Awaiting CVS results 1 in 8 chance DS

[Mya2021]

Hi All,

Had a combined test done at my 12 week pregnancy scan they found my NT was 2.6mm and my bloods done showed 1 in 8 chances of DS. Had my CVS test done yesterday and awaiting results next week Tuesday.

Wondered if anyone is awaiting results for CVS tests? Or if anyone has had it done and had results back what was the outcome?

I'm trying to weigh up how likely it will come up negative!!

Thanks ahead for any comments and advice or answers.

@Mya2021no worries at all. I had it done in the middle of August. Recovery time physically was a lot quicker than I expected. A few days of bleeding but I did spot on and off for a while after. Emotionally I think it hit me a week or two after. Make sure you take time off work if needed to prepare for that. I've found talking about it easier now but I've also found some friends haven't asked me how I am doing. I guess they don't know how to ask but it has made me feel even more awkward myself.

I never got told at the appointment how long to wait. I had a follow up call from the hospital to book myself and my partner in for genetic blood tests about four weeks after. The tissue sampling taken from the baby confirmed t21. Ours also had cystic hygromas that were picked up on a scan and heart defects. I didn't want to find out the sex of the baby but unfortunately was handed a piece of paper with the report on when i went for bloods which I found devestating. Make sure you reconfirm everything with them if and when you do speak to the consultant or doctors after. I spoke to the consultant a few days later and she said I'm ok to try again but can wait for results to come back if it will reassure me. I will also get scans at 6 8 and 10 weeks for reassurance next time. They won't be able to detect the t21 that early but just for peace of mind. We also had the harmony test which is how we found our high risk initially. X

Hi @Mya2021 ,

Firstly I'm so sorry for everything you're going through right now.

Having been through this exact situation in May this year, I understand your feelings all too well, alongside the other ladies on here.

I saw your comment regarding advice when it was ok to start trying again. I wasn't given a specific timeframe however I wanted to give myself time to recover physically & mentally..... I am now 8 weeks pregnant 🌈 💓

In terms of care during this second pregnancy, I have been offered the NHS NIPT test at 10 weeks (and an early scan which is on Monday). My midwife & genetics team at my local hospital have been amazing so far.

I know what you're going through right now is so difficult but I wanted to give you some hope for the future.

My first baby will forever be in my heart & although at times it can be difficult to comprehend, I promise it does get easier ♥️

Wishing you all the best

@mrsof20118

Wow that's for all that info really helps! and thanks for taking time to relive the moment just to share big hugs to you & the fact that your helping me now really proves how strong you are and kind.

Yes we are also waiting for the second part of our CVS results to come back to notify us if this was a one off or something more to confirm for if we want to try again (which we would want to) but I think I'd wait till next year now. As I found out beginning of this year I was pregnant like in Feb and end of March they said I had a silent miscarriage so with that I had a surgical removal of the pregnancy sac. So I have had this procedure done before sounds kinda the same in terms of process. But that took me 2 months to heal as tissue was left over and so it caused a delay in recovery.

I gutted and disappointed with this but I also feel like it's something maybe lots of couples go through in our friends circle but nobody really reveals information on it much.

I'm glad we have a platform like this where we can help one another and life each other's spirits. thank you again really helps. I think I'm going to have to go buy some big pads now as it states heavy bleeding after? What did you take with you to hospital?

@Bellaashley

Thank you so much and congratulations on your pregnancy that's amazing news you must be super happy wishing you lots of happiness going forward. Such lovely news to hear and so refreshing especially in times like this for me it's important to surround myself with positivity.

I to want my body to heal before I start trying again that's if my results come back with better news and this was just a one off. Just praying for god news from here on now all I can do.

Thank you lovely @Mya2021 . I was over the moon when I found out, but obviously there's a little anxiety which I knew would happen given everything. But here we are 🌈♥️

Such kind words; I know it must be difficult so thank you for your well wishes.

Absolutely, do whatever feels right for you.
Positivity is the best way, and to be kind to yourself. Your hormones will play havoc with your emotions so take it easy 💓

Fingers crossed for good news on the results 🤞

@Mya2021 I am so very sorry you are going through this.

Please don’t ever think it’s anything like you have left it too late. You are young and this is just very bad luck and life being unfair. I am 37 and think the same re my age.

I hope you slowly heal and find the strength through this process and I am glad you have a lot of lovely ladies giving you advice. I would have done the same if I were in your position.

Do take care and I hope this gets easier with times. Sending you love and hugs. Here if you ever need anything or an ear xx

@Simz01

Thank you so much

Good Morning @Simz01

Have you had your scan done yet? Any news? Do keep us informed and updated x

I was denied a surgical last weeks from one hospital which was more upsetting. So now they have passed me case onto another hospital who will try and see if I'm eligible. So annoying!!!! Arghh!

@Mya2021 thank you for thinking of me when you are going through so much. We have a scan on Thursday and a heart scan the following week. I guess a lot will depend on Thursdays scan and if the nasal bone is visible by then.

Oh I am so sorry the hospital refused a surgical , it is really not what you need when you are upset and stressed enough. When will you know from the other hospital ? Do you have support from anyone to help with all this ? Xxx

@Simz01

Good luck for Thursday

So the hospital called me Saturday and processed my forms and then they said they would be transferring me elsewhere and I have to wait for a call this week. So annoyed and highly upset as I just want this done and they seem to be taking forever.

Does anyone know how many weeks you have to be to get a surgical is there like any cut off point?

Sorry to hear that @Mya2021. My hospital was 14 weeks but I believe every Trust can be different. I understand how you feel though, once I found out I completely detached myself from the pregnancy.

@Mya2021 I'm so sorry to read you've had to make such a difficult decision. My heart goes out to you. How are you doing today? Thinking of you. Xx

@mrsof20118 thank you I'm 13 weeks now and like 4 days so I'm getting very close just want them to call me. I understand must be a patient backlog but the pain to endure whilst waiting & panicking is an absolute joke!

@Flatwhite32

Very kind of you to message thank you so much.

I dunno I'm just lost feel so sad and down as their taking so long I it's literally been a week now and no app or even confirmation I'll get this surgical anytime soon. I think I'll end up having a medical which I really didn't want emotionally it's so painful.

I was chasing the hospitals all of yday and just felt like a total twat as they kept saying be patient. I guess nobody understands unless they have been through it.

@Mya2021 I completely understand how you feel. Nobody seems to get that every day feels like an eternity and when you know you will be ending the pregnancy soon it's just horrific. Keep putting pressure on, don't be afraid to say that it is impacting your wellbeing either xx

@Mya2021sorry i don't have any practical advice, but i hope you are doing ok (as ok as one can under your circumstances).

It must be horrible the wait and each day must feel so painful. Do keep pushing them as per the sensible advice given here

xxx

@Simz01 @mrsof20118

Morning ladies,

Thank you for reaching out and sending positive vibes.

Still no word from the hospital they have stated after me chasing them all 2 days that I have to give the hospital at least a week to book me first before my hospital can personally chase them now for apps. So basically have to sit and wait patiently. But the lady at reception did say this hospital in particular does surgical up to 18 weeks so I should be ok. It's now down to if I pass for surgical or not.

@Simz01

Finally the hospital called me back - but just to notify me that on Monday I hVe a call with the consultant to discuss which method of termination I'll be eligible for and to talk through it. Maybe need to scan me again if I don't have a scan present in my file. Confusing as hell as I have had multiple scans so that don't make sense. Kinda don't seem organized at all. So unfortunately for me another week of wait. Will only now know after Monday what happens!

If only this Covid didn't happen I'd have booked a holiday to take my mind of things like gone away this December or something.

That’s so tough. At this point you want it all over with. I went private for this reason - don’t know if that’s an option for you or even something that’s available easily in the current circs. Btw I had surgical at 16 weeks so it’s an option for a few weeks yet. for you.

Hi @Mya2021 I have just read this, so I'm sorry to hear that:

1. Your CVS results weren't positive.

1. You may have to have a medical termination and that you've been waiting for so long.

I have been through similar at a similar gestation. I have also had a miscarriage prior to this.

So I really want to offer you some advice and reassurance. In doing so, I'm sorry if I harp on about my experience, but I hope it can be of some use to you.

I wasn't given any option re operation or medical route.

We discovered a poorly baby at 12 week scan which was actually closer to 13 weeks. We were rushed through for a CVS and later a termination. I too was told the baby was very poorly and wouldn't have survived, but I think I would have opted for a termination even if it was just T21 (please don't judge).

By the time we had results etc the earliest I could get to the hospital for the termination I was 13.5 weeks. I was told it had to be medical because at that gestation they would have to open up your uterus during surgery to get the fetus out (or something like that) NHS are not prepared to take the extra risk, but I think you can get it done at a private clinic instead and it can still be paid for by nhs? Don't quote me in that though.

I went with it because I didn't really know about the private option and I actually felt that there was less risk viabthe medical route. I was very scared about the impact it would have on me and scared to go through it. I took quite a few tablets until I finally started to contract. The nurses were fabulous and came in when it all started happening at 3.30am. It was in the middle of the night which made the moment even darker than it was. They were so super supportive. I can explain the process to you in more detail to help you mentally prepare, so please do message me if you want to ask any qs.

Unfortunately the placenta did not come away (I don't think this happens much) so I then had to take more tablets which didn't work and after a good few hours of bleeding they took me in to operate.

I chose not to see the fetus (I prefer to use this term because it helps me to distance myself a little and this was my coping mechanism) as I didn't want to have the image etched on my mind forever. The nurses were very supportive in my decision and helped to facilitate that.

It took me a little longer than usual to recover. I had to go in to hoapitak to have my hcg checked as it took a while to get back to normal and it took a while for the bleeding to completely stop. I would say it was a total of 3 months before I felt back to my normal cycles. It then took a further 6 months before I was pregnant again, we started trying after 3 months from when I recovered fully. I had a very early miscarriage and then 4 weeks later I was pregnant again. I now have the most sweetest baby laid in the cot as I write this. He's 7 months old.

And your comment about 33 being too old. I was 37 when i first miscarried, 38 when I conceived my first child and 39 when I had him. I was 39 when I conceived again which ended in tfmr at age 40 and then 41 when I had my little boy. So no, you're not too old. 33 is young in terms of conception.

It is really likely you have just had some very very bad luck- I was told that at age 40. The consultant who did my CVS said to me she hoped I wouldn't stop trying. At the time, I didn't even want to think about that. Although, I thought if that's a medical specialist saying that then age must mean very little.

I really am so sorry what you are going through. But I hope my story gives you some hope. Please do contact me if you want to ask any questions. Sending my thoughts your way, it is such a traumatic time for you.

Sorry not open up uterus, open up cervix

@Mya2021

How are you doing? Did you have call with hospital yesterday? I really hope they gave you some clarity

I am so sorry for what you have gone through, and now all the waiting. I hope you have heard something from them xx

@Simz01

Hiya thanks for checking up.

Nightmare so they told me the consultant will call me Monday 9.20am surprise surprise nobody bothered so I waited till 11am and then followed up - no answer!!

Then I get a call at 5pm from a receptionist asking me "why did you miss your app do you still require a termination" At this point I just broke down and cried and basically told her "you clearly said it was a phone call not a face to face visit why would you state someone will call you if it's a face to face visit" she begun to tell me "we don't do phone calls" to be honest I have just had enough I made a complaint as clearly I'm not important enough. But now have to wait till next Monday for my face to face app they gave me as apparently clinic only runs on a Monday. So nothing they can do so I have to just wait another week.

I have had enough I just want this procedure done now which I clearly called me midwife and stated. She basically said yes they run every Monday only and terminations are done on Wednesday and Thursday. I don't think she quiet understands the mental pain of waiting either. It will be 3 weeks in total of a wait what an absolute mockery!! Just don't even wanna talk about it now had enough.

How did your scan go? Is all okay? How are you?

@Mya2021 oh, i am so sorry. This must be so frustrating and painful for you, mentally too. I wish they would understand that no doubt each week you have to wait will be torture and the slowest

I am glad you made your feelings clear to them, and I hope they realise the urgency when you go in on Monday. I don't know otherwise if you can change hospital, or go private although i realise that is additional stress and you really shouldn't have to. Saying that I hope on Monday they will expediate this process for you (do push them)

Here if you need anything and hand holding xx

@Simz01

Thank you hope this all gets sorted next week Monday now fingers crossed for me

How did your scan go? All okay?