SUDC - Sudden Unexpected Death in Childhood

[Alifoxy]

With the recent plight of Maude and her family I was interest if anyone has ever heard of the above and come across the organisation which supports this. I am proactively trying to create an awareness of this issue in the UK, and would like to hear from people who have or havent heard of this. I will be happy to share what I am hoping to achieve and fund raising I am currently doing in relation to this.

[ggglimpopo]

Yes, Maude died of SUDC - she was over the age where it is classified as SIDS, and there were no contributing factors. Her heart just stopped.

Please contact me if you so wish.

LL has my email details.

[Alifoxy]

LL- I hope you pick this up...could you supply GGG details...pls read thread...she has pointed me in your direction. my email is [email protected]

Thx

[Alifoxy]

I wanted to say a big thank you for all your responses. It has made me realise how little is known about SUDC and many people believe SIDS disappears at the age of 12 months.

I am in contact with FSID in relation to the above and I really do hope to make a difference!

Thank you for all the support in relation to Maude...my thoughts are with her family and the families of all the angels who tragically succumb to SIDS

Ali

cooper-eason.memory-of.com

www.jameshudson.ca

[Alifoxy]

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[winniepoo]

There was a three year old a few months ago in our area who died in her sleep no apparent reason, I also know of a couple of adults from my work place - not connected and one widely publicised and have heard of another but the pathologists could not agree and I am unsure of the final outcome.

[Alifoxy]

Thanks for all those who walked the Mile for Maude.

In memory of all the children who have succumb to SUDC....my thoughts are with you all

[nappyaddict]

it happened to my brother 3 weeks after his 21st birthday. we are part of

CRY

ashley jolly trust

[Alifoxy]

www.justgiving.com/davidjclayton

[noddyholder]

CRY is a cardiac site for types of cardiomyopathy which cause sudden collapse and often death.I have this condition but the difference is it is diagnosed and atm is controlled with medication.Misdees dh has another form which is caused by a virus and he has just had a transplant which is going brilliantly.

[Alifoxy]

I am sorry to hear of that.

SUDC is not related to heart problems...there is no cause found as with cot deatch

Best regards

[hairycaterpillar]

A friend of ours wee boy (born same day as my DS1) died at 15mths...no cause found.

Another friend lost her 3yr old with no definate cause found.

Losing a child is devastating whatever the cause. If awareness can be raised and money raised for research into SUDC surely thats a good thing. Reading threads like this reminds me just how fortunate I am to have healthy happy children and I should treasure every moment...even on days when they drive me up the wall.

[Alifoxy]

Hairycaterpillar...it breaks my heart everyday to hear of another child to succumb to this. FSID have informed me they have someone researching into this in the UK but nothing will be available for a couple of years.

www.sudc.com - support this worldwide. If your friends are not aware of this.

I fortunately like you have my child...but there is not a day that goes by that i dont think and pray for those who are not so fortunate.

Thank you for contacting my thread

[hairycaterpillar]

meant to add I havent heard of any organisations which offer support specifically for SUDC.

[Alifoxy]

www.sudc.org