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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Husband not taking medical event (seizure/tia)?? seriously. What do i do?

96 replies

Fivegreenfrogs · 24/10/2025 06:40

I'm so scared and I'm at a loss as to what to do.
He's massively down played this. Partially as he has no memory of what happened (he says oh I just fainted) and partially because that's his hyper independent personality.
I did call an ambulance and made sure he got in it. At the time that wasn't hard as he was not completely aware of what was happening.. asked me in the ambulance where we were etc.
But once at A&E he kept trying to leave in between sleeping on my lap. Any time he'd wake he'd ask why we were there, say he was fine and it was a waste of time.
I had to take his phone and car keys off him so he wouldn't drive straight home when they let us go. They told him not to drive for at least 24 hours but he was trying to drive home. I managed to prevent this for ten hours.. which tbf he did mostly sleep through only waking once and trying to leave, but easily being persuaded back to bed. Eventually he did get the keys off me and drive home which I guess we had to as we were at a friend's house in the middle of nowhere (i can't drive) and she couldn't have us staying any longer. We also needed to pick our kids up from my mum's who had already had them far longer than she had agreed to. (She's disabled so it just wouldn't have been ok to leave them there longer) I do regret giving him back his keys though. I was terrified the whole way home although he drove perfectly fine.
He then slept 12 hours over night and has been unusually tired since although won't admit this.
The bad thing is that this happened out of area so even though I got him to ring the GP the next morning they had no record of any of it. It's now been several days and they still don't have the discharge notes.
My DH is also still saying he just fainted so I'm worried they won't take it seriously.
He did not just faint.
We were at my friends house. Staying overnight as another friend was briefly visiting from the country where he lives. So we just had takeaway and were catching up and watching a documentary. We did have some drinks but no one was drunk. I had two beers for example.
I went up to bed about midnight. So did my friend who's house it was. My husband stayed downstairs with male friend watching another documentary.
Next thing I know the friend is shaking me awake, tearful, saying my husband has collapsed.
I run downstairs and my husband is laid on the floor. His eyes are wide open and his face is contorted into this kind of snarl, with one side of his mouth up.
I rush to him and obviously try speaking to him but he doesn't respond at all. His eyes don't even move when I wave my hand in front of him.
My friend says that they were just talking normally then my husband had stood up saying he was going to turn in. He had then walked towards the door but stumbled and waved his arms about. He then knelt down and leaned against the table. My friend went over and asked if he were OK. Apparently my husband did reply but was making no sense and not saying real words. He then suddenly flopped backwards into the position he was in when I came in and had been like that, eyes open but unresponsive, for 5 mins. He got my other friend up and then me up. My husband was breathing but quite heavily. My friend said he had previously made some strange sounds.
I said we need to ring an ambulance. Which I did and whilst on the phone to them my husband suddenly sat up. The woman on the phone asked to speak to him and I handed him the phone which he took.. but when he spoke it was just nonsense so I got the phone back.
The ambulance arrived and they did various tests on him including an ecg. At this point he was saying normal words but didn't seem to understand what was going on at all. He just did what they said. But when they advised he come to hospital he was suprised to see the ambulance abd asked who it was for. When we were sat in the ambulance he asked where we were. He then asked how we had got to my friends house.

After we had been sat in A&E a while he did remember how and why we were at my friends house but had no memory of what happened apart from feeling tired. So he said he must have fainted.
I do not think this was fainting.
He had another ecg at the hospital as well as some bloods and a CT scan. None of this showed anything untoward.
The doctor we saw said she would have referred him to neurology but he wasn't in area so he would have to follow up with his GP ASAP.
It's been a few days now and the notes haven't gone across yet. He told the GP he felt fine when he rang which is a lie. He also framed it as fainting.
It was really traumatic and I'm just at a loss as to how to make him take it seriously and actually get checked out.
He had this week booked off work anyway luckily. But he drives for work! Which i am very frightened about. What if it happens again??
Any advice from anyone about what could have happened here and what I should be expecting from the GP would be great.
And any advice on how to get through to my husband would also be great.

OP posts:
BlueandWhitePorcelain · 24/10/2025 10:49

TheCorrsDidDreamsBetter · 24/10/2025 10:11

Does he take any regular medication?

We never got an answer for DP but he was taking venlafaxine and had also had 1 dram of whiskey when it happened.

For DP he felt off, so he came downstairs, stumbled a bit, managed to say he felt tired, then every word that came out of his mouth after that was word salad. Nothing made sense at all. He was confused when the paramedics arrived, he flopped over and started grimacing, but came round pretty quickly and said he just had a nap, got to the hospital, discharged himself and then slept on and off for about 3 days, barely surfacing.

When I complained to PALS he had to give permission for them to speak to me and they basically said he had capacity, they couldn't hold him but if he had any concerns he should go back to A&E and that's pretty much what the GP had said to him as well. He did go back in, had his obs and EEG, and didn't get to see a neurologist although the staff said a neurologist had reviewed everything and they said their diagnosis was hemipleigic migraines. He didn't have any sort of head scan so I don't know how they came to that conclusion.

Months later, he also developed tardive dyskenesia which was attributed to the medication he was taking but it always made me wonder if the medication was partly responsible for this strange event.

DD2 was diagnosed with hemiplegic migraines, although a head MRI didn’t show anything. Her description of what happened was either she fainted without warning, or she felt paralysed down one side for a brief while and her OH had to help her, either to get to the car or into the house.

Iirc, she was advised to go to A & E every time, to rule out a stroke. I don’t think she did that though - but she didn’t drive, because she could faint without warning. Eventually her GP took her off the pill, and they stopped.

Mulledjuice · 24/10/2025 11:08

Mulledjuice · 24/10/2025 07:01

Get him to make a will.

Gosh yes Im so sorry - i meant this as a suggestion to get HIM to see the severity of the situation. I did not mean "your husband is going to die and you cant do anything about it" but i absolutely see that it could be read like that. Apologies again.

It is good that they have done the CT and found nothing there but it does still need investigation.

Soontobe60 · 24/10/2025 11:15

My DH passed out a while ago, it was quite scary and dramatic. Turns out he has AF which can cause you to faint when you get up quickly. He’s on medication for life, is still allowed to drive but just needs to take it slowly when standing up.

Greybeardy · 24/10/2025 12:02

if they only told him to stop driving for 24 hours then they don't think it was a seizure or a TIA. A negative CT scan is reassuring. Faints can look quite a bit funkier than people imagine.

Fivegreenfrogs · 24/10/2025 12:20

Bambamhoohoo · 24/10/2025 10:11

I think people are being unfair with the dvla. My DH is on a short medical related suspension and his consultant has written to DVLA to say he’s fine to have it back. We have been told this is very common as ability to drive isn’t black and white and people who drive for their jobs would be specifically prioritised to get their licence back if they can.

even so, there is no recommended suspicion for post TIA - why on earth would OP be trying to get his employer and the DVLa to ban him when no medic has recommended this?!

I don't want to get him banned i just wanted him to get proper medical advice based on what actually happened.

OP posts:
Fivegreenfrogs · 24/10/2025 12:26

OK so had phone call with GP and I did tell the GP what happened.
GP said he would make a note of what actually happened but that a neurology referral was unlikely to be accepted given the hospital discharge letter.
He basically said it was probably a one off event but to go back to A&E if it happens again...
So that's that I guess...
At least my DH did let me speak. But I think the discharge letter is on his side with playing it down. Let's hope that's correct and it was just a faint with a wierd presentation.
No mention of not driving. So I'll let that go.

OP posts:
mit123 · 24/10/2025 12:31

This happened to my husband too - and yet he denies he had a mini stroke - that was two years ago - neurology call and speak to me every 6 months. Refuses any medication- so now I just let him get on with it - nothing much I can do he’s a grown man

BoxesBoxesEverywhere · 24/10/2025 12:38

That sounds like a stroke, he needs to take it seriously (although I know you already know he does!)
What a nightmare.
Face being "up" at one side, with one side looking more drooped?
Then you say he wasn't making sense when he was talking. That sounds like what happened to a close family member when he had one. We knew something wasn't right as he couldn't get his words out properly and wasn't making much, if any, sense.

Arran2024 · 24/10/2025 12:43

My daughter had her first seizure when we were visiting my family in Scotland - we live in London. She was discharged and we were just left to come home, terrified of what might happen en route.

I contacted our GP and told them what happened and asked for them to refer her to neurology and she was seen at a local hospital within the week, where they diagnosed tonic clonic epilepsy and absences.

She had her next seizure two weeks after the first one.

I'm sorry, you must be so scared, especially if your partner is in denial.

I can only hope he gets a neurology appointment soon. In the meantime he shouldn't be left alone or near any sharp objects or boiling water. And you might want to consider a sleep safe pillow.

Best of luck.

Arran2024 · 24/10/2025 12:45

Sorry, i just saw your update - I guess you need to see if it happens again. If it does, video him and time everything.

TalulahJP · 24/10/2025 12:47

It’s terrifying what could happen isn’t it but if the advice is basically do nothing then that’s that. A guy had a similar thing happen just before Christmas a few years ago, killed 6, maimed more. Horrific. Here’s the link for info from Wikipedia.

https://en.wikipedia.org/wiki/2014_Glasgow_bin_lorry_crash

Fivegreenfrogs · 24/10/2025 12:59

TalulahJP · 24/10/2025 12:47

It’s terrifying what could happen isn’t it but if the advice is basically do nothing then that’s that. A guy had a similar thing happen just before Christmas a few years ago, killed 6, maimed more. Horrific. Here’s the link for info from Wikipedia.

https://en.wikipedia.org/wiki/2014_Glasgow_bin_lorry_crash

I don't think there's any more I could do here. I spoke to the doctor and recounted what happened. It's his responsibility now.
I've recounted this to two doctors. What else can be done really?
My DH didn't contradict me so I'm happy he let me speak. Really we've been let down by a discharge letter that makes it look like he just fell over drunk.

OP posts:
Fivegreenfrogs · 24/10/2025 13:00

Arran2024 · 24/10/2025 12:45

Sorry, i just saw your update - I guess you need to see if it happens again. If it does, video him and time everything.

Yes I will 100% be videoing it if it happens again. After I've rung an ambulance obviously.
I just hope it never happens again.

OP posts:
Greybeardy · 24/10/2025 13:04

TalulahJP · 24/10/2025 12:47

It’s terrifying what could happen isn’t it but if the advice is basically do nothing then that’s that. A guy had a similar thing happen just before Christmas a few years ago, killed 6, maimed more. Horrific. Here’s the link for info from Wikipedia.

https://en.wikipedia.org/wiki/2014_Glasgow_bin_lorry_crash

IIRC the chap in that story had been having medical events for some time that would have prompted advice to stop driving, but he changed the story he gave to doctors so they thought something less sinister was going on. His dishonesty was the problem. It's a rather different story to the OP's.

smilingfanatic · 24/10/2025 13:25

Bambamhoohoo · 24/10/2025 10:11

I think people are being unfair with the dvla. My DH is on a short medical related suspension and his consultant has written to DVLA to say he’s fine to have it back. We have been told this is very common as ability to drive isn’t black and white and people who drive for their jobs would be specifically prioritised to get their licence back if they can.

even so, there is no recommended suspicion for post TIA - why on earth would OP be trying to get his employer and the DVLa to ban him when no medic has recommended this?!

Why on Earth do you think? Because a vehicle is a deadly weapon. Read back the events in the OP and consider what could have happened if the was driving at the time. Maybe on the motorway if he drives for a living. Maybe in a HGV?

Christ almighty.

Bambamhoohoo · 24/10/2025 13:28

smilingfanatic · 24/10/2025 13:25

Why on Earth do you think? Because a vehicle is a deadly weapon. Read back the events in the OP and consider what could have happened if the was driving at the time. Maybe on the motorway if he drives for a living. Maybe in a HGV?

Christ almighty.

You’re letting your hysteria run away with you. The OPs DH has not been told to stop driving. Even if he had a TIA, he wouldn’t. Therefore there is no premise to stop him driving and should OP attempt to force him to stop he will quite rightly point out that she doesn’t have the skills to assess whether or not he is at risk as a driver.

smilingfanatic · 24/10/2025 13:34

Bambamhoohoo · 24/10/2025 13:28

You’re letting your hysteria run away with you. The OPs DH has not been told to stop driving. Even if he had a TIA, he wouldn’t. Therefore there is no premise to stop him driving and should OP attempt to force him to stop he will quite rightly point out that she doesn’t have the skills to assess whether or not he is at risk as a driver.

As the OP has recounted, DH hasn't been told much at all, let alone to stop driving. His care sounds lack lustre at best.

Again, consider what would have happened if he was driving when this episode occured. I know it's not always easy to consider others first, but have a go.

Devilsmommy · 24/10/2025 13:42

I'd be speaking to the GP myself and explaining everything that you've put here because that sounds like he's at risk of a stroke. Don't let him downplay it because he could seriously injure himself or someone else working as a driver

Fivegreenfrogs · 24/10/2025 13:47

Devilsmommy · 24/10/2025 13:42

I'd be speaking to the GP myself and explaining everything that you've put here because that sounds like he's at risk of a stroke. Don't let him downplay it because he could seriously injure himself or someone else working as a driver

I have now and unfortunately the GP does not seem interested

OP posts:
Devilsmommy · 24/10/2025 13:48

Fivegreenfrogs · 24/10/2025 13:47

I have now and unfortunately the GP does not seem interested

God they are so ridiculous, it's like they just don't want to do their actual job 🙄 would going private be a possibility?

smilingfanatic · 24/10/2025 13:50

Fivegreenfrogs · 24/10/2025 13:47

I have now and unfortunately the GP does not seem interested

Any chance of paying for a private consult? Driving stuff aside, this could be a warning shot and a visit to a consultant could save his life.

Bambamhoohoo · 24/10/2025 13:53

smilingfanatic · 24/10/2025 13:34

As the OP has recounted, DH hasn't been told much at all, let alone to stop driving. His care sounds lack lustre at best.

Again, consider what would have happened if he was driving when this episode occured. I know it's not always easy to consider others first, but have a go.

But that didn’t happen, and clever / powerful people don’t ban people from driving based on what might’ve happened so, you really have no workable point.

Owly11 · 24/10/2025 13:55

Oh no i have just read your updates this is appalling treatment. Is your dh usually belligerent or is his behaviour around the car quite typical for him? Because changes in personality would indicate something pretty serious. I think you need to get another GP appointment and try again. Or just go to your local a and e today. He needs to be seen.

Bambamhoohoo · 24/10/2025 13:56

I imagine the main issue is that retrospectively, no matter who they see, there may well be no evidence of what happened.

Fits can’t be diagnosed retrospectively and the TIA may show no signs of having happened (and if a blood clot has been left, it might take a whole body scan to find it)

Fivegreenfrogs · 24/10/2025 13:57

smilingfanatic · 24/10/2025 13:50

Any chance of paying for a private consult? Driving stuff aside, this could be a warning shot and a visit to a consultant could save his life.

I'm not sure but that is something to look into. I'd really like to just rule out it being any type of blood clot issue. Maybe a private mri? But are those really any good?

OP posts:
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