Ok who wants to swap £2500 a month in benefits for my husbands MS and my epilepsy, narcolepsy and fibromyalgia.

[bluebirdblackbird]

Well according to a lot of people on here we are on a good thing.

the 20 seizures I have in a week, chronic pain and night terrors, losing my memory after a seizure, pissing myself, hallucinations. They are all great fun. Not to mention the amount of times I have been accused of being drunk after a seizure.

or there is my husband. Diagnosed with progressive MS. Cronic Pain, shaking, cronic pins and needles, weakness in limbs plus losing mobility. Had to give up his teaching job 4 months ago after gradually reducing hours.

Not to mention the judgement when we use a blue badge because we look ok in that moment. And apparently labour are going to find us both work. Yippee cant wait to meet the employer who is going to take us both on. I am sure pissing my chair on a reg basis won’t matter to them or the losing counciouness at least a couple of times a day.

i am just fed up of yet another they are on benefits and get money and it’s not fair stamp stamp stamp. The bastards have saved up for a holiday- it’s not fair. The bastards have a mobility car but they look fine, OMG- they have got new carpets or a new sofa.

since I am guessing they none of the moaners would actually swap places with us if they could then STFU.

oh and that pip that is easy to get- my husband gets lower rate for both and that is despite providing all the evidence and appealing so we are off to tribunal. He can’t even dress himself most days and he can’t hold a pan safely or manage his medication plus many other things. If he stays on the points he is on he will lose his pip completely under these new labour proposals.

but most people know someone who’s friends, aunts, nephews, stepdaughters, cousin twice removed who lied and got it. I was taking to a lady in a wheelchair who does not get any mobility component of pip at all.

Don’t think anyone has agued that benefits need to stop in their entirety. I don’t think anyone has argued the OP shouldn’t be getting them.

Many people seem to be attributing the rising costs of PIP benefit to things like “anxiety” and “depression”.

I don’t believe this is the case as it would be incredibly difficult to get PIP for mental health alone.

I think what happens is lot of people who are approved for it also have depression and/or anxiety as when having a disability that effects you so badly you need PIP to live would make anyone depressed. And people then mistakenly believe it’s because of the mental health conditions.

I think one of the reasons for the rise in need for PIP is that medical advances mean people with complex conditions are more likely to survive now - but this means they are also more likely to have ongoing needs.

So why did I have to fight for it, if its so easy and people can get it for mild depression. Yet people like myself with bipolar and bpd are being denied

PS @Frequency , she describes her situation so eloquently and accurately. I’ve felt those feelings myself. Luckily, not as severe as her and I have managed with medication.

Of course they wouldn't but it isn't that simple. Lots of people (me included) are raising children that have challenges. Children that could probably qualify for some diagnosis if you really pushed it. This grey area is much larger than most people accept. Your child wouldn't become anymore disabled if you sought out a diagnosis or looked to document their struggles in order to claim DLA. We already know that there is a huge blurring of the line between NT and ND and experts have been warning of this for years.

Many people can never afford fancy handbags or holidays. Welfare money is not for that. But you seem to be saying that they dla is for “accommodations” for your daughter which is a different thing

I couldn't have put it better myself, MooseAndSquirrelLoveFlannel, especially as you recognised the "sliding scale" which means that some are genuinely affected badly enough to need benefits

I also agree with the PP who mentioned that it's all too easy to target those unable to advocate for themselves; my son's one of them, but fortunately has me who'll fight like hell for him

What really worries me is all those like OP who'll undoubtably get swept up in the reforms, but that doesn't change the fact they're needed

No thanks. I dread the day I ever get sick. I really do.

I agree- both me and my daughter have a diagnosis of asd. We don’t need benefits and we don’t have extra costs

Are you meaning what parents can write in the forms? There are questions about if the child needs assistance with eating but nothing about their actual diet.

Presumably you can claim it but not actually take the money, like claiming but not taking child benefit gets you pension credits?

I know the questions thanks. You can include if the child needs prompts to make good choices, needs reminding to drink enough fluids and encouraged to eat an appropriate amount (not too much or too little). All of this stuff is pretty standard for kids and teenagers.

I can’t comment on your circumstances as I don’t know them. I do know this woman’s circumstances well though and her depression was mild and she wasn’t getting any particular treatment except meds.

Sorry that there are so many horrible benefit bashing threads on here OP, I’m sorry you and your husband are having unnecessary pressure put on you by the changes to pip and I hope that things work out ok. Love to you and everyone else on this thread who is struggling ❤️

I think you and DH are very brave.My heart goes out to you both.ATM UK has followed the US ,in making everything all about money.So people howl "its not fair" or "hes got more than me" Health is your wealth, is an old saying never more true.I voted Labour to protect the health service ,however didnt expect them to start behaving like a pseudo Tory party cutting benefits for sick and elderly .Take care OP

They won't just get DLA for that though
I have just this morning woken, my 18 year old up.for college and reminded him to.have a shower ,of course t he wouldn't get PIP.for thst!
Compare that to my other son who.is 15 next week I have showered him and brushed his teeth ,dressed him and taken him by hand to put him on school transport ,because cognitively he is around 2/3 years of age .

You can also voluntarily pay the money to the HMRC if you genuinely don't need the money but need to claim to access other help

PIP isn’t an out of work benefit - many working people claim it. It’s to cover the extra costs of disability.

So what descriptors did she fit in to as it has absolutely nothing to do with the diagnosis and what medical evidence did she send in

DLA isn't just for ND children though and I feel like it often comes down to that on here.

Apologies @ArtemisiaTheArtisti quoted the wrong person lol

I know i work and claim pip but what the government is proposing is if you lose pip you also lose lcwra which i use to top up a part time wage for bills my pip is for costs of disability being disabled is very expensive especially when like me you have a rare condition and you have to repeatedly travel to the other side of the country for treatment as your local hospital can't do it

Agree, it’s all the scammers claiming for ‘invisible illnesses’ ( bad back, depression etc etc) that people have an issue with, and there are a lot of them out there

She claimed among other things that she needed prompting to go to the toilet. The whole form was utter nonsense but she was approved with no questions.

and if it is standard compared to their peers then it will be disregarded, especially if it lacks evidence and it's just what the parent is writing.