks to live last december.

I'm finding it harder and harder to live with myself as the last few month's of his suffering, he was in absolute agony, not even his morphine driver could suffice. We managed to get him a bed at trinity hospice, and I cannot thank them enough for care that he received. But his peg got infected and was transferred back to hospital where he died a week later. He didn't want to die at hospital as they were pretty shit at managing his pain. The last thing he wrote on his white board was "I'm in pain and I want to die". I still have his whiteboard and it hasn't been rubbed out.
I still remember his frail body crunched over, pulling at his face because of the amount of pain he was in. I still remember the face of desperation every time my mum drawn up his next dose of morphine. I still remember the hacking cough and the amount of mucous he produced.

Me and my mum tried our best to look after him at home. But my parent's flat is full of black mould, and unfortunately they didn't have hot water or central heating during the time we had him home.
My parent's are skint, they only had a shared esa claim. My poor dad then became incontinent. My mum couldn't afford incontinence products to make him comfortable. He had way too much pride, he just wanted to lay in fucking newspaper. No gas, no central heating and just laying in newspaper. They didn't even have to ask me, I used my credit card to buy him all of the incontinent care products he needed.

He was so frail, a towering 6 foot 2 and weighing only 46kg when he died. He couldn't talk, eat, speak or swallow for a good 6 months before he died. He never complained.

I'm only a 22 year old, single mother to a 5 year old. My mum didn't have the capacity to arrange his funeral or the death certificates. I did it all myself without any support.

I'm probably just listing things right now, but I feel so empty and alone. I'm struggling to show up to my shifts at work. And I've been dreamimg about my dad EVERY night for the past 2 weeks.

I hope this makes sense as it was very hard for me to type out.

OP posts:
MmeD · 30/07/2019 20:22

I'm so sorry, you've been through absolute hell.

I haven't anything wise advice to offer, just hugs and love across the Internet.

Rumours0fAHurricane · 30/07/2019 20:23

This is very tough for you and I'm sorry to read it. I lost both my parents this year within a couple of months of each other so I know a little of how you might be feeling right now

However that doesn't mean I have the right words! Can you pop the board away for now? Just in a cupboard. That's a small practical thing you can do.

Other than that, it's a case of day by day getting through this hideous period. I wish I could say more to help but all I can do is offer you my condolences and say you sound strong and brave and there's more people in this shitty club than you imagine

9Greenbottles · 30/07/2019 20:24

I'm so very sorry for your loss. It was a terrible way for anyone to die, and so very difficult for you to have to see and deal with.

I wonder if holding onto the whiteboard with his last words is making you torture yourself more? I can't imagine your Dad would want you to remember him with those words or the worst parts of the last 5 years.

It's a very difficult time to get through Flowers

Rumours0fAHurricane · 30/07/2019 20:24

Another practical thing might be to ask to be signed off by your doctor. I didn't require this as I work for myself but I'm sure your dr would be only too happy to give you a few weeks breathing space

Knitwit99 · 30/07/2019 20:25

I'm so sorry, your poor dad. He didn't deserve that. Neither did you or your mum. And now you have to relive it over and over.
Tell us about your dad when he was well, what was his job, what did he like to do?

Mumof1andacat · 30/07/2019 20:28

Are u in the UK?

GwenCooper81 · 30/07/2019 20:28

You poor poor darling. I'm in tears reading your post. Please see your doctor and get a sick note. Put the whiteboard away for now. Be gentle with yourself. So much love and healing. Xxxx

Mumof1andacat · 30/07/2019 20:29

Sorry posted too soon, only because there is support for patients in the UK like district nurses etc via the nhs

WinnieTheCat · 30/07/2019 20:37

Didn't want to read and run. Just wanted to say I'm really sorry, life is cruel and can be horrible, the one thing you can do is take comfort in knowing he's no longer suffering Thanks

Tillymintsmama · 30/07/2019 20:41

This is terrible, I am so sorry for your loss. You'll still be in shock, maybe post traumatic stress. It's obviously too late now, but did your dad not have any support from a palliative care team?

Could you contact Macmillan? They support families after cancer, it sounds like you could do with some support.

www.macmillan.org.uk/?gclid=CjwKCAjw1f_pBRAEEiwApp0JKFol1bexSGFZrlqevP-SfMoa2591SYnsxP3diBEttJo6zi0hd4OBNhoCEQcQAvD_BwE&gclsrc=aw.ds

User24689 · 30/07/2019 20:49

Gosh I'm so sorry love. I don't know what to say. You sound like you did everything you could to make things better for him and I'm sure he would have known that. I'm so sorry for the hell you've been through. I also suggest seeing if you can get signed off work so you can take some time out to grieve x

Fairylea · 30/07/2019 20:50

I am so sorry to read your post. My mum died of bowel cancer in March and some of her last moments were similar to your dads. I also nursed my Gran at home through bowel cancer in 2003 and that was similar again. Seeing such things first hand can really leave you with PTSD. I know I had it dreadfully after losing my Gran - by the time my mum became terminal I knew what was coming.

You are so young to be going through this (I’m nearly twice your age) and I think all you can do is be kind to yourself. Get rid of the whiteboard. Looking at it is like picking a scab. You can’t change anything that’s happened and your Dad is at peace now, he’s not in pain any more - regardless of whether you believe in an after life or not.

Try to focus on your Dad as he was, the good memories you have of him. If the more painful ones rise through push them down by thinking of a happier one. Doing that is what’s got me through very painful times with my losses.

Remember that your dad wouldn’t want you to be in pain over him, he would want you to live your life to its full. You have so much ahead of you, yours is just beginning.

Flowers
ReggaetonLente · 30/07/2019 20:51

Oh love I'm so sorry.

I lost my dad young too to cancer and it wasnt a dignified end. I recognise lots of what you are saying.

Could your GP help arrange some counselling?

kalinkafoxtrot45 · 30/07/2019 20:52

I’m so sorry, love. You did all you could for your dear dad. I agree with the poster above, see if you can get signed off. You need time to grieve and to recover from this terrible time.

flowerycurtain · 30/07/2019 20:53

Oh my goodness, you have been through so much. I'm so sorry for your loss.

A close relative of mine has throat cancer too - he's just finished chemo and it's been tough. I can't even begin to imagine the rest of what you went through with the other pressures your parents were under.

Please go and see the doctor. Surely you can get signed off. Can you plug into a support network? Friends? Extended family? Church? Macmillan nurse?

foreverhanging · 30/07/2019 20:53

You poor poor soul. I am so sorry for your loss and for the hardships and distress you have had. Thanks

PeonyTruffle · 30/07/2019 20:55

I wish I could give you a cuddle, I'm so sorry for everything you've been through x

bumblenbean · 30/07/2019 21:00

I’m so sorry. I wish I had some useful words of advice but I just wanted to say how brave you sound. It must be devastating to watch your dad fade like that and see the trauma he had to endure. But as others say, his pain is over now although yours continues.

Can you talk to your mum about how you’re feeling and try to help each other just by sharing your thoughts? What about bereavement counselling- might be worth asking your GP about that. I’m sure they will also have other resources that might be able to help.

Please be kind to yourself. You did all you could for your dad, you were there for him and you didn’t shy away from the most traumatic of circumstances. Your dad knew you were there. Now you need to focus on healing yourself Flowers

LuckyLou7 · 30/07/2019 21:04

OP my heart goes out to you. Condolences on the loss of your dad. It's a cliche but he is at peace now. I'm sure he would want you to focus on the good memories you have of him before he became unwell. Can you try to think of happier times with him, rather than his distressing illness? Counselling can help. Please see your GP. Sending you love and strength.

MrsMozartMkII · 30/07/2019 21:08

I'm so sorry lass.

It sounds like you've been so strong for so long and now you need to grieve and to have some support. Can you see your GP and get some help?

madmumofteens · 30/07/2019 21:09

I am so very sorry OP so saddened to hear what you have all had to endure!! I can't understand how can this be happening in 2019!! Strength and love please take good care of yourself 💐

ShinyShinyFace · 30/07/2019 21:10

You poor love, what an awful time you've had. Your poor dad.

I lost both parents to cancer, one when I was 16 and the other last year. It's unbelievably unfair that people live their lives being good, having families, working hard, and are subject to such awful pain and indignity in their last days.

I bet your dad felt really loved though. And in the end, that's all there is and it means everything.

Look after yourself, you've been through a lot. Get signed off, as others have said. Look at photos of your dad in his prime and try and remember him that way with happiness and love for the man that he was.

Notmydalek · 30/07/2019 21:11

I could have written so much of your post Germfree. My DM died of throat cancer and the 10 weeks leading up to her death as well as her death was something I only stopped getting flashbacks of when I went to a counsellor who specialises in PSTD. I feel your torment having witnessed so much pain and distress. It’s such early days for you and you will feel so raw. If you are able to put the whiteboard away I think that would be helpful right now as seeing it is to torture yourself afresh each time you read it and I don’t think your DF would want that for you.

I think how your feeling is to be expected but if your feelings of distress are increasing i would really try to get some support. You might have to wait so getting your name on a waiting list is a good idea unless you can fund it yourself. I didn’t realise I had PTSD until years later because it wasn’t really known about that much when my DM died (2004). But I had frequent flashbacks of various dreadful times for many years and I’d hate to think of anyone else suffering that with no help to process it.

I have no words that can make what you’ve been through and what your going through any easier. I wish I could but time does help you carry grief around without totally consuming you as it is doing right now. It’s a terrible thing you’ve been through so be gentle with yourself and get help if you don’t feel any less traumatised within another 3-6 months or if you start to feel increasingly worse.

The counselling I received (I was told by my GP to self-refer through a service called IAPT) really helped and I no longer have flashbacks and am able to look at pictures of my DM which I hadn’t been able to do (the therapy was called EMDR) and I wish I’d been able to get this help years ago. I’m so sorry for your loss. 💐 and a great big hug.

GermfreeAdolescence · 30/07/2019 21:17

Thank you so much for the kind comments, I really wasn't expecting that many and I'm sorry for the late reply!

I can't lean on my mum too hard as she suffers with severe mental health issues. She seems to be coping with it well.

I'm so racked up with guilt that won't go away. I have to force myself to eat because I feel so unworthy as he couldn't even swallow his nourishment drinks.

I'm based in england. We currently don't have support from any palliative care team. But I will get in touch with macmillan tomorrow, for my daughters sake.

OP posts:
GermfreeAdolescence · 30/07/2019 21:20

I'm worried about how I will make ends meet if I was to get another sick note, but I guess I need to put myself first. It's hard trying to nail down a shift in a pub when you constantly feel on edge and fighting back tears.

My dad was a labourer and road sweeper for a while, up until my mum became unwell.

OP posts:
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