What’s wrong with me, hospital clueless

[elm26]

Yesterday at 1pm, I put my 6 month old on the rug with his toys and went for a wee.

As I was walking back I had a sudden severe pain in my right side radiating into my lower back and up to my shoulder, I was in agony.

I called DH who was luckily only on a job 15 mins away, he came straight home and took one look at me and called ambulance, I was shouting out in pain they gave me gas and air and morphine.

I had an emergency CT when dye last night and also have a catheter as lost the ability to wee. Nothing showed on CT, they got me settled on morphine and today I’ve had a transvaginal scan which shows ovaries and womb look normal.

Gynae can’t find a reason so they’ve stopped painkillers and just giving me paracetamol but somethings wrong I feel like somebody’s twisting my insides. The gynae consultant was horrible and said the surgical team will come see me if they think it’s worth it?? So I’m waiting for that if they come.

I’m in so much pain and genuinely scared they’ll send me home not knowing what is wrong with me.

Has anyone has anything similar?

All those are side effects of being in morphine! However if the pain isn’t settling you must ask for a second opinion. Get your husband to quote Martha’s Rule at them, and that should get them moving!

You do realise that AI just scrapes information off the internet including mumsnet?

Have they done a chest xray and are you having breathing difficulties? Pneumonia can be very painful.

With regards to gallstones- your symptoms sound pretty identical to mine.
1-3% of all women need to have their gallbladder removed in the year post-partum, and it’s a fucking mystery why no one working in healthcare seems to know this. A scan could show no stones but if it shows sludge you can get horrific attacks.
https://www.sciencedirect.com/science/article/pii/S1665268119309755

Yes I know this but they also use the info you put in for training/machine learning.

so one thing that will happen is it will continue to scrape wrong info based on people inputting other peoples info.

but thats not the point the OP is asking for help not for her info to be put into AI, she could do that herself.

as you can see from all the people replying with similar experience of the symptoms & pain, it could be a multitude of different things.

still wanna know how people get morphine for gallstone attacks cos I got no painkillers at all. Though they did misdiagnose me to start and made things worse.

add to that you reach a certain age & everythung is attributed to gyno/peri/menopause and drs do not listen to you. Its an endemic at this point & the poor OP is going through it

OP, those sats are low and your BP has been low. Could you ask a nurse what your NEWS score is? They should know what you mean

Do you know what your heart rate and temperature are?

If you’re concerned then consider asking for a review under Martha’s rule

Yes I had similar pain ; TRIGGER ALERT......I was producing Bl**d instead of urine. It was diagnosed as KIDNEY INFECTION and with admittance to the ward, too, took 2 days before ANBX started to work till the extreme pain subsided.

Me neither. Sat in a corner until they sent me home.

Many years ago I had an ectopic pregnancy. The pain you're describing is exactly how I felt.
A few weeks earlier I'd been to see my GP as I was spotting and had recently found out that I was pregnant. The GP sent me to A and E . I explained that I was only about 8 weeks pregnant. I was given lots of water to drink despite mr explaining that I was too early into the pregnancy for an abdominal ultra sound to detect anything.
After the abdominal ultrasound, the consultant ( male) said that I wasn't pregnant and that women of my age ( 32) are often so desperate for a baby they develop symptoms. I explained that I had taken a pregnancy test and that it was positive.
A few weeks later after feeling really under the weather,I collapsed in agony with what I thought was trapped wind.
I was in hospital for a week ,had a blood transfusion,and due to complications and developing peritonitis I was off work for 3 months.
Please beg for another scan. If the gynaecologist had listened to me when I first went to hospital I would have been treated there and then and would not have had to suffer the way I did.

Could it be sepsis? Low blood pressure and abdominal pain - ask them what your white cell count it, your lactate and CRP. If you are not satisfied with response, activate Martha’s rule. The hospital will provide you with a phone number and you can be clinically reviewed by another team which is usually someone with ICU experience.

I think it's unhelpful for people to be suggesting diagnoses based on the description of severe pain on the right side going up to the back and up to the shoulder, with urinary retention. It could be so many things.

@elm26 has had a CT with contrast, and a transvaginal ultrasound, so she hasn't been ignored. Her gallbladder has been deemed 'clear'.

Low blood pressure, decreased respiratory function and urinary retention can all be side effects of morphine and codeine (which metabolises to morphine).

This is why the medical team treating @elm26 need to evaluate her symptoms, current treatment regime, blood results, and imaging results to decide what the most likely diagnosis is.

No doctor on this planet would want to miss cauda equina syndrome, which is a medical emergency. They will have assessed the presence or absence of sensation.

If sepsis is a concern, there will be raised infection markers, lactate, etc. If they suspected any type of infection, they would give antibiotics.

@elm26 it sounds like you've been in a lot of pain and it's naturally really worrying. I don't think the hospital are clueless, though. Medicine just doesn't work as quickly as we're led to believe, thanks to programmes such as Casualty and Grey's Anatomy.

Where exactly in the abdomen was the pain?
Did they check your blood pressure on both arms?
Was the scan with dye a kidney scan?
Did they check for aortic dissection?
Are they querying a PE if your sats are low?
Is there back pain, neck pain or genital numbness/numbness or tingling lower limb/loss of power lower limb?

Sats low is a worry.
Have they done a d-dimer/cardiac markers.
Have they done a CTPA? Was this the dye test you had?

Sudden tearing pain and changes to blood pressure can be caused by aortic dissection. It can also cause urinary retention

Use Martha's law to request urgent surgical review. This may not be a gynae problem depending on the pattern of symptoms.

Ignore all the AI crap responses from people who clearly don't have any idea what they're talking about

OP in view of your pain, together with your low O2 saturations and low BP they need to monitor you. Is your pulse raised at all?

Ask them what they think your NEWS score is. It’s an early warning for conditions like sepsis and whilst you don’t currently have a high score, combined with your pain and difficulty passing urine, they need to keep investigating.

Hope they get to the bottom of it very soon and you start to feel better.

Came here to say the same thing @LovingLimePeer . As if doctor google was not enough, now we have sycophant Doctor AI.

Gall bladder pain causes pain in shoulder.

Yes, had it this fast from normal to more pain than labour in a 5 minute window, after I bent over to pick up something on the grass. Instant very high blood pressure as well. Sent to hospital.
It was a kidney stone, small, in tube, and one kidney backed up with urine. Sometimes the stone can be gone by the time you are scanned although mine was still visible.
Try urine tests, even if you have to buy them, and see whether any of the readings are out of the norm. Mine have been for ages (even after being treated and technically ok).

Reminds me of 2 ovarian cysts on the outside of ovaries and endometriosis. Didnt show up on scan.
Same pain as you. Could be kidney?

Sorry not rtft, it sounds very much like cauda equina, I’ll bet there’s plenty of others that have suggested this.

Where are you in your cycle could be endometriosis related? A cyst could have burst - they can be incredibly painful and don’t show up on scans.

OP, sorry if I missed the info - I'm tried to speed-read the thread, and look at your own posts.

When I had a similar, sudden, violent pain and referred shoulder pain, it took a LOT of similar gynae/urological investigations before finally being diagnosed with a ruptured ectopic pregnancy. I've never known pain like it. Has this been discounted?

The times I’ve had similar it was an emergency ectopic (I also have endo) and kidney stones-excruciating pain, not sure which is worse that or endo period pain, but both worse than childbirth!
Please get them to check these two things, hope youre ok op

I havent read all comments but ask them to rule out Cauda Equina syndrome which is a back problem causing nerve damage pain which effects bladder and bowel use

Yes same

I had very similar pain. It was ovarian cysts . The pain was the fallopian tubes twisting then going back. They cant see them twisting if they aren't twisting at the time.