Pls help - filling in DD's DLA forms - what can your NT 4.5-5yr old do

[Piffle]

DD has Noonan Syndrome and is affected in lots of little ways and some huge (really terrible eyesight for one)
Now the eyesight is covered but I need to know how she needs more care than another of her age IYSWIM

So basically
toiletting, can your dc get up on loo, with or without a step on their own and wipe reasonably well?

dressing? how much on their own? Can they do buttons and zips, get things the right way round etc

walking, how far can your dc walk say for a mile into town and how long would it take them? Would they normally fall over much? complain of pain/tiredness after how long?
Do any of your dc's still use a pram?

height and weght if you wouldn't mind?

Sorry of this is dead cheeky btw

For starters
Really appreciate any info

thanks am desperate most of her friends are much younger or older!

ds's are 3.5 and 5.5 so not quite the same age but I'd say:
Walk a mile in town - yes, would take quite a long time (say 30 mins), they would never fall over. Haven't used a buggy for at least 6 months for ds2.
Dressing - ds2 (3.5) capable of dressing and mostly getting things the right way round. ds1 (5.5) can do zips for about the last 6 months. Can't do buttons I don't think.
Toiletting fine for both, wiping a bit hit and miss for both.

height and weight you'd be best off looking at the growth charts which should be in your child health record.

ahhh okay...
Right so dd is quite a bit behind then in these areas side which is what I suspected - it is gutting to write it down - I live in denial city. As she is such a clever, bright and funny little girl...
Damnit

Yes, it must be a horrible job, sorry.

I have a ds who will be 5 in October. He's standing here and measures 111 cm tall. He weighs roughly 3 stone (won't go on the scales as "too busy"). He can walk long distances but is lazy and will complain. I think it would take him 20/25 mins to do a mile if there was a sweet shop at the end or a bakers . He doesn't fall over walking very often. We don't use a buggy anymore. He can go to the toilet independently and wipe but again will ask me to help. Funnily enough if I'm not around he manages. He then will wash and dry his hands and can manage taps. He can get himself dressed each morning for Nursery. Is just about managing the 2 buttons on his polo shirt now. Shoes on the right feet consistently. Still needs food cut up and doesn't do knife and fork together - I think lazy again .

Think that's it for now but if you need anything else just ask

dd is about to turn 5 is tall for her age 116cm but quite light (75th centile if you've got a red book)

yes toilets herself completely though prefers help for a poo.

dresses herself occasionally needs help or gets stuff on the wrong way

can walk for a couple of hours but will complain, won't fall over. Walks to and from school everyday without it being an issue at all (about 20 mins at fast mummy pace 30 mins at dcs pace)

Can use a 2 wheel scooter as can her school friends.

Can use a knife and fork well etc

Do remember she's been in reception for nearly a year so she's been forced to be more independent at school that if she'd been a September baby and not there yet IYSWIM

dd cannot do any buttons, she can undo zips but not the very bottom bit, no way can she do them up, her eyes are just not that good sadly.
she takes about 15 mins to walk 200 metres and gets very tired and sore, although she walks around at home all day without trouble
She falls at every driveway/kerb/stone/uneven ground/pothole and walks into large statioaery objects.
She is toilet trained v early in fact but needs help to get up on a step (balance)and to get seated - she can mange a mini lo at pre school but struggles with her clothing.

Food, well she has trouble chewing so it is all chopped and she uses fork and spoon but also her fingers, infact mostly her fingers although she can sometimes scoop food onto her spoon using a fork. A knife I shudder at the thought
Ahh but she knows left and right from age 2 and always gets the correct shoe for the foot but cannot put it on unless it's wellies.

I normally focus on what she can do - read, count/add etc but once every 2 years I have to do this and I HATE it.

oh and dd is 14 kgs and 93 cms
30lbs and 3ft and 1/2 an inch

Hiya
I have a dd who is 4 1/2 (just) She is not yet at school. She is a light-weight - 2 stone 3lbs, about 103cm tall.
She dresses herself fine. Complains that socks are tricky, but is fine. Can do buttons unless stiff, and most zips. Sometimes puts trousers on back to front and shoes on wrong feet though.
Has been using toilet completely independently since age 4 (when if born at a diff time of year would be expected to at school). Occasional skid marks, ususally fine unless she has a dose of wobbly bottom. Doesn't need a step or special seat, but is a bit precarious on loo due to tiny bottom.
Hasn't been in a buggy since about 2 1/2-3. Can walk quite a way, but does whinge if uphill. One mile would take about 20 mins, but happy going for walks that aren't school run/shopping etc. Ocassionally trips over, but only if running or ground uneven.

Hope that helps - good luck with the DLA forms, I have heard they are a nightmare.

It is hard not to compare, but just from this thread, there is a wide range of ability esp at this age. Your dd sounds just like mine though btw!

DD is 4 and can dress herself. zips are OK buttons she can do if they are easy ones - some of her trousers the buttons are too stiff.- but the button thing is very recent. zips abut 4-6 mths ago when the nursery was really encouraging them to do up their own coats. From what I remember DS was slower at thse things and did zips about 4.5 and buttons at over 5.

They both ware very independent at toileting once trained and have been wiping thier own bums for ages - although DD is not too great soemtimes Eugh! - she won't let me help.

They could walk a mile but DS is lazy and hates to walk long distances - But give him a park to play in and he will walk/run all day. It would take a while too. They wouldn't normally fall over though.

DD is very tall for her age - 1.09m, weight almost 3 stone. DS (aged 6.5) is 123 cm and 3st 5.

Sounds like the falling/stumbling thing might be down to poor eyesight though if it is things like potholes and kerbs.

One of DS's frineds is disabled and they have to fill these forms. the mum said it helped to look back 2 years at the previous one and see what a long way forward her DD had come in that time rather thatn being upset at what she still couldn't do.

DS is 4 - (5 in October)

loo - not a problem, but likes me to check wiping (nice) - washes hands fine, but often tucks his t shirt in his pants when pulling trousers up!

dressing - dresses himself fine - small buttons take an absolute age, but he is fierce about doing it himself. Can do up zips on trousers, and likes to show me he can do the zip on his school fleece. Sometimes gets shoes on the wrong feet.

walking - charges around and often falls over his feet, the kerb, anything! - legs always covered in bruises - but he does gymnastics and his balance and coordination there are fine. He would complain bitterly about walking the 20 minutes walk into town, but will do it happily on his scooter or his bike (no stabilisers - but that's fairly recent)
We haven't used the buggy for over a year.

He is 104cm tall, and weight in proportion ...

Hope that is of some use.

piffle, just read your last post, and it's cruel to make you concentrate on the things dd cannot do - I sincerely hope that you get the desired outcome!

dd a year ago,

Toiletting Could go to toilet but may need a step, wiping hit and miss
Dressing , could just about manage buttons and pull a zipper but not an open ended zip like on a coat, manage pretty much all but less so tops and trouser fastenings, usually right way round except vest and pants ! Velcro shoes ok, could n't do Doodles style buckles or laces for example.
Walking ,a fair distance would be ok but will complain of sore legs after half an hour or so, but can keep going much longer if distracted, and is slow
Last year she was about 1m tall and 13kg

hth

thanks for all the answers it has believe it or not) made the whole damned thing a little easier as at least I have a direct scale of sorts
TY all

piffle, havent read the replies you have had, but heres what my dd aged 4 yrs 4 months can do.
toilet, uses on her own. though i prefer to wipe her bottom as sometimes get skid marks. howeve she is better at wiping her bottom than ds2 who is 18 months older than her. also she has been dry at night for almost a year and a half. ds2 still isnt (six in two weeks)
she has been dressing herself for sometime now. more than a year. however none of her clothes have buttons, or if they do, i obviously do them. she can put her own velcro shoes on, and buckle shoes on, but usually getst hem on the wrong feet.
she is a lazy little madame an d complains if i park the car a bit further away. however when i have not had the car, she is certainly capable of walking the mile and a half home. has been known to cycle more than three miles in one day once, (no car) ds2 on the other hand would happily ask to walk to school aged 3.5.
i never use the pushchai r as hse i s just too heavy for me in it.
no idea of height or weight, but she seems similar to all the other girls in her class.
hth

o, and her eating habits are better than ds1 aged 10!

good luck with those forms, they are crap. can you also compare her to people younger than her if you notice friends' children are able to do things she can't?
hope you get a 'good' result

cycling
ahhh dd cannot pedal even a trike yet, no way scoot
I am looking at having to buy a hugely expensiv pram just to get a rear facing seat ad a buugy board as without one I cannot take ds2 out on walk (11 wks) when dd is there as she is just 100% needs eye kept on and hand held...

ds is 4 and 4 months

toiletting, can your dc get up on loo, with or without a step on their own and wipe reasonably well?
can get on loo with a step and inset seat. doesn't attempt to wipe that much and makes a mess when he does.

dressing? how much on their own? Can they do buttons and zips, get things the right way round etc
he'll have a good go at dressing. can do most things; but tends to get t-shirt wrong way round etc, can't get socks on, hasn't got anything with buttons, will usually get zip after quite a bit of effort.

walking, how far can your dc walk say for a mile into town and how long would it take them? Would they normally fall over much? complain of pain/tiredness after how long?
Do any of your dc's still use a pram?
he can walk half a mile if distracted with chat, sweets, etc. he will walk a couple of hours on a day out or run around for a couple of hours in a playbarn etc. very rarely falls over.
but does complain of tiredness/ lazy legs when had enough and will hop into little sis's buggy given half a chance.

height and weght if you wouldn't mind?
he's 96cm and 2 stone 5 pounds.

hth and good luck

piffle, for what its worth, none of my children could peddle trikes. at all. ds2 was over five by the time he understood about pedals on his cycle.
scooters are harder because they need to learn balance. a bike withstabilsers is pretty solid so they dont need to have any balance iyswim.