Baby acting oddly

[Kitty39]

I've had issues with my DS for awhile and have posted previously, in the past he's cried 8 hours a day, none stop.

after his vaccines he calmed down for several days. Stopped crying and would whine if he wanted something, but now he's back to crying.

He hardly eats or sleeps. 7pm till 4am he wakes every hour, then at 4am is awake for two hours and settles again at 6 but then wakes for the day at 7-8. He doesn't nap for more than 20 minutes.
He hardly eats, it's a struggle getting him to eat, he screams if I try to fed him. I can leave him for 2/3 hours or more and he still won't eat, after awhile I sit down with him wiggling about and get him to eat.

He has 'episodes'. He'll cry if moved, if talked to, if anything at all changes he cries. If he settles on my shoulder and I take his hand off my hair, he will cry, touch his hand, cries, talk to him, cries.
I can put him in his cot to settle but again he cries if moved from his cot to pram.
I put a blanket on him when he sleeps and even this upsets him!

I can't go out at all as he screams none stop.

He's been to the doctors and a&e several times, I've been told I'm 'feeding him wrong', 'it's a cold', 'reflux issues', 'colic' and 'he's fine!' I've tried everything they've said and the medicine they said to give him but still nothing.

Everything makes him cry, nothing makes him happy.

This sounds horrendous. Call your health visitor and ask them to come and see you at home. They can see for themselves and advocate for you at the GPs. I don't think what you are describing sounds normal either but you need to get help rather than trying to do this alone

You can buy milk free formula online or from behind the counter (might need to be ordered in though). I know you say he doesn't have all the symptoms but not did mine. It was mainly the screaming (colic like symptoms) for us. There are a lot of us on here saying it's worth trying so I really think you should give it a go. For at least a week. The formula doesn't taste nice it tastes of sick so ocassionally we had to add a little nesquick to get dd to take it. Obviously we then reduced that to no nesquick (a dairy free nesquick) as soon as possible. You ds sounds just like my dd. She nearly broke me!

Thinking of you OP keep posting for support

Thank you for all your support.

My LO just woke up, poor little thing was moving his tonge like he was drink, I tried to feed him. He took an ounce and began crying. He cried for at least 6 hours all together yesterday.

During the night he left 2oz each bottle, he left about 6oz all together.

I'm going to call the health visitor today, last time I called she didn't answer or call back but I'm going to keep trying today.
I'm also going to record him during feeds and his odd little 'episodes'.

Will keep everyone updated. Hopefully I'll get some help for my little boy

Good luck with everything OP, keep persisting in trying to get support for this, I'm sure lots of people on this thread initially got fobbed off by GPs etc, I'm sure once you find out what the problem is and get someone to finally listen you'll find things a lot easier and so will your baby. Let us know how you get on

So sorry your having issues. My baby has reflux and to get diagnosed i had to take a list of all symptoms and i did videos too of her feeding to show them as she pulled off the bottle screaming but then took it again etc. The gaviscon may thicken the milk so he may need the next size teat?

My baby is on ranitidine for silent reflux. What you're describing, especially the feeding, was a lot like what my baby was doing. Initially he was prescribed the lowest dose for his weight. Another GP doubled his dose a couple of weeks later and only then did we see any improvement. In my experience the ranitidine does take a few days, maybe 3 or 4 to see any results. Good luck.

www.weldricks.co.uk/products/nutramigen-1-with-lgg-400g?utm_source=google&utm_medium=cpc&utm_campaign=GoogleShop%22&gclid=CMbTg9yq8dICFQzhGwodSWYJhg

Link posted if wanting to try nutramigen

Or aptamil www.pharmacyfirst.co.uk/aptamil-lactose-free-from-birth-400g-aptx4.html?gclid=CJzd94Sr8dICFcfgGwodImACtw

My DS also acted similar with feeds and crying. You need to keep going to the gp until it gets sorted, I know it's exhausting and you feel like they're judging you but it's the only way to get anywhere. My DS had reflux (ranitidine) and cmpa. He failed to thrive and had eczema and bad nappies. He was 4m old when we got it sorted. Good luck OP

Sorry for abrupt respond, DS was trying to get my phone! The hospital prescribed us nutramigen to try (we combi-fed at that point) I noticed such a difference in the nutramigen that I cut out the BF and did solely formula. After a few weeks his symptoms came back (very typical for a lot of cmpa babies to react to nutramigen unfortunately) they gave us neocate and after 3-4 weeks he was so much happier.
Cmpa isn't always obvious from the outside but it could still be causing severe abdominal pain and reflux. My DS seemed to get all his obvious cmpa symptoms over night at 4m and GP sent us straight to children's paediatrics. Not all symptoms need to be present and they (gp) really do need to start trying different things if other avenues have been exhausted. Can you take someone in with you who can vouch for what you say? I found my gp listened to my parents version of events better. As they weren't a FTM.

Today's been awful and he's got so much worse :(
he has screamed none stop for three hours, nothing would calm him. I put him in his cot in, thinking maybe he was overstimulated, he carried on crying for half an hour and slowly began turning red!

He eventually fell asleep, I'm keeping close eye on him now, after crying today he began 'gasping', like hiccups and was red.

He woke up about ten minutes later and started screaming again.

Try him on his front. Has he got a dummy?

I'd ring 111 - non-stop for 3 hours is not right - he must be in pain poor little thing.

He's the same on his front.

I've took him to the hospital twice, was told he had a cold the first time and second got told I was feeding him wrong and he was just hungry.

HV isn't answering the phone.

It's highly unlikely that it is this but it could be something called pyloric stenosis. It would be unlikely since he isn't being sick after every bottle but from what I can read babies don't always.

I think 111 would be OK tbh. Poor little chap and poor you.

He either has a broken bone or severe milk allergy and is in agony. Cry plead and beg for a script of non dairy formula asap

Hi have you moved him to a comfort milk and ask the doctor to prescribe carobel. It thickens the milk and seems to settle their stomachs. My dd was on gaviscon and it made her much worse. Nothing but comfort milk with carobel and the odd daily bottle of boiled cooled water helped. They said it was silent reflux and colic. Your doing everything you can and I hope he gets better soon

Poor poor baby and you, hope you get some answers soon. He hasn't got a thread or hair wrapped around a finger or toe?

I'm so angry with how dismissive services are being with you. Don't ever feel like you can't keep going back to the hospital. I'm so sorry you're being left alone in this. Is babies dad around?

Please go back to the hospital. I would take him to a&e.
I know they don't listen and think that you are a neurotic new mum but this isn't normal and not fair to both of you.
I feel so sorry for you both. I have been going through a similar situation myself.
Where are you based?

Take him back to A and E. Worst case scenario there's nothing they can do. Don't be afraid to fight for your LO this does not sound normal at all.