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Toddler 22 months not pointing or talking
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Newmomma2705 · 02/04/2020 09:32

Hi, my DD has just turned 22 months, she has been referred to a peadeatrician but due to long waiting lists and current corona I don't know how long the appointment will take to come through. We are very worried about her she is not pointing to communicate and cannot say any words only babble dada baba mama yaya ta but not in any context. She does have good eye contact, doesn't always respond to her name. She has no sensory issues at all, eats and sleeps well, doesnt react to loud sounds or changes of routine. She does enjoy her stacking blocks, but wouldn't say it was repetitive she stacks them and looks for approval from us and smiles and claps when finishes. (Yes she can clap) when I haven't been with her she smiles and claps when I come in the room. She doesn't really interact with children she basically completely ignores them (some adults as well) she goes to nursery and enjoys it she walks in and doesn't cry and the nursery teachers said they have no worries aboit eye contact just thay she doesn't play with her peers (although she will go up to them if they have food). She is playful loves being chased and loves peek a boo. does this sound like autism or a speech and language/ communication problem? Could she grow out of it or what can I do to help bring her development along? Her understanding is also a big concern as she understands no and some other things but very limited. If I asked her to get shoes, bring teddy she would have absolutely no idea but if I pass her shoes she will put them on and walk to the door. Thanks x

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AladdinMum · 02/04/2020 15:33

Nothing in your description sounds concerning except the no pointing and limited receptive language - everything else can be age appropriate. I agree that those two concerns are enough for her to be referred to a pediatrician so that they can have a closer look. Remember that autism is not a sensory disorder, or a 'poor eye contact' disorder, or a 'being shy' disorder - toddlers with autism can have excellent eye contact, have no sensory issues, use all sorts of learned gestures and be very socially motivated - there is no one thing that can confirm or rule out autism. If she does not point how does she request what she wants? (like something that is out of reach) and share experiences with you (like a plane in the sky)?

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Newmomma2705 · 02/04/2020 16:24

Thank you for your reply, if she wants something milk, juice, or so on she will bring me her cup/ bottle or If something is in her reach she will bring it me if she can see it but it's out of reach she will stand near and whinge whilst looking at it.. if it's to high she pulls on my clothes to be picked up so she could reach it herself. She does bring toys and things for me to play with her (her stackers/ mega blocks/ bubbles).. however sharing experiences such as planes in the sky or things outside she wouldn't be interested in showing me at all she would just probably look her self at them.

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Ted0301 · 06/04/2020 12:21

Hi, this sounds very much like my daughter, she has just turned 2 in March, and has only recently just started pointing, she doesn’t talk just babbles like your daughter. We seen a speech therapist and she’s referred her onto a paediatrician but like you say there is a long waiting list and now with everything else going on it will be a longer wait.
I personally think it is just a communication delay, and as with your daughter mine doesn’t role play either, unless we do it first then she copies but she doesn’t initiate it.
Sorry this isn’t really advise but just to let you know I’m in the same boat as you x

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Newmomma2705 · 06/04/2020 13:58

Thank you so much for your message it's nice to know I'm not alone, it's such a worry and not knowing if she will grow out of it yet and develop communication skills is worrying. Some times I feel like she's fine and others I question myself and it's really getting me down. I hope it's just a communication problem and she develops. The not pointing is really stressing me.

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Dad1907 · 03/01/2021 02:59

Hi @Newmomma2705, any update on her? As my son is just the same right now, so would love to get an update on how your daughter is doing now

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Newmomma2705 · 03/01/2021 08:14

Hi @dad1907 my girl is now 2 and a half. She still isn't talking and has been pointing to request since 23 months but not to share interest. She can say the odd word and babbles constantly she is under SALT who are teaching her PECS which she is picking up really quick. However she communicates her needs quite well brings things she wants or stomps and tantrums to get her own way. She has come on alot since this post but still hasn't been seen by professionals due to covid. She is now potty trained in the day, and absolutely loves children she gets so excited to see them & cuddles them. She is behind her peers in speech language and communication but I don't know if she will get a diagnosis. When I wrote this post I was so down and upset about it but she is progressing brilliantly x

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Dad1907 · 03/01/2021 09:50

Thanks for the update @Newmomma2705! Glad your little one is doing well! Hopeful!

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3boysmumma · 09/11/2021 09:00

Hi @Newmomma2705 and @Dad1907 can you update me on your little ones progress?
I am going through exactly the same with my DS who will be 22 months this week.
@Newmomma2705 reading your first post was almost like I had wrote it myself about my own little boy. He has also been referred by my health visitor but like you say will take a while. I am so worried and finding it so difficult to focus on anything else atm. X

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Newmomma2705 · 09/11/2021 10:01

Hi @3boysmumma my DD is now 3.5 And we still don't know if it's autism or not - however an update on her.. she had a hearing test at around 22 months that was inconclusive they told me she had bilateral glue ear but it was fine and would clear thid was just before covid hit. When she turned 2.5 she started holding things to her ear and turning her head to the Tele but nobody wpuld see her cos of covid. Just before she turned 3 they did a hearing test and she had bilateral glue ear again and said they don't know if it ever went or it's still there anyway long story short she got grommets privately when she was 3.1 years. She started speaking single words one week after. She is doing excellent now she is nearly 3.5 she can say HUNDREDS of single words and has just started linking 2. She loves children but struggles to interact. She has been diagnosed with a developmental language disorder with 2 speech therapists saying it's not autism & 2 constualt peadeatrician saying it is severe hearing problems causing speech and language problems . They have not ruled out autism completely but they are not reviewing her till next March. Her eye contact can still be fleeting but she communicates well. She is obviously far behind her peers but definately progressing faster than I originally thought. Please PUSH for a hearing test if you haven't already. Xx

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3boysmumma · 09/11/2021 14:16

@Newmomma2705 Thank you for your reply. Reading your message bought tears to my eyes, I'm so happy you DD is doing so well and speaking hundreds of words, what amazing progress and all through these difficult times with covid too, I'm sure that has not helped our LOs with being in lockdown for so long. It is really reassuring that the speach therapists are saying its not autism too. Funny you mentioned about a hearing test, we had one a few months back which came back inconclusive so we have booked a private one which is this week. My DS doesn't always turn when I call him but hears music and loves songs especially at play group and nursery, he is always full of smiles and giggles, loves playing chase with his 4 yr old brother and trys to give other children toys/teddy's etc, he has brilliant eye contact and uses it quite well when trying to communicate. He doesn't point at things he wants or wave but takes my hand and leads me then raises his arms to be picked up. He doesn't have any sensory issues either but has in the last couple of weeks started hitting his head (not hard) but enough to make me more concerned, he doesn't have a good comprehension but knows his feet and understands "shoes on, sit up, no, get down" but like your DD wouldn't be able to go get a toy etc if I asked him. He's always such a happy little boy and very chilled out, loves his food and sleep. I am just so worried it is something very serious. Xx

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Dad1907 · 10/11/2021 00:21

Hi @3boysmumma, our DS is now 2.5 and seems like it was just slightly delayed development.. he suddenly just started pointing and totally took off with talking after he turned 2. We did spend a lot of time with him every single day reading, playing with him and not sure if that had an impact but it definitely made us feel less helpless and bonded us closer as a family after we had gotten really scared by a developmental paed (who turned out to be completely wrong in her diagnosis). I guess the cliche of kids having their own trajectories of growth is true and sometimes the little ones might just be late to things like pointing and talking.. Hope that helps!

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Dad1907 · 10/11/2021 00:43

@3boysmumma I just read the post about ur DS and reminds me a lot of our son to be honest…he didn’t point, liked his food, no sensory issues, could understand a few basic instructions but just didn’t speak a single word.. when our son was 20 months old, every single autism related symptom (apart from sensitivity and lining up toys) we googled seemed to be there and even a developmental paed evaluated and said he has a moderate to high risk of autism.. it just turned out however that he needed more time and he started pointing when he turned 2 and then just took off.. like ur DS he loved songs and rhymes and that’s how he started talking : completing the last word of each sentence of rhymes.. he only said mamma and Appa a couple of months post his first words and now speaks sentences and has just exploded.. so yeah sometimes kids just need that extra time.. lots of love to the little one and All the very best.

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3boysmumma · 14/11/2021 10:31

@Dad1907 wow what a turn around with your ds. I'm so pleased it was just delayed development and nothing more concerning. I'm feeling more hopeful. Thank you 🙏🏻

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r1911 · 20/03/2022 10:56

Hi everyone, how are your little ones all doing now? My son is almost 19 months and is not talking or gesturing and im really worried - i am going to contact the gp as he doesnt always respond to his name and he makes eye contact but not all the time - google has led me down a rabbit hole Sad any responses would be so helpful!

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r1911 · 23/03/2022 12:42

@Dad1907 @3boysmumma @Newmomma2705

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Dad1907 · 23/03/2022 13:17

@r1911

Hi everyone, how are your little ones all doing now? My son is almost 19 months and is not talking or gesturing and im really worried - i am going to contact the gp as he doesnt always respond to his name and he makes eye contact but not all the time - google has led me down a rabbit hole Sad any responses would be so helpful!

Hi @r1911 my DS is doing fine now like I mentioned in my post in november.. He was pretty much like ur son and not pointing and not talking and not always responding to his name but like I mentioned, he suddenly started pointing around 22 months or so and took off very fast (starting with rhymes and songs)... Sometimes kids just need more time and develop at their own pace.. It might also help to go to a speech therapist.. we did that around when he turned 2 or so for a few classes and that also helped I think , mainly to teach me and my wife how to keep pushing him on speech (start with nouns, move to verbs then adjectives etc.) ... Lots of love to the little one and all the best...
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r1911 · 23/03/2022 13:27

@Dad1907 thank you so much for responding. I know you had previously updated so thank you for taking the time to reply.

Did he have any other behaviours you worried about? My little one sometimes bangs the floor whilst crouching and can be hard to distract but at other times can be quite social when engaged for short bursts.

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Newmomma2705 · 23/03/2022 13:49

Hi @r1911my little girl is doing well now pretty much similar to my last update. She has developmental language disorder I think in the long run she will be assessed for.autism but she has lost alot of traits that nobody thinks she will get a diagnosis now. She also used to head bang the floor, she used to also bite her wrist but not done either for 2 years. She has changed alot now & I was so upset when she was younger but I now realise I didn't even know what autism was properly and now she's progressed so.much I'm not that bothered about a diagnosis. It is a worrying time and it ruined her toddler years for me but she's doing well. I suggest you request a hearing test. Xxx

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Dad1907 · 23/03/2022 14:25

@r1911

*@Dad1907* thank you so much for responding. I know you had previously updated so thank you for taking the time to reply.

Did he have any other behaviours you worried about? My little one sometimes bangs the floor whilst crouching and can be hard to distract but at other times can be quite social when engaged for short bursts.

The main thing was he didnt point (at all), very little response to his name, didnt talk, we also googled and got worried about repeating things like repeating actions like constantly opening and closing bottle caps etc. He also didnt acknowledge us/didnt have separation anxiety at all and despite lots of efforts didnt call us mama and appa/papa ... he gradually started doing all those things from 22 months onwards and by 28-29 months really started accelerating in speech/social interaction/more clingy with us etc.


on the physical side, he had no sensory issues, didnt line up toys, didnt bang the floor but did quite a bit of what we saw was flapping his hands that worried us as we googled that when we went down the google rabbithole as a sign of stimming (and that also turned out as a false alarm).. Hope that helps...All the best!
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r1911 · 23/03/2022 17:21

@Newmomma2705 thank you for responding and sharing. Its so lovely to read how well she is doing 💗

@Dad1907 thank you for responding, he sounds very similar to my son now so thats reassuring to read that he is also now doing so well. I really appreciate the detailed responses.

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