OK, you asked so here’s the full story. Sorry it’s long.
My DH visited his GP three times in 2 months with shoulder pain, a cough and breathlessness. Each time GP said his chest was clear on examination. Wouldn’t even refer him for a chest X-ray.
He was unwell a week later so we went first to the walk in centre. Triaged by a nurse, diagnosed with a trapped nerve as the cause for the shoulder pain, referred to physio and given pain killers. No X-rays or scans of any kind, didn’t see a doctor.
A fourth visit to the GP a week later because the pain and shortness of breath was much worse, and he really wasn’t looking very well by this point. He was tired, lethargic and grey. GP endorsed the diagnosis of trapped nerve and offered to try to speed up the physio referral. Said Xray wasn’t necessary because it was clear what the problem was, and gave him stronger pain killers.
We visited A&E twice after that because we couldn’t get a GP appointment, and he was much worse. Each time the advice was the same - trapped nerve, wait for the physio referral.
A week later, well before he could be seen by physio, he had a fall and fractured his femur and was blue lighted to A&E. He had a chest xray and scan to make sure he was fit for anaesthetic. Nothing was picked up as amiss with the chest xray or the scan, he had surgery to pin his femur and was discharged ten days later, once he was self reliant. They didn’t address the shoulder pain or other symptoms because the assumption was that it was a matter for physio and the referral had already been made.
Less than a week after discharge he was coughing and breathless and GP came out to the house and examined him. Said his chest was fine after examination with a stethoscope. When things didn’t improve, again we went to A&E with the same result as before.
A few days later he collapsed. Blue lighted to A&E and the on call doctor said he had one of the worst chest infections he’d ever seen. Actually tried to shame me as to why I hadn’t at least called the GP and when I explained the chain of events he clammed up and avoided my questions. DH was transferred to HDU then progressed to ITU on a ventilator as by then he had pneumonia in both lungs.
Five days later he was sent for CT because he wasn’t responding to treatment. CT scan showed a large tumour in the top of his lung, which was deep seated and long standing. It was responsible for setting up the infection and was inoperable - and by that time had spread to his lungs, spine, bones and brain. He died a few days later.
The cancer was a ‘pancoast’ tumour. In the top of the lung, sitting on a nerve, which is what caused the pain. I later learned that the shoulder pain, coupled with cough and breathlessness, along with eye problems reported to the GP (and dismissed) are classic symptoms of this kind of tumour. The GP missed it four times, and A&E/walk in missed it a total of five times.
After his death I asked for a consultation to find out more. The consultant wouldn’t agree to meet me and I was given an hour’s consultation by someone who clearly wasn’t medical, but admin and had some of his records. I wasn’t allowed to view them directly and my questions were answered in vague terms so I took legal advice.
The solicitor secured some of his records which showed that the tumour was on the routine chest Xray before surgery on his leg. It wasn’t well defined so had been missed, but it was there. It was also suggested that due to the circumstances of the fall that caused the fractured femur, A&E should have investigated further. The femur is the strongest bone in the body and the fall was minor. It suggested that the cancer had spread and weakened the bone.
I really only wanted to get things straight in my head for my own peace of mind, and although the legal adviser thought I had a good case against the NHS for negligence I decided not to go ahead. Profiting from his death didn’t sit well with me and suing the NHS wasn’t who he was. I felt I had to respect that, but going forward, I now don’t trust GPs at all and I feel that the other NHS services involved let him down badly. It was only when we got to the professionals involved in the highest levels of care in HDU and ITU that we got to the bottom of things, and by then it was too late.