My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

Oh CupofTea, I am so very sorry to hear the latest update. Huge hugs to you all. In my thoughts and prayers XXXX

CupOfTea so sorry to hear the news. I really hope that she continues to develop and do well. Have also PMd you.
(((hugs)))

I'll be thinking of you Cupoftea, and you're beautiful Beatrice who knows your love and warmth surrounds her. I'm sending you strength on this rollercoaster ride. Huge love to you all xxx

Sending thoughts to your family. You are in my thoughts as are your 3 beautiful girls x

Whatever happens now (and who knows, drs are usually right but children can be miracles- well they all are aen't they) I wish you strength and I am sure your beautiful baby girl is feeling so ery loved and safe with you as her mummy. That's a great gift you;ve given her. Take care X

I hope you and your family get all of the support you need at this very sad time. I'm so very sorry and truly feel for you.

I am so sorry. Thinking of you all and especially baby Beatrice xxxx

Thinking of you and little Bea and the rest if your family. Enjoy your time with her.

Oh love, I'll be praying for you all, you weren't daft to have hope and it's still not daft to have hope.

CupofTea

I'm so sorry, I will be praying for you (((((Hugs)))))

I'm thinking of you x x x x

cupoftea hope you and your family get to enjoy your time at home with Beatrice. Sending love and prayers for you all xxx

You were my first thought this morning when I woke up, CupofTea, and I wanted to say if there is anything you could use an extra pair of hands for, and I am near enough to you to be able to drive there and back in one day, I will come.

i'm so sorry cupoftea thinking of you all. A big hug and kiss to little Beatrice. xxx

I'm so terribly sorry cupoftea. I hope that the time you have with her is magical and that you can pack a lifetime of love into whatever time you have left with her.

Just seen your update. I am so very sorry.

You weren't daft to have hope: we were right there with you.
And still are
It's totally natural, you want the best for your beautiful daughter.

Thinking of you all.

Thinking of you and your family xxxxxxxxx

we are so sorry sweetheart loads of love to you all xxxxxxx

Oh no :( I am so sorry to hear this. Enjoy ever precious moment you have.

X

Thinking of you, your family and baby Beatrice.

It seems to just be a yo yo of ups and downs at the moment for her. I wish you a beautiful day with her today when you take Beatrice home for the first time and enjoy.

Thinking of you all.

I've only just seen this thread, my daughter has hydranencephaly she had a stroke and her brain died and was reabsorbed through her blood stream, she only has a brain stem intact. We brought her home five years ago to make memories and she is still with us. She has profound disabilities but she is the most wonderful little girl, her condition is described as being "incompatible with life" but she certainly doesn't see it that way :) Please PM me if you'd like to talk, I remember how dark those days felt, thinking of you x

I am so sorry.

Have just read the whole thread (with some tears too). Congratulations on the birth of your beautiful daughter. I'm so sorry it's been such a rollercoaster for you.

There have been some lovely comments and poems on the thread, and I hope they have been of some support to you.

Thinking of you all, especially little Beatrice. Never give up hoping. xx

Dear cupoftea.
Being postive is the right thing to be.
Whatever life holds for you and you beautiful girl.
Take her home and take each day as it comes for now.
Dont be scared.
You will be able to care for her, you will be able to meet whatever challenges come your way.
Because you are her mum.

I wish there was more I could do or say x

cup another who has followed your thread, but, couldn't find the words.

Want to wish you all love, strength and peace as you go on this rollercoaster journey with your precious little bundle.
Beatrice is a beautiful baby and will be taking strength from the love that surrounds her. Have a lovely weekend together with all your girls and DH, enjoy bringing your precious baby home and may you all have many many happy times together.

So sorry the doctors have given you little hope, but, as others have said babies are little miracles and some do defy the odds, I pray Beatrice will be one of them.

But, for now

WELCOME HOME BABY BEATRICE

I hope too that you are surrounded by people to help you carry out the day to day stuff like cooking/cleaning. Leaving you time to sit back and enjoy your little family.

XXX