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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to hate the term "special needs"

124 replies

witchandchips · 06/10/2008 09:05

to find it at best patronising and at worst offensive. What does a wheelchair user have in common with some one on the austic spectrum? Apart from allocating funding across schools why do we need a catch all term, surely it plays into the hands of those who think anybody different is "stupid"

OP posts:
wehaveallbeenthere · 07/10/2008 14:24

I have to disagree. I am in the US though so I don't know what your school or national committee defines as "special needs" as opposed to "special education" or "handicapped".
I am taking a class to become a "highly qualified" paraprofessional and these terms are different from each other. It is very detailed but as national laws go the detailing is to make sure that each child gets the funding and education to maximize their particular potential. I can assure you though (at least here in the US) that there is a difference.

wehaveallbeenthere · 07/10/2008 14:29

Autism is a term that is a diagnosis from a neurologist coming to the conclusion due to a set few traits. Autistic covers a whole spectrum of traits and symptoms. Unfortunately, (and I am guilty of this myself) the two are sometimes misused interchangeably. Autism can also have other problems that compound the condition and make diagnosis difficult.

wehaveallbeenthere · 07/10/2008 14:34

mabanana, my youngest has PDD (pervasive developmental disorder) and in the last year or so has also fallen under the "mentally retarded" definition. The latter from various specialists working with her and observing her. We (as a group and I being her advocate) determined this at one of her ARD meetings. So, I totally agree that one size does not fit all. You are the best advocate for your son. No one knows him like you do and no one probably sees him in your home environment like you do. You have the keen, unique insight into his particular needs so if you feel he is not getting everything he needs then I urge you to do the research into the best way to proceed to change this.

wehaveallbeenthere · 07/10/2008 14:38

witchandchips, anyone that thinks that someone is "stupid" just because they are different is ignorant. You cannot expect them to educate themselves. Some will and some will not.

wehaveallbeenthere · 07/10/2008 14:49

Let me correct one of the above statements. A child with "autism" can also have other problems that compound the condition and make diagnosis difficult. Sorry about that. I'm finding this trying to study and do MN overwhelming.

nooka · 07/10/2008 14:56

I have a son who is borderline SEN. Really this translates to the fact that if you are teaching him you need special abilities (tolerance and patience being the key). His dyslexia does disable him, but only a little bit, his slightly odd mannerisms probably disable him more in terms of making friends. He is certainly not "normal" or "average" I certainly think he is special however. In the right environment he is happy and will I suspect contribute to the world (we have always seen him growing into a mad professor type). I don't however think the normal environment disables him.

I have close family who are profoundly disabled, they have high care needs and will always need a great deal of support. They are also special, but I think that the term "SN" is probably not sufficient on its own for their needs. I have a cousin with AT, who is leading as independent life as possible (with a great deal of support), but has the threat of early mortality hovering over him all the time. He is also highly intelligent. My niece has DS and autism, and in non verbal (doesn't use signs either, so has very very limited communication) My nephew has epilepsy and Aspergers type behaviour (there is a term that describes this but I have forgotten what it's called), he swings from being very unwell with his epilepsy to having very challenging behaviour with his Aspergers. I found it very unhelpful when school suggested that ds might be AS, because my understanding of autism is from the extreme end, so I thought it was a nonsensical thing to say. My mother is also registered disabled, with severe and chronic arthritis. She continues to live a fairly extraordinary and very active life. Grouping all these individuals into one group isn't very useful I guess, and my mother would be surprised to be called SN (although she does need help and extra consideration at times).

I think that part of the underpinning of this debate is that a very important part of the disabled movement was about ensuring that people didn't assume that those with physical disabilities were not automatically considered to have learning disabilities (or be "stupid"), particularly in an age when those with LDs were locked away. So blanket definitions are in that context problematic.

I tend to think of SN applying more to children, and to be more at the extra help and then will be OK in the mainstream world end of the spectrum of disabilities. I do think it is a much more positive or at least neutral term than retarded, which is innately negative IMO.

wehaveallbeenthere · 07/10/2008 15:11

noonka, the first day of class (9 to 5) this past Saturday I found I was the only person there trying to see this from the parent perspective instead of the employment perspective.
There is a whole chasm of difference between those with physical impairments and those with brain or mental impairments. Many times the two are assumed to be the same. For example the individual that cannot speak is assumed to be mentally incapacitated. I immediately think of Stephen Hawking.
Of course there are people that have both.
Again, I am here in the US and don't know what kind of facilities or resources are available in the UK or other countries. I can only offer my limited insight into this subject due to my own experience (perfectly able physically) with a child that doesn't speak and isn't toilet trained but can master a DVD player. She cannot blow her nose but can follow advanced instructions to prepare a snack.
This is just one individual. The problems are not though and that is where the professionals come in.
Personally, I don't really know if physically impaired but mentally able is better or worse than vice versa or in some cases both. It is a relative thing (no pun intended) as others are relied upon to help. IYSWIM.

jimjamshaslefttheyurt · 07/10/2008 15:15

We don't really use the term handicapped in the UK, or retarded- both are quite negative.

We would tend to use learning disabilities rather than mentally handicapped (which would have been used 15 years ago).

Blu · 07/10/2008 15:22

What do kids like to hear?

Since the Paralympics, DS LOVES to describe himself as 'disabled'. (and I'm not sure he is, really...)

Blu · 07/10/2008 15:27

But his 'official' dx - and what his consultant says is 'significant congenital deformity' - which I really hate and can't bring myself to use.

wehaveallbeenthere · 07/10/2008 15:28

We have touched on "transitioning" at the ARD meetings. This is a planning for the childs future as children do grow up and their caretakers age.
This is the main reason I am enrolled in these classes. There are so many involved in just my childs present education and future that trying to cover all the subjects in a two hour meeting is almost impossible.
It has to be done though as I won't be here someday and her future after high school is a question that I can only try to map out.
I'm no different from any other parent in wanting my children to be accepted and have a place in society that is beneficial to all.
It does bother me when others look at her and immediately lable her as "stupid". I do take heart in that she has many friends that she has made through classes and acquaintances.
I find consistently that people who put labels on others due to differences are only cheating themselves. Fear of the unknown usually is the influence for this.
I was watching a story about two weeks ago about a young man with a very bad attitude. He was always getting in trouble in school, starting fights, arguing with his parents and then was afflicted with some disease that he had to have his legs and most of his arms removed.
He decided to join the wrestling team after this at his HS and because of his attitude made it all the way to state. He lost but had the respect of the others.
I think it is the attitude of the individual (and to some extent those around them) that make a difference in a persons situation.

wehaveallbeenthere · 07/10/2008 15:31

lable=label I would also like to note that dyslexia is not just a reversal of letters, there are all kinds and varying degrees of such just as with autism.

wehaveallbeenthere · 07/10/2008 15:38

The ADA defines the legal definition for handicap. That is the Americans with Disabilities Act (1990).

wehaveallbeenthere · 07/10/2008 15:39

This covers both physical and mental handicaps and I'm sure is quite lengthy.
I wish I could split myself into two so I could remain in this conversation but I have to study.
Have a wonderful day all.

Peachy · 07/10/2008 15:40

A child with "autism" can also have other problems that compound the condition and make diagnosis difficult. Sorry about that. I'm finding this trying to study and do MN overwhelming. '

actualy so can any child on the spectrum

DS1's diagnosis is:

AS / HFa with semantic pragmatic disorder, severe dyslexia, mild hypotonia and severe aggression issues

Almost PMSl as that seems to include a rather large range......

Reallytired · 07/10/2008 18:15

Riven, I think that kids in local authority care do have special needs. For example teachers need to be sensitive when discussing family trees or doing time lines. LAC children often have a poor deal and often under achieve academically.

Special schools have a disportionately high number of children in care. For example I know a girl at my church who was locked in a cupboard and never sent to school for the first 10 years of her life. She is now with a lovely foster family, but has major educational needs inspite of being neurologically typical. It is right she has a statement and extensive support. Its just sad that she was not taken into care before the damage was done.

Refugee children and childen with English as an addtional language are also considered to have special needs. Quite rightly they are on the special needs register of most schools even when there are no learning difficulties.

Although it might be a red rag to a bull, I would even argue that neurological typical children with major behaviour problems have special needs. It is called emotional and behavioural difficulties.

A child can be completely fit and healthy, intelligent and still have special needs for one reason or another.

Peachy · 07/10/2008 18:25

I agree RT
Although our own first responsibility is to our own, beyond that I just see all chlidren who are struggling as needing support

cory · 07/10/2008 19:23

There has got to be something good about the word 'disabled': dd's creep of a headteacher tried to stop me from using it! [wink}

Which must mean that he thought it could make him do things.

SaintRiven · 07/10/2008 19:31

tell him its what the Disabled Rights Movement prefers. And they are all disabled so they should know.
I'm disabled and if anyone called me 'special needs' I'd lamp 'em one. Same with dd.

cory · 07/10/2008 19:36

That is precisely why he didn't like it Riven. He wanted to make out dd had no right to the term (and so couldn't be covered by the Act). Oh well, never mind, he's gone now.

SaintRiven · 07/10/2008 19:40

did you 'do away with him' ?

wehaveallbeenthere · 07/10/2008 19:48

I wish I knew more about this as I'm sure definition of terms is different there as it varies here state to state. I found this interesting. Let me see if I can get it to come up here.www.peatc.org/base.cgim?template=spec_edu.other.cycle.Checklist

I'm not sure if I did this correctly. If I did there is a reference to the term special needs as referenced in the state of Texas for adoptions.

cory · 07/10/2008 19:49

He retired on grounds of ill health, but I don't think that was entirely my doing.

wehaveallbeenthere · 07/10/2008 19:53

Gads, I hate computers. Of course I didn't do it correctly. Basically it state "special needs" not only being in regards to disabled children but also in reference to race, age, sibling status and "at risk".
It is a Texas adoption site but I found the expanse of the term...somewhat puzzling to be honest.

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