doctor appt friday for DS (sicky, off-balance, bad ears)

[EdgarAleNPie]

right - he's had an anti-biotic ear spray for two weeks. he has been particularly sick the past week so its doing bugger all

my plan for friday is to ask

-for heavy oral anti-bs to realy kick the infection (if it is bacterial, as if its in the inner ear an exterior spray won't touch it).
-for a referral to a paediatrician (which i can always cancel if he gets better before it coes through)

• anti-emetics/ anti nausea pills? he's been keeping very little food down. quite thin.

how does that sound for a plan?

he already saw audiology, they said 'yes, there's fluid in his ear.' is there any point in seeing them again?

He's now been down with this since November. Gone from running and kicking a ball to staggering around the house and falling over. can't manage more than a few yards without support.

ok, any thoughts?

Sending you all my best wishes. I am so sorry you've had such scary news.

Best wishes and hugs to you and your family.
How is your little boy?

Edgar I'm so sorry. Best wishes to you, and to your boy for a speedy recovery.

Thinking of you all, Edgar x

And me too xx

So sorry to read this. Lots of love and luck to you and your little boy xx

Oh Edgar I've only just seen this thread.

You are in my thoughts and prayers.

My DS1 had a tumour in his mastoid bone - his symptoms were very similar to your DS's.

Nothing to say except I'm thinking of you.

It's rotten.

Thinking of you and your little boy. xo

Wishing you all the best, so sorry to hear about this. x.

Oh Edgar my love So sorry.

Thinking of you all

Thinking of you all, xx

Thinking of you all you have all my best xxx

So sorry Edgar , my thoughts are with you and your family.

How horrible for you :(

Thinking of you all.

Thinking of you

You poor poor thing.

I work at st George's, when not on maternity leave. The paediatric neurologists and neurosurgeons there are excellent. He is in good hands.

There are a couple of nice coffee shops in the hospital and an m&s food so you should not go hungry.

There is a big primark in tooting so you can stock up on cheap clothes if needed.

I am going to pm you my contact details. If you need anything please ask.

So sorry to hear all this, EdgarAleNPie, a horrible shock.
St G's are very good - are you on a specialist Neuro ward?

Portable DVD player is good. Also little toys like a torch to shine at the ceiling - when DS was immobile fo a long time we played games with a helium balloon and 'tagging' it by shining the torch on it. Make puppets and fake feet from the papier mache wee bottles.

Parents are often a really good support to each other on children's wards.

Get people to bring you plates of tasty food / healthy snacks / salads / deli treats - it helps.
The hospital shop may sell ear plugs to help you sleep a bit better at night.

No parent wnats to go through what you're going through.

There was a MN-er a few years ago who had a child with a brain tumour - prognosis wasn't immediately that good, but I hear that all is now v well indeed.

Thinking of you. Best wishes and lots of cuddles for your poorly boy x

Thinking of your family x

From personal experience my advice for hospital stays:

Take lots of reading material.
Take flannel/toothbrush/tootbrush for yourself/partner.
Nintendo DS type games.
Playing cards etc
Pyjamas/tracksuit for yourself.

Reading materials/toys/favourite toys for child.
Paper, pens and pencils (for older child)

Spare change for public phones.
Phone charger.

Packed lunch if possible.

So sorry to hear there is something wrong with your little boy. I hope treatment goes well.

Oh yes, Blu is absolutley spot on - a portable DVD player

hi there,

I've just seen this thread. DS was in St Georges PICU when he was 4 months old. They are very, very good there, and kind too. The general paed ward was not so good, then, but hopefully your DS will be on a specialist onc ward, which will be better.

It is tough and exhausting in hospital with a little one. Do have a good support network of family and friends? Now is the time to use it. Alternate with your DH or a close granny or similar if there is one and make sure you let yourself have a break sometimes. Talking to the other parents on the ward really helped me get through stuff too. Hugs. x

I'm so sorry to hear about your son Edgar.

My thoughts are with you.

Look after yourself as well please.

Would also add this, was given to me when DS2 was in hosp:

Eat as well as you can


Sleep as well as you can


Take time for yourself without feeling guilty


Get hugs when/from whoever you can


Help others but not over the top


Talk to friends


Communicate as well as you can in your marriage

:)

I'm so sorry.

Not much practical advice, but St Georges is an amazing place and the PICU staff are incredible. There's a big Primark for cheap pyjamas etc and the M&S coffees are nice. Try and get a colouring book or knitting kit to keep your hands busy.

I will be thinking of you all.