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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

PIP for Anxiety

1000 replies

IntelligenceIsFree · 24/04/2026 13:18

AIBU to clear things up?

The current nasty rhetoric around disabled people at the moment is astounding. Society needs to be reminded that we are ALL one illness or accident away from disability.

Everyone knows someone who is gaming the system, yet the PIP fraud rate is extremely low. The public demonising, does not match the reality.

The hot topic is “anxiety” and how people with “anxiety” are gaming the system, getting “free” cars and robbing tax payers; this is being constantly fed through media, news articles and so on.

This is simply not true. The people spouting this nonsense clearly have no idea how PIP works. Nobody gets PIP without strong medical evidence. Nobody.

Before anyone posts “my neighbour got PIP just by telling lies”. No, they did not. That’s not how it works.

People need to be educated properly on how benefits work, how they are awarded and what the criteria for mobility cars actually is; the cars are not in fact free.

People need to be educated on the fact that there is anxiety, which every human suffers from at some point, and then there are anxiety DISORDERS which are entirely different and can be life changing and debilitating. Hence, the need and entitlement for PIP.

Brenda down the road who feels too anxious to go to Bingo on a Friday night is NOT getting PIP ❌

Mary up the lane who has such severe OCD that she cannot leave her own home for fear that she will die, IS getting PIP .✅

There’s a huge difference.

The current turning on disabled people is shameful and we are living in a country full of hate because Bob (and his Uncle) are annoyed that they are paying tax to “support all of these scroungers”.

Bob (and his Uncle), needs to hope that they never get cancer, or suffer life changing trauma or have an unfortunate accident to avoid being served a huge scrounged humble pie.

I do not suffer from anxiety but as a human, I am pleased we have a system in society to support the most vulnerable people who need it. Life can happen to anyone.

OP posts:
Kfti48dj · 24/04/2026 18:09

ThreadGuardDog · 24/04/2026 18:07

I’ve worked within the PIP system in several different ways, the majority of which was handling claims as a disability outreach worker/benefits advisor. MN is full of people who allegedly know people with simple anxiety and depression treated by their GP with anti depressant and anti anxiety meds, despite the fact that the PIP assessment does not and has never considered simple anxiety and depression treated by primary care (GP) alone to be sufficient for a successful claim. I’m sure someone will be along in a minute to reinforce that theory.

The threshold for a claim made solely on the basis of a mental health condition is very high - sometimes so high as to disqualify the very people it’s meant to help because the assessors are not experts in mental health. The benefit is primarily aimed at those who are being treated by secondary care, consultant led mental health teams, and who experience overwhelming distress as a result of their condition.

I supported a claimant at an assessment who had had several hospitalisations due to psychotic breaks, was under the care of a psychologist, and had made attempts on their own life twice. They were denied benefit. Put bluntly it was because they didn’t present as a gibbering wreck at the assessment and were able to answer the questions presented to them. What the assessor didn’t see was the panic attack and vomiting outside the building at the end of the assessment because of the stress it caused. It took at very stressful reconsideration request and finally a tribunal to secure the benefit they were entitled to.

Severe mental health problems can and do attract higher costs. They can be so debilitating that the sufferer is unable to go outside unsupported and is unable to engage in day to day activities or look after their own personal care. The DWP has posted comprehensive information as to what is needed for a mental health claim online, and one glance at it confirms that it is only intended for the highest levels of disability.

And in actual fact paying for a gym membership can be part of why PIP is paid. Anything can be a disability related cost if it’s incurred as a direct result of the disabling condition. It’s a complete myth that PIP is only there to pay for walking sticks and stair lifts.

Edited

This!

x2boys · 24/04/2026 18:09

JohnTheRevelator · 24/04/2026 17:37

Unfortunately there is a small minority who are gaming the system. I know one myself. He is suffering from bipolar depression but is physically healthy,yet he somehow managed to get the top rate on the mobility side. Even I couldn't get that when my award was reviewed last summer, and I am struggling to actually walk at the moment. On the other hand,I know 2 people who get PIP who in my opinion,are perfectly entitled to it. It is the small minority who play the system that makes the general public so critical and hostile towards disabled people.
If you believed the likes of Nick Ferrari and Richard Littlejohn,you'd be under the impression that 99% of people who claim disability benefits are faking it. Going on about people being 'given free cars' under the Motability scheme for nothing more than a sore finger,or a blue badge because they have an ingrowing toenail. When will these people get it into their heads that Motability scheme cars are not free? The day I heard Nick Ferrari ranting on about the 'excessive' number of disabled parking bays in a supermarket car park that he went to,then saying that he would damn well park in a disabled bay if he wanted to,I had to switch the radio off and vowed never to listen to his shite again.

The top rate of mobility isnt just about somones physical ability my son transfers from DLA to PIP this year he currently get HRM under SMI rules
Physically ,he can walk for mile ,s mentally hes like a toddler
I dont see the rates changing when he moves to PIP ,as theres not a cat in hells chance of him being able to navigate a journey independently from A to B

ImImmortalNowBabyDoll · 24/04/2026 18:10

youalright · 24/04/2026 18:02

Being to anxious to go to work doesn't mean they get pip if you know for a fact they are getting pip in you have seen all their bank statements how do you know they don't have carers in. Are you meeting them every single day? If they live alone they would also have to prove to pip they have carers doing these things for them so how have they done that. Or do you think pip assessors are stupid and you just fill out a form say im anxious and they say no problem here's some money. Like seriously think about what you are saying. You said your friends is a liar so she's probably lying to you to

Because I have stayed in SIL's flat for 3-4 days at a time in the past and she lives a very lavish lifestyle which would not be covered by UC and there would be no need for carers because she's 100% able to care for herself. I have no idea if PIP assessors are stupid but it doesn't take a genius to be able to spot that there's nothing wrong with SIL. If next door has carers, they must be invisible and very quiet.

Locutus2000 · 24/04/2026 18:10

IntelligenceIsFree · 24/04/2026 17:17

I never said that these people do not exist; you’d have to be very naive to think they don’t. I am not naive.

However, PIP is so hard to get, fraud is nowhere near the extent of what people claim it to be. The DWPs own figures show this.

The problem is, is that those 0.4% of people mean everyone else thinks it ok to demonise every other genuine claimant. It is wrong and as adults, we should have the capacity to think and question things to a larger extent that what the media and Bob down the pub feeds us.

But you are just whipping up a benfit bashing froth. Am I supposed to believe you are really seeking to educate?

PenelopePinkerton · 24/04/2026 18:10

There are loads of totally dubious claims for PiP. I used to be an advocate for appeals panels and the people claiming were just chancers. It takes away from genuine claimants.

Queenhecate · 24/04/2026 18:11

Anyahyacinth · 24/04/2026 17:51

Yes, the Department for Work and Pensions (DWP) can detect if people leave the country. As of 2025–2026, the DWP has increased its ability to identify individuals who are abroad, particularly for periods exceeding allowed limits.
GOV.UK +3
They use several methods to track travel and identify benefit fraud, including:

  • Exit Checks: The Home Office collects passenger information (including full name, date of birth, passport data, and travel document info) for everyone leaving the UK via commercial air, sea, and rail routes. This travel data is shared across government departments, including the DWP.
  • Bank Monitoring: New fraud crackdown measures allow the DWP to monitor bank accounts, which can reveal foreign transactions.
  • Data Sharing: The DWP proactively matches data with HMRC and the Home Office to check if claimants are living overseas.
  • Digital Footprints: The DWP can track if a claimant logs into their Universal Credit journal from a foreign IP address.
  • Airline Data: As part of investigations, the DWP can compel

That’s not checking bank accounts though. And especially not for pip fraud as it isn’t income based.

Nottodaty · 24/04/2026 18:11

My worry is the over reliance on benefits. They are no longer a ‘supporting’ when people need the help.

Like others have said there is people who work and get PIP - the issue is they then are used to having that additional money and live to that level - if a government takes it away I worry about what that reduction would do to their finances.

Others work just the minimal amount of hours to get UC - they could work FT but why if you can spend time with your children. Which many of the people who do pay the taxes don’t have that option.

I see the impact when a child turns 18 and what impact that suddenly has to a family who are used to a certain level of income via benefits. I see 18 years old realising universities isn’t an option as parents can’t afford them to go as they need to work likely minimal wage to cover the loss. Or see parents having to take in extra jobs just to survive.

I also see a family struggling with disabled child, neither parent can work as their child needs are to high. I would have no problem with more money going to carers that have no option.

There isn’t enough in the kitty as the welfare system (like NHS) is creaking - we all can’t keep taking eventually there will be nothing left and the people that really need it will be affected the worse.

ThreadGuardDog · 24/04/2026 18:11

Soontobe60 · 24/04/2026 18:08

It’s not ableist to acknowledge that some fraud takes place around benefits that are for people with disabilities. Claiming that it never happens is plain ignorant.

I wholeheartedly agree. However, claiming fraud is higher than it actually is, based on misconceptions of what PIP is actually paid in respect of is also ignorant.

TigerRag · 24/04/2026 18:11

Soontobe60 · 24/04/2026 18:08

It’s not ableist to acknowledge that some fraud takes place around benefits that are for people with disabilities. Claiming that it never happens is plain ignorant.

No one is denying there's 0 fraud. It's just not as common as people think

I have been reported because I don't meet someone's criteria of disabled. They don't see the scars from falling over because my disabilities mean I have zero depth perception or the struggles to communicate because I can't hear people properly. I have to have someone with me for hospital appointments because I keep walking out and forgetting what's been said due to my head injuries

youalright · 24/04/2026 18:13

ThreadGuardDog · 24/04/2026 18:07

I’ve worked within the PIP system in several different ways, the majority of which was handling claims as a disability outreach worker/benefits advisor. MN is full of people who allegedly know people with simple anxiety and depression treated by their GP with anti depressant and anti anxiety meds, despite the fact that the PIP assessment does not and has never considered simple anxiety and depression treated by primary care (GP) alone to be sufficient for a successful claim. I’m sure someone will be along in a minute to reinforce that theory.

The threshold for a claim made solely on the basis of a mental health condition is very high - sometimes so high as to disqualify the very people it’s meant to help because the assessors are not experts in mental health. The benefit is primarily aimed at those who are being treated by secondary care, consultant led mental health teams, and who experience overwhelming distress as a result of their condition.

I supported a claimant at an assessment who had had several hospitalisations due to psychotic breaks, was under the care of a psychologist, and had made attempts on their own life twice. They were denied benefit. Put bluntly it was because they didn’t present as a gibbering wreck at the assessment and were able to answer the questions presented to them. What the assessor didn’t see was the panic attack and vomiting outside the building at the end of the assessment because of the stress it caused. It took at very stressful reconsideration request and finally a tribunal to secure the benefit they were entitled to.

Severe mental health problems can and do attract higher costs. They can be so debilitating that the sufferer is unable to go outside unsupported and is unable to engage in day to day activities or look after their own personal care. The DWP has posted comprehensive information as to what is needed for a mental health claim online, and one glance at it confirms that it is only intended for the highest levels of disability.

And in actual fact paying for a gym membership can be part of why PIP is paid. Anything can be a disability related cost if it’s incurred as a direct result of the disabling condition. It’s a complete myth that PIP is only there to pay for walking sticks and stair lifts.

Edited

People need to seriously start listening. There are many people on this thread who have been through the pip process there are people like this person who i am replying to who works in the sector and understands it saying people can not just get pip for saying their anxious. Yet you still all choose to believe the random posters who say my neighbours, cousins goldfish auntie hasn't got nothing wrong with her she pretends to have anxiety and gets full rate pip and goes on 7 holidays a year.

pipfs · 24/04/2026 18:14

So much mis information on this thread.

You absolutely can get pip with 0 evidence - i write them weekly.

However.

People are not getting it for anxiety unles they can prove high level restrictions, high dose medications, and input from services. Just reporting anxiety isnt enough. People just claiming anxiety cant get a car, there has to be a secondary condtion and/or phsyical condition too. The highest anxiety descriptor in mobilty is 11E, which is 10 points, and a standard rate, which doesnt entitle them to mobilty scheme. There has to be more going on. To get a higher rate for MH alone, there has to be a significant risk of harm to themselves or others, psychosis, lack of insight, vulnerable, self harm, sucidial ideation. Anxiety is not scoring higher rate mobility by itself.

ArtyFartyCrafts · 24/04/2026 18:14

EilonwyWithRedGoldHair · 24/04/2026 17:32

We get DLA for DS who is autistic.

We currently use it regularly to pay for counselling (CAMHS wouldn't do anything despite the fact he was constantly talking about suicide and was self harming), replacing things he damages - he chews his clothes to rags, so we are constantly buying him new clothes, we've bought him various other things to chew but he always goes back to his clothes -, some goes towards car costs.

As one offs/less regular - we've put money towards car repairs as no car means no school, for food in Costa if he's distressed/dysregulated when we're out, particularly if visiting somewhere new for the first time or after difficult experiences like visiting the dentist as it's a safe place for him, trying multiple shoes to find a kind he could tolerate (ditto socks, toothbrushes, many things.), being able to get him things like noise cancelling headphones, occasional takeaway after a bad night (example Friday last week, DS didn't go to bed until gone 1am, I was up with him from 4am to 6am then I had to go to work. By dinner even going to the chippy seemed unimaginably difficult and bearing in mind he always sleeps badly so it has to be a more difficult night than usual.)

(We get less than 5k a year in DLA, tbh the loss of income is considerably higher than that, as DH has to work around DS, so earns about 5k a year, CA is a bit under 5k. If he was working full-time on minimum wage take home would be more like a minimum of 20k. We actually ring fence the DLA as well.)

Thanks for answering. Does the counselling help do you think? I know sometimes it’s hard to find counselling that is suitable for ND people. Have you seen the gummee glove? They do one for older children/adults who are chewers now I think.

cathome64 · 24/04/2026 18:14

CatRestaurant · 24/04/2026 18:05

How can people even fake it though, you have to have an interview and provide evidence.

Have you not seen the amount of white middle aged women hobbling along with their walking sticks ? Do you actually think they would need that stick if they needed to escape their house from a fire ? If you are willing to embellish and have the persistence to take a denied claim to tribunal you have a very good chance of getting PIP.

Whattodo1610 · 24/04/2026 18:15

Coconutsss · 24/04/2026 17:58

The relatives I know that get PIP/DLA are numerous. One is definitely justified. The others I question.

One family member’s children have (private) ADHD diagnoses. They flaunt that they get extra money, queue jumps etc. Their kids needs IMO are less than my child who has meltdowns if we go to shops and vomits when anxious. What would the money buy us? Perhaps some private therapy but I see it as I’m parenting a different child, I adapt to their needs and money won’t improve things much.

I’ve been told about websites which guide you on how to get the maximum claim, how to do it on the basis of the very worst day imaginable.

I think I could get awarded DLA for both my children if I did the worst day. One for chronic constipation, soiling etc. The other for probable autism. It doesn’t mean I should.

I’ve been told about websites which guide you on how to get the maximum claim, how to do it on the basis of the very worst day imaginable.

This is absolutely not true. The form tells you exactly how to answer it. Gone are the days when this outdated information was applicable. They ask you categorically, how many good days, how many bad days per week. What can you do on the good days, what can you do on the bad days. You have to prove needs/difficulties are there for over 50% of the time. You get asked on the form, at your assessment, and by the Judge at Tribunal. There is very specific Law that must be applied and followed.

Queenhecate · 24/04/2026 18:15

Nottodaty · 24/04/2026 18:11

My worry is the over reliance on benefits. They are no longer a ‘supporting’ when people need the help.

Like others have said there is people who work and get PIP - the issue is they then are used to having that additional money and live to that level - if a government takes it away I worry about what that reduction would do to their finances.

Others work just the minimal amount of hours to get UC - they could work FT but why if you can spend time with your children. Which many of the people who do pay the taxes don’t have that option.

I see the impact when a child turns 18 and what impact that suddenly has to a family who are used to a certain level of income via benefits. I see 18 years old realising universities isn’t an option as parents can’t afford them to go as they need to work likely minimal wage to cover the loss. Or see parents having to take in extra jobs just to survive.

I also see a family struggling with disabled child, neither parent can work as their child needs are to high. I would have no problem with more money going to carers that have no option.

There isn’t enough in the kitty as the welfare system (like NHS) is creaking - we all can’t keep taking eventually there will be nothing left and the people that really need it will be affected the worse.

The money difference pip makes to me is minimal - things old be tighter but I’d survive - but it’s a gateway to other help, which really does make a difference.

Anyahyacinth · 24/04/2026 18:15

Lemonthyme · 24/04/2026 18:05

Not read all the posts but I'm really conflicted on all this. I have a serious anxiety based disorder, PTSD and the only effective treatment I've had, I've had to pay for and I've now accepted traditional work isn't for me so I work for myself in a consulting role.

I don't think PIP is helpful to the person who is ill nor to the country. What would be helpful is effective treatments, on the NHS and better and more supportive communities.

All that takes time and money. I wish I could magic it to be in place. But having spent time off work when I was at my worst, it actually made my symptoms worse still.

Another thing that would have helped was forcing companies to support reasonable adjustments. Their view of "reasonable" was moving me onto different working hours so I saw my partner less. It wasn't reasonable at all. If I'd been supported, for a limited time, with perhaps just moving onto a less stressful project it might have helped me and stopped me from getting as low as I did.

But my experience is only the experience of one person. It won't be the experience of everyone. But I think there's too much focus on what people with mental illness can't do and not on what we can. That's not good for them or government finances.

(Btw, never asked for a penny so I have no idea if I ever would have been eligible.)

This kind of pronouncement is dangerous

People with learning disabilities are at a minimum 3 times more likely to have severe mental ill health ….by it’s very nature LD endures it is a life long condition.

I happen to work for an exceptional charity that ring fences paid positions for people with LD but until you compel employers to employ people with disabilities you are condemning vulnerable people to a very unstable impoverished life believe treatment will fix all and threatening their ability to live.

PIP is necessary —- basic benefits are deliberately designed to be short term and punitive…you want that for our most vulnerable citizens???

youalright · 24/04/2026 18:16

PenelopePinkerton · 24/04/2026 18:10

There are loads of totally dubious claims for PiP. I used to be an advocate for appeals panels and the people claiming were just chancers. It takes away from genuine claimants.

And this is why 65% of first time claimers get denied because they read threads like these and believe its easy then they get a nice reality check when they realise its not

ArtyFartyCrafts · 24/04/2026 18:17

scoopofmintchocchipicecream · 24/04/2026 17:32

@ArtyFartyCrafts DSs’ benefits don’t touch the sides of their disability related expenses, but the extra costs we face because they are disabled include things such as:

  • Higher electricity costs - medical equipment (feed pumps, seating, bed, rise and fall bath, changing table, nebs, hoist, through floor lift, etc.). DS1&3 have EOTAS/EOTIS, some of which is delivered from home so some days they are both home with up to 4 extra staff when others their age would be in school with no staff at home, DS1 has carers at home so sometimes there are 2 extra people in the house using electricity.
  • Higher gas costs - we need the heating on higher and longer for DSs’ medical conditions and DS1’s reduced mobility. Because DS1&3 are at home more during the day the heating needs to be on more than if they attended schools - both for their needs and because there are other people working in the house.
  • Higher water costs - DS1’s clothes/bedding etc. need changing more than the average person. This is more than ‘a bit of extra washing’. His specialist bath uses more water than many conventional baths. He also needs washing more. With carers and education staff in the house, there are more people using our water.
  • Higher food costs - for medical reasons.
  • Motability vehicle - the AP and adaptations. DS1’s current vehicle cost over £15k. That is on top of the monthly amount.
  • Car parking charges and fuel costs - we have to drive places we would otherwise walk. Not all car parks offer free blue badge parking. More hospital trips.
  • Equipment - Not everything is funded. We are lucky we have had a lot of charity grant funding for equipment that isn’t funded. For things such as SN car seat, SN buggies, bike trailer, specialist seating and some other equipment, but not everything is funded or has charity funding available. From the little things such as slider mitts, incontinence swim products, topping up the incontinence products provided because the NHS supplies aren’t enough even though we get more than many to bigger expenses such as topping up the funding to have a H-frame hoist because only a single track hoist would be funded even though the OT recognised a H-frame would be better and was really needed. Not to mention all the things we buy in the hope they will help but don’t.
  • Costs associated with hospital admissions.
  • Medical assessments and treatment - assessment and medication for one of my DSs. The medication has now been taken over by the NHS.
  • Pre-action letters to hold the LA and ICB to account. I can write my own, but my LA laughs and says good luck finding someone with a legal aid contract to take it further.
  • Independent assessments for EHCP purposes to hold the LA to account - although the LA contributed to these costs with the settlements from previous complaints.
Edited

Thanks for answering. I do hope you get the absolute highest rate available to help towards their care.

MagicalBagPuss · 24/04/2026 18:17

Yes, thank you for posting this. The public reaction to depression is similar. There is what Freud called something like "ordinary unhappiness" and depressive disorder. Life events often cause stress and misery but can often be dealt with.
Clinical depression causes persistent low mood, struggles with motivation, problems with sleeping, eating, self-care, self isolation etc. People don't know how to react so they run away. When severe it can lead to self harm, even suicide. Everything becomes impossible. I could say more about my own direct experience but don't think that this is really the place to do that.

WimbyAce · 24/04/2026 18:18

The only thing that I would suggest is if you suspect fraud then report it. It is very easy to report anonymously online. Hugely doubtful that anything ever gets investigated but we have to try.

x2boys · 24/04/2026 18:19

Anyahyacinth · 24/04/2026 17:56

What are you qualifications to make such a statement. Going to the gym would have multiple benefits ..better sleep, distract the mind and loads more

It would if a person is able to get there but if their anxity is so severe they get PIP leaving the house at all is going to be a challenge.

theturtleswims · 24/04/2026 18:20

ArtyFartyCrafts · 24/04/2026 16:04

Those that do get PIP, what extra living costs do you have as a result of your disability? What extra costs do you use it for? I’m not trying to be rude, nor goady, just asking a question. If it’s a physical disability do you use it for mobility equipment or equipment to help perform daily tasks? If it’s related to mental health, do you use it to pay for therapy or something?

Teen DD gets pip. She has autism, ADHD, anxiety, depression. Our extra costs are her regular psychologist, the psychiatrist she sees to access ADHD meds, the private meds themselves, plus incidentals like my extra petrol because she can't catch a bus and college is a 1.5 hour round trip, twice a day. Also foods that she can learn to cook are all pre-prepared because she can't make a healthy meal with individual components (she can only do 1 thing at a time but she can stick a pre-prepared veg bag for 1 in the microwave). Other things like burning most food she tries to heat up in the oven so it has to be thrown out, leaving the oven on full blast all afternoon until someone else in the house notices, so lots of wastage and extra electricity. But she needs practise and try to learn if she ever hopes to be able to live independently. There are lots of other incidentals relating to clothes, toiletries etc because of skin sensitivity. We also supposedly use some towards her (small furry) pet, which we got for her comfort/stress relief, but actually all the other stuff costs more than the pip we get so in practice there's nothing left to cover it.

Anyahyacinth · 24/04/2026 18:20

cathome64 · 24/04/2026 18:14

Have you not seen the amount of white middle aged women hobbling along with their walking sticks ? Do you actually think they would need that stick if they needed to escape their house from a fire ? If you are willing to embellish and have the persistence to take a denied claim to tribunal you have a very good chance of getting PIP.

1 in 2 women over 50 will have a severe fracture you think they made those up? Are they all throwing themselves downstairs 🤦‍♀️

The desperation to undo the rights of others…unbelievable

Camomilecrumpet · 24/04/2026 18:22

At an in-person assessment she just hams it up a bit. She tells her GP the same thing so she’s consistent across the board. Other than that, she has evidence of the injury happening (received hospital treatment at the time) and can give (made-up) descriptions of struggling to dress/wash herself, walk far etc. and how it affects her. She showed me the forms when she had to reapply a few months back so I know she has been dishonest. It’s inconsistent because, like I said, I know people with a genuine need who have been denied PIP, but she has never had any difficulty with it.

Queenhecate · 24/04/2026 18:22

ArtyFartyCrafts · 24/04/2026 18:17

Thanks for answering. I do hope you get the absolute highest rate available to help towards their care.

I used to wonder the same, and then I had an accident and became disabled.

I have mental health issues now but in the beginning it was just physical issues

I cannot get cold. The pain is unbelievable. My heating is on more than usual and I run electric heated throws.

I use the mobility component for an automatic car with adaptations. I couldn’t afford them.

my clothes washing is more than normal.

I can’t always cook

I have a cleaner

I paid for physio. The nhs wait was 9 months

im sure there’s more.

more I use now for issues related to my mh.

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