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Baby acting oddly

150 replies

Kitty39 · 24/03/2017 21:48

I've had issues with my DS for awhile and have posted previously, in the past he's cried 8 hours a day, none stop.

after his vaccines he calmed down for several days. Stopped crying and would whine if he wanted something, but now he's back to crying.

He hardly eats or sleeps. 7pm till 4am he wakes every hour, then at 4am is awake for two hours and settles again at 6 but then wakes for the day at 7-8. He doesn't nap for more than 20 minutes.
He hardly eats, it's a struggle getting him to eat, he screams if I try to fed him. I can leave him for 2/3 hours or more and he still won't eat, after awhile I sit down with him wiggling about and get him to eat.

He has 'episodes'. He'll cry if moved, if talked to, if anything at all changes he cries. If he settles on my shoulder and I take his hand off my hair, he will cry, touch his hand, cries, talk to him, cries.
I can put him in his cot to settle but again he cries if moved from his cot to pram.
I put a blanket on him when he sleeps and even this upsets him!

I can't go out at all as he screams none stop.

He's been to the doctors and a&e several times, I've been told I'm 'feeding him wrong', 'it's a cold', 'reflux issues', 'colic' and 'he's fine!' I've tried everything they've said and the medicine they said to give him but still nothing.

Everything makes him cry, nothing makes him happy.

OP posts:
Are your children’s vaccines up to date?
GuinessPunch · 25/03/2017 18:26

If he cries when you take him to a&e then they will see what he (and you) are going through.

notanothernamechangebabes · 25/03/2017 18:41

I know you feel like you can't go out, OP, but in your place I would make an emergency drs apt. Don't worry about dressing baby- just wrap him in blankets if you need to- and go as you are. At your most distressed. With a list of symptoms and a "diary " and video as others have suggested. And if the Gp still doesn't take you seriously, I would go straight to a&e. It could be reflux. Or it could be a broken bone from the birth that was missed. Or it could be a cmpa allergy. Or it might be something none of us have guessed. Your baby needs to be seen again.

A baby so young is always welcome by paediatric drs in a&e - my DS went to a&e at 10 days because I had a "feeling" he was just off. No real symptoms, just my intuition. "He was being a bit odd" was all I could say. Drs still took me seriously, put us in a resus bay and starting monitoring. Sure enough his temp began to climb and climb- and he was admitted that night for observation. In the end he had a non-specified viral infection that he recovered from easily- but they told me it was absolutely right to go to a&e as it could have gone quite the other way- and they take Mothers intuition just as seriously as obs or other symptoms.

You are your baby's only advocate - if you think something is wrong, you have to speak louder and louder and louder until someone believes you and begins to look more closely.

Flowers I know it's hard- but once you get to the bottom of this, and you have treatment or reassurance, it can only get easier

HonniBee · 25/03/2017 19:58

Another one here saying fight for someone to take you seriously about CMPA. My baby had the same- no obvious signs but non-stop screaming. He gained well (also fed to help with the pain) so I was fobbed up with all the usual until he had blood in his nappies at about 3 months and I said got more pushy. we now have a diagnosis and he is much better.

I really hope you get some practical help soon. Keep asking!

HonniBee · 26/03/2017 09:55

How are things today Kitty?

laurzj82 · 26/03/2017 10:11

Please go to A & E. You will see a paedetrician straight away. Its classic cmp intolerance. If you dont want to do that go to a big chemist and buy some Nutramigen or preferably Neocate. Tell them its prescribed but your local chemist has fluffed the order and you're desperate. They will sell it to you. It's £££ but worth it if it helps.

Flowers for you. I know how hard it is because we were fobbed off for 6 months before we received a diagnosis. If I had my time again I would fight harder.

Sontagsleere · 26/03/2017 10:41

Just had a flick through the other replies and several mentions of cmpi / a which from your description of trying to feed baba sounds classic. I have two with this - desperately hungry, wanting to feed but knowing it causes pain. Fed couple of ozs every couple of hours for weeks. I would suggest Neocate as it is slightly more palatable than Nutrimigen (imo!). They are both vile tasting. It can be bought off script (Boots have sold it to me) as far as I am aware but very expensive. A pharmacist can be a good source of advice if the other medical professionals are letting you down at the moment. Keep us posted if you get a breather. If baby has an intolerance you should see an improvement in his form within hours- then at least you can rule this out as a cause of his upset. Also note the intolerance/ allergy can be a root cause of something such as reflux (silent and non silent) so if go to the root of the problem i.e. the food going in you should hopefully negate the need for baby to be on any meds. Hope this helps.

Kitty39 · 26/03/2017 10:59

Hi everyone. LO isn't to bad today,but then it's only 10 so there's time.

I've talked to my partner, he sees all of this, he believes it to be teething. My LO is teething and getting 4 that we are aware of. I also told him I think it's a possible milk allergy, was told to 'stop going on about it, he's fine.'

So that's it, I'm just going to end it here, I've gave up since my own partner is dismissing me.

OP posts:
GuinessPunch · 26/03/2017 11:08

Kitty please follow through with the allergy or cmpa suggested on here by people with experience. If things continue how they have with no support for you then it can spiral down wards very quickly.

SleepFreeZone · 26/03/2017 11:24

DS2 has teethed extremely badly from about 4 months. He is now 14 months and seems to be cutting his last four teeth. It's been a really hellish 14 months with an awful lot of crying day and night (hence the username) but there is light at the end of tunnel now with some nights where he only wakes up once and twice.

I think it's a good idea to get the GP involved again, also lean on the HV as they were really really helpful in my case. I think the cranial osteopathy sounds like a great idea too. I never tried that and felt like I would have if I wasn't juggling the toddler too.

HonniBee · 26/03/2017 11:30

Please don't give up! It's not fair if your partner to be so dismissive.

As his mother you know best and if you feel something is wrong, keep pushing to get answers until you are satisfied.

Good luck, and happy Mother's Day! Flowers

HorridHenryrule · 26/03/2017 11:35

If your little one has 4 teeth coming through at 10 weeks he is going through a lot of discomfort. Have you bought him teething gel to ease the discomfort.

laurzj82 · 26/03/2017 11:36

Your baby needs you to sort this out. It is not normal to be crying all the time. Please follow through for his sake.

notanothernamechangebabes · 26/03/2017 11:38

Please don't let your partner dishearten/ fob you off!

If he isn't being supportive, use the support you have here to give you strength to keep on.

I'll say it again - YOU are your baby's only real advocate. You carried him for 9 months. You gave birth to him. Now it's your responsibility to keep him well. In an ideal
world, your partner would be supportive and your gp would be listening to you- but sadly this is the real world.

And in the real world babies can become v unwell v quickly - please please keep trying to get help for your son.

HorridHenryrule · 26/03/2017 11:41

Have you looked into colic?

Kitty39 · 26/03/2017 11:44

HorridHenryrule
I've tried two different teething gels on him, neither worked. We give him calpol if he's crying badly, sometimes he has it all others spits it out, doesn't seem to wotrk anyway.

I've been giving him a dummy which has been cooled in the fridge. Keeps him quiet I guess.

I'm not sure if all this is normal with teething?
but according to my partner it is. Guess that's it and I should 'stop going on about it' like I've been told.

OP posts:
whoknewitwastrue · 26/03/2017 11:52

Ignore your partner. Mine was the same with DS who had cmpa & soy allergies that were diagnosed. I knew there was something else going with him as he cried relentlessly at night and it turned out he was allergic to eggs as well.

I almost divorced DH for the constant undermining, so unsupportive when you are pushed to your limits. You know him best. Hang in there, it will get better Flowers

notanothernamechangebabes · 26/03/2017 12:18

kitty I don't want this to sound harsh- please don't take it that way.

Is your partner a paediatrician? A GP? A midwife? Does he have any medical training?

Did he share the burden of carrying your son through your pregnancy, so he's been able to develop that special mum sixth sense that comes from sharing a body with someone?

Is he psychic? Or has he ever shown the ability to read minds/ see the future?

If the answer is yes to any of the above- maybe he is possibly right.

Otherwise- you know better - or rather best. So step up and do what you have to do for your son.

laurzj82 · 26/03/2017 12:48

Trust me when i say it is NOT normal. Please please seek further advice. Please.

ineedwine99 · 26/03/2017 12:59

Sorry OP but sod your partner. You know your baby best and this doesn't sound normal

MumUndone · 26/03/2017 13:05

OP you can get formula from Boots that is similar to those that come on prescription for cows' milk allergy

www.boots.com/sma-h-a-infant-milk-from-birth-800g-10181531

notapizzaeater · 26/03/2017 14:31

Totally agree - sod your partner - it's not normal for a baby to be in so much distress :-(.

amysmummy12345 · 26/03/2017 15:25

If you suspect teething try anbesol, it's really numbing, I'd seek further advice though, it sounds like pretty extreme teething...

ineedwine99 · 26/03/2017 15:43

Don't know if this might help
cowsmilkproteinallergysupport.webs.com/symptoms

Bue · 26/03/2017 15:50

I don't think these are not the symptoms of teething. The constant screaming, feeding pattern, and vomiting if not medicated are classic cow's milk protein allergy. OP please listen to those of us who have been there. If you don't do something this is likely to get worse and worse. As others have said, you are your baby's advocate. It sounds like he is in severe pain. I know you're overwhelmed and this is really hard but you owe it to him and yourself to keep fighting for him until it is taken seriously.

HorridHenryrule · 26/03/2017 15:57

Colief can relieve colic symptoms you add it to his bottle. Bottle fed babies are more colicky than breastfed babies.