Again well done to those taking the time and effort to try to educate and reduce hyperbole.
The poster that said parents of SEND kids should just look after them more themselves. You do realise many are doing just that full time 24/7.
My child gets 9 hours a week education that I have to supervise (required illegally by the LA). He is in my care ALL the time. No respite, no break. We have been awarded s whopping 2 hours a week of PA but I uave to advertise, find and employ said OA. Then make sure they are appropriately trained, support them to build a relationship with my child etc before I can then leave them for hrs a week which is NOT allowed to be in school hours because education is so important....
That 2 hours wouldnt be long enough to take my daughter to her football or for any appointment I may need. Its not long enough to do anything other than weekly food shop or a walk. But that is ALL the time off feom caring the local authority deem necessary. For a complex needs child. I have soent today juggling care for him, fielding phone calls,emails, admin etc enough to be a job in itself.. all relating to him. I am on unpaid parental leave and ultimately will lose my job.
The LA have conceded section I and offered eotas, (after insisting he was fine in mainstream he couldn't attend and they themselves said he wasnt doing any learning when he did attend) as no specialist to meet need in county. But they are STILL paying a barrister to go against me in tribunal because I am trying to ensure that section F is specific and quantified so that he gets provision to meet his needs. I am not asking for anything special swimming once a week as recommended by the OT, some recommendations for ongoing cognitive assessment by the EP again recommended not by private reports but the LA ones themselves. Support for his needs all outlined in section B. And the LA want to get away with wording so vague he would get little to no education.
I have battled the local authority not because I want anything over and above but because like his siblings and any other child he is entitled to an education.
And our vulnerable are entitled to social care support too.
If you want to care for a complex needs child 24/7, minus 2 hrs once a week. Run a household, work do all the admin and care needs associated please feel free to volunteer as am sure there are families in your community who need support. But dont spout nonsense about parent carers needing to DO more. Because many like me are doing all this and more, on minimal sleep and running on fumes.