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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Relative in ICU with heat stroke and is not going to make it

266 replies

SmokeyMountainRain · Yesterday 14:10

Posting for traffic. Has anybody been through this? Close relative, relatively young 50s), was found incoherent last Wednesday. Rushed to hospital straight to ICU as she'd fallen into a coma. They've kept her asleep, tried to wake her twice and she cannot breath on her own whatsoever. They've ran repeated scans which show due to the heat stroke damage the part of her brain that tells her to breath is severely damaged. They've pretty much said she's incompatible with life now and we will have to turn the machines off this week unless by some miracle she wakes up. Her core temp was 41 degrees for 4 days, she's now at 40. Not responded to any medication, antibiotics etc.

She wasn't even doing anything strenuous. Just in her flat watching telly. Has anyone been through this? Does anyone have any advice? I don't even know what to think and feel it just seems so so cruel. No brain bleeds or blockages on the scan. Substantial brain swelling and damage.

posting for traffic as can't see any similar threads

Any advice or miracle stories please send them my way. Thank you x

OP posts:
SquirrelGG · Yesterday 22:50

JenniferBooth · Yesterday 16:21

Exactly. You cant keep cool in temps of 35c There have been many news articles in the last week pointing out that the temp in flats can be 10c higher than the temp outside

It sounds as though there is a big problem with some UK buildings, especially flats, which needs to be addressed.

However. of course you can keep cool in temps of 35C. People have been managing to do so for years, including where I live, which is not a "hot country".

Velumental · Yesterday 22:51

Muchtoomuchtodo · Yesterday 15:24

This is incredibly sad, I’m so sorry @SmokeyMountainRain

What doesn’t make sense is why your relative stayed in the flat if it was incredibly hot and didn’t find anywhere cooler for as much time as they could. Around us the library, rugby club, leisure centre are all open as cool spaces where drinks are available.

I hope staff can answer all of your questions so that you can understand what’s happening to your relative and that they are kept as peaceful and comfortable as possible.

Probably because she couldn't smoke there. Heavy smokers get very anxious at not being able to smoke. Killed my mum at 56. Literally nothing ages your health like chain smoking. Maybe super morbid obese levels of weight with comorbud obesity but that's about it.

Velumental · Yesterday 22:54

SmokeyMountainRain · Yesterday 18:53

None of us knew she had COPD. They couldn't get her temp down from 41 for just under 4 days. We've been told the leading cause is heat stroke, and the COPD and infections are coincidental findings however they are making her recovery much much more unrealistic. But the heat damage to her brain was just as likely to end her life with or without the COPD.

It's the part of her brain that tells her to breathe that's the most damaged. She also has bruising and swelling in the brain.

I'm so sorry, I lost my mum at 56, she had COPD and was a heavy smoker. A heavy smoker with COPD at 56 is about the same in terms of risks like heat stroke and pneumonia as a non smoker in their 80s.

If she had a temp of 41 that took 4 days to come down though that's the infection not the heat stroke. Your relative has pneumonia and comorbud COPD in a heat wave. Not just heatstroke.

Velumental · Yesterday 22:56

SmokeyMountainRain · Yesterday 22:10

I'm sorry but this is incorrect. 2 consultants have told us this is due to her brain injury due to her core temp of 4- degrees. He also said she would probably die still without the lung problems. As the part of her brain that's damaged is the part that controls breathing.

A couple of posters have said this now; and from the consultants opinions, she is in a negative state due to catastrophic heat stroke with a hypoxia brain injury and organ failure due to her core temperature.

Yes her lungs don't help her of course, but that's not the initial cause of this. I and my family have asked these same questions.

The reasons she's been so susceptible to the what stroke and hypoxic injury is because of the state of her lungs, she'll have been working on a low oxygen level and reduced breathing capacity already. Before an infection came along in hot weather and combined led to heat stroke. She's on this position because of the COPD and heavy smoking as much as the heat.

Hypoxic brain I jury is low oxygen to her brain, caused by the stress the heat put on her already struggling lungs

HollyHolly123 · Yesterday 22:57

SquirrelGG · Yesterday 22:50

It sounds as though there is a big problem with some UK buildings, especially flats, which needs to be addressed.

However. of course you can keep cool in temps of 35C. People have been managing to do so for years, including where I live, which is not a "hot country".

I dunno. I think it depends on the property. If the heat gets in and you can’t get any cool air and it goes in for days it could become pretty difficult .

DyslexicPoster · Yesterday 22:58

OP don't let other posters get to you. The consultants have said its heat stroke and they are the ones qualified to say. Not us. Even if we had medical degrees we haven't seen her so ignore that. The how it happened nd why isn't for now to worry about.

I think all you can do is keep asking questions of the Dr's and make sure your are satisfied with the answers. I doubt there is any major rush here. I also highly doubt she is in pain or this is cruel. It's just happened. She isn't aware.

You need to take care of yourself as with a clear head you can support what path comes next. Whatever happens you will need your strength. Rest eat and drink. I'm sorry your in this shitty situation

JenniferBooth · Yesterday 23:00

If the consultants said its heat stroke then its heat stroke.

Dymaxion · Yesterday 23:00

What doesn’t make sense is why your relative stayed in the flat if it was incredibly hot and didn’t find anywhere cooler for as much time as they could. Around us the library, rugby club, leisure centre are all open as cool spaces where drinks are available.

Maybe they were going to but became unwell/confused and stopped being able to react in the way that you or I might, when well ? The army has lost fit young men to the same condition, people with no underlying health conditions, because once you reach a certain temperature you stop reacting as you would normally because you literally can't, your body isn't sending the same signals because it physically can't. It stops being about common sense and about your body shutting down due to extreme temperature. It is basic biology.

mulberrymilk · Yesterday 23:02

This is something I would expect to happen in far hotter temperatures and to someone who is very elderly and frail. The poor woman. It's baffling.

HangingOver · Yesterday 23:12

You poor thing OP 😢 You must be in absolute bits. How are you feeling?

LittleGreenDragons · Yesterday 23:14

Dymaxion · Yesterday 22:35

We should all be paranoid we will enter a coma once it gets hot? How do you suggest we process that info without unnecessary anxiety?

No but we should be aware that extreme heat/humidity can cause people to become unwell and when they are unwell they might not be able to follow basic health advice.
Those mentioning community cool spaces, how many of those are welcoming to those who smoke ? I would guess none due to laws put in place to protect the public from second hand smoke. So anyone who smokes is unlikely to take advantage of the offer despite being one of the groups most in need ?

Those mentioning community cool spaces,

I didn't even know these existed! But tbf I was already too hot and leaving my house would have made me even hotter/overheat, and the official advice was to stay at home!

I am so sorry OP, what a shock it must be considering your relative was only in her 50s Flowers

Endorewitch · Yesterday 23:24

JenniferBooth · Yesterday 14:38

Does she own the flat or is it rented

Strange reaction to awful news. Does it matter?

JenniferBooth · Yesterday 23:29

Endorewitch · Yesterday 23:24

Strange reaction to awful news. Does it matter?

A RTFT
B. im not the one scrabbling around desperately trying to prove its not heat stroke WHICH IS WHAT THE CONSULTANTS SAY IT IS plus it happened while she was at HOME.
Quite frankly the question should be what the motives for doing this are. Especially as only six short years ago a consultants word was law!!!

Velumental · Yesterday 23:29

mulberrymilk · Yesterday 23:02

This is something I would expect to happen in far hotter temperatures and to someone who is very elderly and frail. The poor woman. It's baffling.

A heavy smoker in their 50s with COPD is as susceptible to pneumonia and heat stroke as a non smoker in their 80s. Nothing ages the body like chain smoking does.

I say this as someone who lost my mum at 56 to a congenital heart defect exacerbated by chain smoking and COPD. It was devastating. However I work.in healthcare and I rarely see anyone under 80 as frail as my mum was in her last year.or so of life.

Velumental · Yesterday 23:31

JenniferBooth · Yesterday 23:00

If the consultants said its heat stroke then its heat stroke.

Absolutely but a chain smoker in their 50s with COPD will be much.mroe susceptible to complications of heat stroke such as an ischaemic brain.injury as they already have reduced oxygen capacity and increased risk of pneumonia.

Spookyspaghetti · Yesterday 23:52

anyolddinosaur · Yesterday 17:01

OP I am really sorry. If she did survive she would not be the person you knew, her brain has been badly damaged. They are giving you time to come to terms with this, there really is no hope of a full recovery. Had she ever discussed organ donation with you? I've no idea if it would be possible in this situation but if it is some people find it a comfort to know their relative helped others.

Organ donation is very important but it really winds me up that families aren’t offered any kind of bereavement support before the sales pitch. More people would probably agree to donations if they were treated with a bit of compassion and signposted to support at such a harrowing time.

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