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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is the start of type 1 diabetes

551 replies

NeuroSpicyCat · 10/07/2025 00:11

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP posts:
Thread gallery
10
TheFairPoet · 10/07/2025 07:43

MsJemimaPuddleDuck · 10/07/2025 07:41

Those saying she overreacted, type one diabetes killed a little girl called Lyla Story from Hull. She was diagonsed by her GP with tonilistisis in May 2025 16 hours later she very sadly passed away in her sleep next her to parents from DKA.

op didnt overreact, if anyone ever suspects type one its always ALWAYS best to get it checked out.

Lyla DID have the symptoms of T1D though - frequent urination, excessive thirst, fatigue, drastic weight loss. OP’s DS did not.

KennysLook · 10/07/2025 07:46

Op's son has had ongoing issues

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

Then she goes on AI and puts her biased symptoms in with no medical professional or even medically specialised AI asking suitable questions just confirming OP's existing bias. US based and designed Gemini AI says go to A&E. The US has a completely different health care system to the UK. It's all manners of wrong.

Why did OP not make a GP or nurse appointment before if her son's symptoms come and go?

Justwaits · 10/07/2025 07:48

KennysLook · 10/07/2025 07:46

Op's son has had ongoing issues

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

Then she goes on AI and puts her biased symptoms in with no medical professional or even medically specialised AI asking suitable questions just confirming OP's existing bias. US based and designed Gemini AI says go to A&E. The US has a completely different health care system to the UK. It's all manners of wrong.

Why did OP not make a GP or nurse appointment before if her son's symptoms come and go?

Edited

Especially given his father has type 1

so bloody odd

Rosscameasdoody · 10/07/2025 07:49

KennysLook · 10/07/2025 07:39

That's why patients are to go through 111, either by phone or online. Or contact the GP during normal hours. As we all have to share NHS care, it's annoying when people are feckless and OP is being obtuse saying in every other post 'AI made me do it'. AI diagnosed my child.

I am all for listening to your gut feeling where health is ragged but here she blindly trust AI and uses shared resources that are already underfunded based on what some random AI tells her. I feel sorry for the doctors and nurses who have give to uni for years and years and have to put up with 'AI told me'.

Conveniently forgetting that OP’s late husband - the childs' father - had T1D. Depending on whether that was a factor in his death it could well have contributed to her anxiety. T1D can deteriorate very quickly and can present with vague symptoms. OP says he had other symptoms and several posters upthread have confirmed that they were diagnosed with similar symptoms. There was even an endocrinologist posting to support OP’s decision.

To label OP as feckless in these circumstances is ridiculous. Yes, we all share the same healthcare resources, and we are all equally entitled to make an A&E call as we see fit. And l’m sure the doctors and nurses involved would rather a parent act as OP did in the best interests of her child, than wait and have him potentially be admitted as an emergency in a much more serious condition.

KennysLook · 10/07/2025 07:51

I can imagine the HCP's eye roll when OP's husband told them Gemini told them to go to A&E.

Notsuchafattynow · 10/07/2025 07:51

Bobbie12345678 · 10/07/2025 02:23

Just thinking broadly for a second… now that you know his sugars are ok, could he have had his first ‘wet dream’ and either failed to realise what it was himself, or absolutely realised and tried to cover it up as peeing the bed seemed less embarrassing?

This was my first thought too.

Have a sniff OP. Does it smell like urine?

Dramatic · 10/07/2025 07:52

MsJemimaPuddleDuck · 10/07/2025 07:41

Those saying she overreacted, type one diabetes killed a little girl called Lyla Story from Hull. She was diagonsed by her GP with tonilistisis in May 2025 16 hours later she very sadly passed away in her sleep next her to parents from DKA.

op didnt overreact, if anyone ever suspects type one its always ALWAYS best to get it checked out.

Lyla was actively very unwell though, op's son wasn't.

blacklabradorsandchilledrose · 10/07/2025 07:52

NeuroSpicyCat · 10/07/2025 00:28

AI said a diagnosis of type 1 is the most likely outcome tonight.

Well AI was wrong. An example of, whilst it’s brilliant, AI is dangerous for health diagnosis.

Sure - the symptoms your DS showed COULD be symptoms of diabetes. Just like my headache COULD be a brain tumour - but isn’t.

You have gone down a rabbit hole and convinced yourself of the diagnosis despite your son not showing the classic symptoms. You’ve hooked on to a couple of things.

important to get checked out? yes absolutely. A&E? No…8am doctors.

Stop using AI if you can’t put its answers in context.

Absolutemamma · 10/07/2025 07:53

I think you are correct to have your son checked out at hospital. Doing a finger prick test will show his blood glucose levels immediately.
waiting until the next morning could be a big mistake as DKA can happen overnight and can be fatal. Yes it’s a scary thought and shocking. But a doctor would rather see your healthy child than one in DKA. You’ve done the right thing in having him checked out. People who are not educated on Type 1 diabetes do not understand the seriousness of this condition.
I hope your son is well.

KennysLook · 10/07/2025 07:53

Rosscameasdoody · 10/07/2025 07:49

Conveniently forgetting that OP’s late husband - the childs' father - had T1D. Depending on whether that was a factor in his death it could well have contributed to her anxiety. T1D can deteriorate very quickly and can present with vague symptoms. OP says he had other symptoms and several posters upthread have confirmed that they were diagnosed with similar symptoms. There was even an endocrinologist posting to support OP’s decision.

To label OP as feckless in these circumstances is ridiculous. Yes, we all share the same healthcare resources, and we are all equally entitled to make an A&E call as we see fit. And l’m sure the doctors and nurses involved would rather a parent act as OP did in the best interests of her child, than wait and have him potentially be admitted as an emergency in a much more serious condition.

With this history she should have consulted her GP or practice nurse long ago. Her son's symptoms "come and go". Then, one night, she starts typing into a US based AI and in a panic gets her dc to A&E in the middle of the night. It's how she blindly trusts some random AI that is concerning here.

rainingsnoring · 10/07/2025 07:54

KennysLook · 10/07/2025 07:53

With this history she should have consulted her GP or practice nurse long ago. Her son's symptoms "come and go". Then, one night, she starts typing into a US based AI and in a panic gets her dc to A&E in the middle of the night. It's how she blindly trusts some random AI that is concerning here.

It's v concerning, especially as lots of people will be using AI in this way to support and increase their anxieties.

Rosscameasdoody · 10/07/2025 07:55

KennysLook · 10/07/2025 07:41

And what about Gemini's medical qualification?

That wasn’t the question. OP did what she thought was best in the circumstances.

x2boys · 10/07/2025 07:56

Dramatic · 10/07/2025 07:52

Lyla was actively very unwell though, op's son wasn't.

Edited

My son was mildly unwell in the morning by 8 in the evening he was fighting for his life in critical care it can progress very quickly thankfully my son recovered but if we had left it till the morning he wouldn't be here now.

Willyoujustbequiet · 10/07/2025 07:56

x2boys · 10/07/2025 07:40

He wet the bed .

One episode. No other classic symptoms and a stomach ache.

And I know full well how dangerous DKA is but the OP overreacted.

Wolfpa · 10/07/2025 07:57

Are you sure he wet the bed and it wasn’t just a wet dream?

Willyoujustbequiet · 10/07/2025 07:57

KennysLook · 10/07/2025 07:53

With this history she should have consulted her GP or practice nurse long ago. Her son's symptoms "come and go". Then, one night, she starts typing into a US based AI and in a panic gets her dc to A&E in the middle of the night. It's how she blindly trusts some random AI that is concerning here.

Exactly.

SalfordQuays · 10/07/2025 07:58

If someone had undiagnosed untreated type 1 diabetes, enough to get symptoms such as bed wetting, their random blood sugar would be high. The normal blood sugar has ruled it out. Massive overreaction by OP, which has led to a pointless night in A&E for her child. He certainly needs investigations due to sudden bed wetting, but it’s most likely a UTI, and a GP visit could sort that.

gsiftpoffu · 10/07/2025 07:58

If a 13 year old boy had come to me and said they'd "wet the bed" I'd have wondered if it was a wet dream rather than diabetes.
I appreciate you are anxious because the boy 's dad has T1D but "wetting the bed" once doesn't mean he also has it.
AI is a menace and you shouldn't be relying on it.
I'm glad he is being checked out. However a GP appointment would have sufficed.

Absolutemamma · 10/07/2025 07:58

steff13 · 10/07/2025 00:21

I know several kids with it. It's treatable for most people with medication and dietary changes. I wouldn't have considered it an emergency unless he was having issues remaining conscious.

AI is not helping your anxiety.

By which time it could be too late. DKA kills. Never wait if you suspect TYPE 1.

with type 1 there are no dietary changes necessary! It is not caused by anything in your diet. The pancreas does not work so therefore does not produce the insulin needed to survive. You can eat anything you want if you have Type 1 diabetes you just have to bolus the correct amount of insulin for whatever you eat/ drink.

x2boys · 10/07/2025 07:59

blacklabradorsandchilledrose · 10/07/2025 07:52

Well AI was wrong. An example of, whilst it’s brilliant, AI is dangerous for health diagnosis.

Sure - the symptoms your DS showed COULD be symptoms of diabetes. Just like my headache COULD be a brain tumour - but isn’t.

You have gone down a rabbit hole and convinced yourself of the diagnosis despite your son not showing the classic symptoms. You’ve hooked on to a couple of things.

important to get checked out? yes absolutely. A&E? No…8am doctors.

Stop using AI if you can’t put its answers in context.

Many posters on mumsnet are wrong too always better to get it checked out than to listen to uninformed posters.

LegoNinjago · 10/07/2025 08:00

TheFairPoet · 10/07/2025 00:16

But none of those things are symptoms of type 1 diabetes? You’re taking a 13 year old to a&e because sometimes they have a stomach ache and wet the bed once?

I like how people who have no knowledge of the subject, always feel entitled to leave their sarcastic pointless comment🙄

Justwaits · 10/07/2025 08:00

Middle of the night
you’re worried your son has serious medical condition after long standing health concerns and a family history of type 1 Diabetes
What do you?

start an AIBU mumsnet thread of course!

x2boys · 10/07/2025 08:01

SalfordQuays · 10/07/2025 07:58

If someone had undiagnosed untreated type 1 diabetes, enough to get symptoms such as bed wetting, their random blood sugar would be high. The normal blood sugar has ruled it out. Massive overreaction by OP, which has led to a pointless night in A&E for her child. He certainly needs investigations due to sudden bed wetting, but it’s most likely a UTI, and a GP visit could sort that.

But she wouldn't have known that if she hsdent got it checked out would she??

SalfordQuays · 10/07/2025 08:03

x2boys · 10/07/2025 08:01

But she wouldn't have known that if she hsdent got it checked out would she??

OP still thinks it could be T1DM

TheFairPoet · 10/07/2025 08:04

LegoNinjago · 10/07/2025 08:00

I like how people who have no knowledge of the subject, always feel entitled to leave their sarcastic pointless comment🙄

It was neither sarcastic nor pointless. I was pointing out to the OP that her DS doesn’t have T1D symptoms. Which he doesn’t.