I have a DD with epilepsy. She’s under the top specialist centres - which used to mean travelling into London to go to Great Ormond Street, or now as an adult, the National Hospital for Neurology and Neurosurgery next door.
We’d have to get a taxi to the station, a train into London and then another taxi to the hospital for three of us. At any point, on that journey, she could have a seizure, wet herself (because there is a limit to what any incontinence pants can hold) and be unconscious for several hours. How do you get an unconscious adult off a train, down the platform, queue for a taxi and then get into the taxi? How do you change the wet clothes of an unconscious adult on a train? You’d also have to leave the train seat covered in urine. Train platforms are a hazard in themselves - she could run off (because she doesn’t see why she should do anything anyone says), have a seizure and fall onto the tracks!
Once, she fell down unconscious in a seizure, outside the mainline terminus and refused to get off the ground. Luckily, a passing ambulance picked her up and gave her a lift to the hospital. Another time, she fell down unconscious in the hospital and was screaming her head off with pain - we had to take her to A & E at UCLH instead.
It is much less stressful to drive into London in her Motability car, even though parking in Central London is no picnic.
Social Services and the ICB both accept, it is too stressful for one adult to take her out on their own.
@IDidntSayThatSorry if you don’t know why travelling with people with uncontrollable epilepsy is so difficult, why make comments on it?