@BusyBumbling
What I’m trying to convey to you is that Motability has failed to help children like my child - it helps in that it holds and owns what she needs but that’s literally IT.
Motability is problematic - not because of VAT relief or it’s enormous profit or buying BMWs - but because it worked SO well, from 1977, that its expansion and domination of the market means there are not even private alternatives to WAVs and adaptations to cars or indeed insurance.
Imagine if if you had heart failure and had the choice of giving half your income (let’s keep it to benefits for the consistency) to a charity called Heartright which provided whatever medication you needed ( regardless of the expense of that medication privately) and a nurse to speak to once a week to check that medication. Imagine that 60% of people with heart failure had almost identical needs to you and needed nothing beyond that service.
Imagine further, if you will, a different 25% of people with heart failure were eligible for medication that improved heart function and therefore life functions dramatically so those people could go to work and earn more than just the benefits.
Imagine only 10% of heart failure patients get the exact same deal BUT are forced to spend more than the other half of their remaining income/benefits to have defibrillators in their homes and other whatever else you can imagine, and that can only be given by Heartright or external providers that charge triple the entire income, for more or less the same services.
Heartright keeps telling the nation it exists to support the 10%. But by its own structure it makes it so that the 10% are actually much worse off than if Heartright had a varied pricing scheme and offered varying schemes accordingly.
In this imagined company analogy - it’s the 25% with the increased life expectations and experiences who were the PIP workers and earners who could afford the beamers. … they can go to work and earn and afford large downpayments.
This makes headlines and now the rest of the Heartright users are viewed through the lense of the 25% and become the butt of the (utterly pointless) arguments such as isn’t medication (in the analogy scenario/a car in Motability world “just a REGULAR expense”.
Sure, I could never have a WAV at all.
But my daughter can’t fly to appointments. She can’t fly to school.
My husband pays for and taxes and insures the regular car he needs to go to his job.
I can’t do what he does because I have to transport my daughter. I can’t do the transportation of her competitively priced or independently because Motability has the fucking monopoly on WAVs and insurance.
Im forced into a corner, a very expensive one. Motability would be brilliant- if she could walk.