To think this is the start of type 1 diabetes

[NeuroSpicyCat]

Hand hold please.

My 13 year old son informed me tonight that he wet the bed last night.

This has never happened before.

His late father had Type 1 diabetes which started around this age.

My son also has a sore tummy (that comes and goes) and sore calves (that come and go).

He seems to have low mood also.

He's always been really thin.

My husband (his stepdad) is driving to A&E with him right now. I’m staying home with the other 4 children. (I can’t drive).

I’m autistic and scared. I’m so worried for him. AI said he is highly likely to be diagnosed given his symptoms and family history, and he’s likely to be urgently admitted to hospital.

Has anyone been in a similar situation?

OP you can get a genetic test to find out if you're DS is more predisposed to Type 1 diabetes. https://www.elsadiabetes.nhs.uk/ It's a trial that's ongoing in the UK run by the NHS.

I would have done it for one of mine but DC was too old at 14. I understand your worry.

Here also is an interesting medical research report: https://pubmed.ncbi.nlm.nih.gov/35045871/

HAMSAB (high-amylose maize-resistant starch modified with acetate and butyrate) is not commercially available, (the stuff used in this trial) nor are we mice so take the study with a pinch of salt but it's something to consider.

Anything that increases short chain fatty acids are a good thing for any human!

Foods That Promote SCFA Production:

Fruits: Apples, pears, berries, oranges, and bananas are good sources of fiber.

Vegetables: Broccoli, carrots, spinach, kale, and sweet potatoes are excellent choices.

Legumes: Beans and lentils are rich in fiber.

Nuts and Seeds: Almonds, chia seeds, and flaxseeds provide fiber and healthy fats.

Whole Grains: Opt for whole grains over refined grains for more fiber.

Psyllium Husk: A fiber supplement that can be added to the diet.

Popcorn: A good source of fiber, especially when prepared with minimal added butter or oil.

Fermented Foods: Fermented foods like yogurt, sauerkraut, and kimchi can also contribute to SCFA production.

Resistant Starch: Foods like potatoes (especially when cooled after cooking), unripe bananas, and cooked and cooled pasta contain resistant starch, which is fermented by gut bacteria to produce SCFAs.

Good luck OP x

Please never use AI for medical advice.
It’s a pattern recognition machine, not a search engine.

right and that’s regularly offered on the NHS is it? Along with controlling your autoimmune condition with exercise and diet?

I completely understand why you panicked, but this is why a&e is bulked up and people in life threatening emergencies can’t be seen. You could have phoned 111, you could have got a gp appointment. My son was severely unwell when I phoned 111 once and they sent an ambulance based on my communication with them. So that could have happened with you. I just really take the need of people being in a&e seriously as when I was a child I had a mastoid infection and had to sit in a&e for hours because it was so busy. When I finally got seen, I had to be rushed for surgery as I was septic and if I had to wait any longer I likely would have died.

so that’s what a&e is for, genuine people risk life or death waiting because people didn’t want to take the time to see the gp or phone 111. I think everyone should be entitled to healthcare equally but come on, this was not an emergency.

OP,
Don’t let anyone undermine you for seeking medical attention for your child when you felt that they needed it.

The same posters would tell me “you took your son to A&E because he had stomach pains?”, “You took your son to A&E because he was sick after dinner?”
Yes and I’m bloody glad I did because his Crohn’s disease is now diagnosed and treated and he has his life back when the GP/paediatrician was getting us nowhere.

Undiagnosed type 1 can be deadly as you know. Do you know if it is possible/ok to test for ketones or test blood sugars if you are concerned to be prepared if you have the same concerns in future? I have no clue just wondering if this would be helpful.

If your son is diabetic I believe there are advancing technologies now to help you all manage.

Hope he is ok.

If the OP rang 111 concerned about type 1 diabetes her child would need to be seen. No call handler is going to say “oh I’m sure he’ll be fine” that is not going to happen. Sending an ambulance would be more resource intensive than taking him to A&E.

Edit: undiagnosed type 1 diabetes is a life threatening emergency.

You think OP should have waited to see if her son got extremely ill - then he could be helicoptered in?

Edit someone cannot tell if the child is diabetic over the phone. It’s not possible.

Read the post I quoted.

🤬🤬. Especially when you make out you're some kind of medical person (which they're clearly not)

Because she was saying it was because he wet the bed once. Minimising the OP's other reasons she was worrying.

I hope OP's child isn't still in A and E after wetting the bed once.

FGS at least read the posts I'm quoting before quoting me with more of your pointless posts.

The NHS make it very clear what A+E is for. They have done numerous campaigns to try and stop people going for no reason. If yours is different, then I imagine it’s well advertised as this. But the majority of A+E’s are for accident and emergencies only.

You forgot the cinnamon.
There's so much disinformation about T1D all over this thread that I don't even know where to start.

Well I'm sure his SD was more tactful, it's not the only reason his mum was (understandably) worried. His late father had it, I'm sure the kid understands.

And just as I don’t know about your personal situation, you don’t know about mine and why I feel so strongly about people turning up to A+E for no good reason.

Yep. Ridiculous she wouldn't have waited, but would have started the whole thing again the next day 🙇🏻‍♀️

Here are NHS England’s guidelines for triage. There is no direct discharge of patient at triage option. The closest that can be done to discharge directly from triage is to redirect to primary care, which is not done at night due to primary and community care being closed. OP‘s DS attended at night. www.england.nhs.uk/guidance-for-emergency-departments-initial-assessment/

Agreed. You can manage it with diet? Okay so why is my sugar sky high when my pump fails overnight

Well my mother thought like you and was telling me to try different cold remedies on DS, luckily I felt differently and he got to A&E a few hours or so ahead of the point where he would have died of DKA.
Given that my other son was stillborn because I didn’t want to bother the hospital with what I thought would be dismissed as standard (for me at least) pregnancy BS, you should understand my anger at the suggestion that the public should not seek urgent medical care when they believe they need it.
I’ve been to A&E twice with my youngest son in the past 6 months, both times on the weekend, treated and on our way within a few hours.

So what was it @NeuroSpicyCat?
An update would be useful/reassuring for people in a similar situation in the future.

@NeuroSpicyCat

I believe in a mothers instincts. You did the right thing. It's so difficult to get a GP appointment these days.

Type 1 here - I hope you’ve had some good news?

as your husband is type 1 surely he has ketone sticks and a bg manual monitor (as back up - just in case he uses Libra and it over heats - mine is dodgy in the warm weather when it gets very hot). That might have given some comfort. If you’re at the point of DKA your husband would know that the ketone sticks would light up like a Christmas tree showing highly acidic levels when dipped in your son’s wee.

AI is not a good tool to use - try the nhs instead. I appreciate you were really worried and it can be immediately life threatening if you don’t know what’s going on - but you have your husband on hand to help.

I was thirsty and tired and was in DKA when diagnosed and losing several lbs of weight per day. Thirsty - to put in perspective - I was gulling down two points of water and the minute it left my tongue it was bone dry. It’s not feeling a bit thirsty when it’s warm weather. The muscle pain isn’t just slightly sore - it’s crippling to the point you can’t move or walk. And the tiredness - your eyes flutter and you can’t stay awake.

Id been to see the GP and asked him to check for diabetes and was given antidepressants and then he increased the dose twice and told I was a hypochondriac. He tested my wee with a ketone stick after telling me to go home and get some rest as nothing was wrong with me. By the time I got home the phone was ringing and it was the receptionist telling me to go straight to an and e.

Im the only diabetic in my family - my son is 30 and no autoimmune diseases at all. Having said that my family has a lot of autoimmune disorders, and I am collecting them (currently have five and I’m expecting another one to be added to the list soon as being tested for lupus.

I hope you’re sons alright - he could have been in deep sleep and accidentally wet the bed as just got caught short, he could have a UTI, I hope he’s okay and gets a good rest when he’s home x

So sorry ! I’ve just re read (yes I’m stupid) and missed it was your late husband that was type 1, so you wouldn’t have had the bg monitor or the ketone sticks. Sorry, I really am, that I missed that.

OP’s husband died. Made very clear in the first post.