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Autoimmune disease

Nice to see this here

118 replies

scaryteacher · 26/04/2017 17:47

Great to see that there is a section for those with auto immune disease; it feels quite lonely having one sometimes.

OP posts:
Rhubardandcustard · 26/04/2017 18:01

Hello. Yes lonely and awkward explaining it to others, who just don't understand.

scaryteacher · 26/04/2017 18:03

Especially if there is no visible evidence that you have an auto immune disease!

OP posts:
standingonlego · 26/04/2017 18:33

Thank you for setting up :) Now we need to get some threads running for each topic area Smile

Anyone going to put their hand up to be the OP champion for your particular area of specialism?

I have DH with UC, so not quite the right person to start!

scaryteacher · 26/04/2017 18:39

I'm willing to take on ITP, as I've had it for 21+ years now.

OP posts:
AuldHeathen · 26/04/2017 19:27

Maybe we should have a paragraph explaining what AI disease is. I was gobsmacked when a close friend, over 10 years after my diagnosis - and despite various conversations on the subject - with some such conditions, told me she didn't know what autoimmune meant. I suspect my husband doesn't have a clue either. Shock

1nsanityscatching · 26/04/2017 20:05

Hello,have posted asking a question. I don't have an autoimmune disease but have a daughter who is currently ravaged by Ankylosing Spondylitis, a son being investigated for Sarcoidosis and a sister with MS which makes me concerned as to who is next tbh.

pimmsy · 26/04/2017 20:16

J'y, just quickly because I've got to run ... but great to see this here .. I'm an angioedema sufferer

Ollivander84 · 26/04/2017 20:24

Autoimmune neutropenia here. And hidradenitis Supprativa

Rollerbird · 26/04/2017 20:41

Ive got a daughter with a rare autoimmune encephalitis. Epilepsy and diabetes.

exWifebeginsat40 · 26/04/2017 20:43

psoriatic arthritis here. also had a weird 2 years of chronic neutropenia which eventually just resolved itself.

fizzingwhizbee · 26/04/2017 20:48

MSer here!

Rhubardandcustard · 26/04/2017 21:32

In my family we have lots of autoimmune but we all have something different. Between us we have RA, IBD, Diabetes, CD, Sarcordocis, Chron's.

SnipSnipMrBurgess · 26/04/2017 21:35

Hello, this is nice and new! I have RA and PsA , the Rheumatoid arthritis since I was 4 so a long time now.

I volunteer with young kids and others who have various forms of auto immune conditions.

It's a bit shit at the moment really,I feel like an old lady as I'm in the middle of a flare. I'm 36 and feeling well sorry for myself today

anonymice · 26/04/2017 21:35

MS here. My DSis also has it. Hello all.

EsmesBees · 26/04/2017 21:40

Hello all. RA and iritis here.

ChishandFips33 · 26/04/2017 21:52

Hi RA here - it's nice to be among people who understand

exWifebeginsat40 · 26/04/2017 22:54

i'm 44 and only just had my psoriatic arthritis diagnosed. starting methotrexate soon - anyone got any cheering tales about it?

Eragonsegg · 26/04/2017 23:34

I have Graves......I feel a bit like the poor relation all your disease names seem much more dramatic!

TheDrsDocMartens · 27/04/2017 09:27

Dh has AS & Iritis. I'm not quite in this bracket but have EDS-HMS & Fibromyaligia.

redannie118 · 27/04/2017 09:30

Hello ! Scleroderma and Sjorgrens disease, hello everyone!!

Shosha1 · 27/04/2017 09:45

Lupus and Fibromyalgia here, diagnosed 20 years ago with Lupus. Only a few years ago with Fibromyalgia.

Resulting with severe Costochonderitis for the last 3 years.

Lonecatwithkitten · 27/04/2017 13:21

Vitelligo, mixed connective tissue disease, pernicious anaemia and coeliac. My Rheumy says I only just miss out on meeting the fibromyalgia criteria, but he no longer cares about diagnoses only treatment - I love him.

shadowfax07 · 27/04/2017 13:25

Crohnie here, with Chronic Regional Pain Syndrome, an inflamed hip joint, endometriosis, costochondritis, tinnitus and a breast cancer survivor. I keep thinking I ought to leave my body to medical science. Grin

My sister has RA, and DP has psoriasis and psoriatic arthritis.

Exwife the methotrexate has really helped DP, one of his finger joints was double the size it should have been, and it is slowly reducing in size.

shadowfax07 · 27/04/2017 13:27

Oops, forgot to mention the vitamin B12 deficiency as well. Blush

Maudlinmaud · 27/04/2017 13:30

Hello all, diagnosed and awaiting further investigations for another. Dog tired today but the show must go on. Thanks for starting this topic Star

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