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Am I worrying unnecessarily? Please help - sorry it's a bit long

82 replies

earthtomummy · 04/11/2005 13:51

DS is 4.5. He has two sisters, 2.5 and 8mos. He didn't really talk until he was 2.5ish and properly communicate and interact until he was 3 and really when he started pre-school. I posted something y'day in the SN section about school's concerns about his fine motor skills. He's cross-dominant and hasn't chosen which hand to use yet. He can't hold a pencil or write at all. He also struggles sometimes with sequences of nos. and sees 9 as 6. But something that concerns me more is how he plays with other children. I basically DREAD play sessions. From experience I try to not build them up or make them a big deal beforehand. But apart from 2 friends, he is quite hostile - at times - v. hostile to friends who come to play. He'll either go off alone or be over the top silly, rude (poopoohead) and sabotage the other child's play. Frankly at times DS mayas well not be here during play sessions because he doesn't interact at all - or if he does it's negative. He's always been socially awkward - groups, birthday parties etc were a nightmare. But he always says he wants friends to come round and gets upset if they don't. He's a sweet boy but I can't help wondering what other mums must think. Also I find it hard to involve him in activities with me like lego, cooking etc. I can't help but notice that when I look after his best friend every wk, he is so easy to interact with. I mean, y'day's play session was with a 4yo we live opposite and who he walks to school with most days and sees at pre-school most days. But he was still hostile. Only with 2 of his friends can I relax but if all 3 get together he gets excluded quickly. I feel so upset. Something doesn't feel quite right. And somehow I feel really guilty that it's my fault. Sorry to go on.

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earthtomummy · 25/11/2005 21:51

Hi - sorry to have not respondd for a while, but have had an ultra-bad week or two. DS broke out in a rash that didn't fade under a glass - panic, panic, and was horrible, but has turned out to be Henloch Shonlein Purpura - yep, I was puzzled too. Anyway, he's had terrible arthralgia and an awful rash like vasculitis which has now become an infected eczema. My mum came up because last wk he couldn't walk. My lovely mum and dad have funded a cleaner to help out at the mo. which is tremendous. DS is OK now but his skin looks terrible.
The Inclusion Support worker came to observe him last Thurs ( he was struggling with his leg pain - hadn't been diagnosed then and I thought he was practising balancing - such a bad mum!). I wantewd him to be seenbecause I knew it would be another 6 mos. before the worker came to his schoo again. Apparently she thought along the dyspraxia lines, but she's supposed to be in touch by today to arrange a home visit, but not a peep. The GP noticed today as DS undressed to show off his strangely impressive rash that he is very loosely limbed..
So not much dcevelopment and I'm wondering when I should chase up the Inclusion Support worker..

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Davros · 26/11/2005 21:52

CHASE! You can always say "I don't want to be a pest but....." they won't mind.

sphil · 27/11/2005 12:57

Just wanted to say I'm sorry you've had such a bad week.

earthtomummy · 28/11/2005 15:10

Thanks for the support. I got the copies of his referral to Inclsuion Support on Sat.pm through the door, and included was a Connors questionnaire..it was not good reading. DH recognised it instantly cos he works in the field and basically they are clearly describing DS as a child with ADHD or ADD. Now I'm confused. The school saying it's poor coordination which should improve quickly but then clearly suggesting another issue aswell. I'd just settled down and then read this. Does anyone else know about this questionnaire?

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sphil · 29/11/2005 23:22

Haven't heard of the Connors thing, but just wanted to say it sounds like you're getting some very mixed messages from people! Maybe it's because there's such a degree of overlap in conditions, but it must be very frustrating for you. Will bump this in the hope that someone more enlightened than me comes along,.

aloha · 29/11/2005 23:27

It's funny because dyspraxia is really bad coordination with asperger's like problems with socialising, while Aspergers kids are normally very badly coordinated. So it is a bit of six of one and half a dozen of another.
I'm sorry your ds has been so ill - poor little mite.
If it's any consolation, my ds has dyspraxia and some aspergers type traits for sure, but he's only just four really and can read my mumsnet posts over my shoulder!

earthtomummy · 01/12/2005 18:32

Hi, feel a little clearer today. Spoke to the early yrs specialist who observed DS (from inclusion support) and she's coming to see us in a fortnight. She thought we should get a paediatric assessment and did think that the problem wouldn't resolve in a term or 2. On the up side DS went to a party y'day and was relatively ok, which was sa relief! B'day parties are always a source of anxiety for us!!

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