Speaking as the 'full time' carer for my disabled dh, just because someone is paid the princely sum of £54 because it has been determined that they need full time care, it does not mean that they receive that care. I wonder just how much independant care you could actually purchase with £54 a week?
My dh has some days where his care needs are minimal, and others when I can do nothing else but look after him, our 4 yr old ds, oh, and my aging mil. I know that people who see him on his better days judge him; well if he can do this or that why can't he manage without care / work part time etc. They don't see him crawling up the stairs on all fours after the odd day when he has pushed himself to do something with us as a family, or that he is then confined to bed for several days afterwards; even weeing in a bottle coz it's agony to get out of bed!
They don't see that sometimes I weep with the frustration and 'never-ending'-ness of it all. How hard it is to have suddenly found myself caring for and married to an old, broken man at just 23 (me) and 29 (him) respectively.
I have done it now for 17 years and consider it my privilige to do it; but I wonder if you know how hard it makes it when you know that people are constantly judging your entitlement to every scrap of anything that you get, just because they don't fully understand your situation? Please stop wasting your mental effort worrying about this, and be happy that you aren't in the situation of needing to justify your every move in order to be paid £54 for a job that would cost the govt £1000's.
Oh, and believe me, I would give up any amount of free dentistry(it's not free actually, except the very basics, but hey ho) or any other benefits that you perceive make my life cushy, just to have my lovely active, healthy dh back again.