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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To say dementia is fucking shit

71 replies

Toffeesgirl · 26/04/2025 22:52

I lost my Mum to it a few years ago and now I'm losing my Dad.

its an awful, awful disease, it turns wonderful people into absolute shells of themselves, diluting them day by day,

It is SHIT!

Thats all.

OP posts:
Swiftie1878 · 26/04/2025 22:53

Agreed.
Hope you’re OK ☹️

TobiasForgesContactLense · 26/04/2025 22:54

I am sorry. We are still quite near the start of this journey with my MIL and DH has just returned from a very frustrating day with her. So I agree with you it is shit!

MistressoftheDarkSide · 26/04/2025 22:54

I also sorry x

Sending love and solidarity ❤️

It is shit.

Pagwatch · 26/04/2025 22:54

I’m so sorry. It is hellish. I hope you have some support

Youvebeenframed · 26/04/2025 22:56

It’s a fucking nightmare - it really is.
Sending strength and gin 💐

LifeOfBriony · 26/04/2025 22:56

It’s awful, frustrating and desperately sad.

Solidarity ❤️

TheodoraCrumpet · 26/04/2025 22:56

Sorry. Yes, it's shittier than shit.

Toffeesgirl · 26/04/2025 23:00

Thank you and hugs to anyone going through it too.

OP posts:
CustardySergeant · 26/04/2025 23:27

It's my biggest fear for my husband and myself. He's 78 and I'm 71. It must be a living hell, both for the sufferer and those who love them/look after them. It's a terrifying condition.

StopStartStop · 26/04/2025 23:28

It's scary when you're alone and know it's coming.

CharlieBoff · 26/04/2025 23:32

Lost my mum to it last year. It is total and utter shit.

sending you strength and hugs x

randomchap · 26/04/2025 23:46

It's fucking shit

My heart goes out to you

Get all the support you can

Kittkats · 26/04/2025 23:49

StopStartStop · 26/04/2025 23:28

It's scary when you're alone and know it's coming.

Is this happening to you? I can’t imagine how terrifying that must be. ❤

NewJobNewMeNewLife · 26/04/2025 23:49

It’s shit.
I do get some comfort from thinking it is often worse for those around them, than the sufferer themselves.
it obviously dependent on the situation, but my loved one is mainly content and not angry or distressed and largely oblivious to what is happening and what is to come. I realise though not everyone is so lucky.
elderly parents board has been a source of support.

ChicGreyZebra · 26/04/2025 23:53

I’m so sorry - I lost my dad to dementia and it was really fucking awful. I wish I could help. Or give you a hug.

Icanthinkformyselfthanks · 26/04/2025 23:53

I lost my mum to this cruel disease too. I’m sorry for what you’re going through it’s so hard. Sending solidarity hugs. X

hazelowens · 26/04/2025 23:56

We lost my mum when my dad was 70, it turned out she had been hiding the fact he had dementia. My sister and I tried to care by for him but he was going for walks in his bare feet waiting for the spar to open. It opened af 7 and he was there at 5.30. he was phoning me at daft o'clock as I hadn't come up to shower him. It was 2am.

He is now in a nice nursing home living his best life and he is happy.

Mydogmylife · 26/04/2025 23:57

It’s just shit you’re so right! Lost my dad to vascular dementia and it was a nightmare- sympathy to any one suffering themselves or caring for loved ones

Hoydenish · 26/04/2025 23:59

It is very shit.

TwistedWonder · 27/04/2025 00:03

It really is shit. My dad was diagnosed 3 years ago and it’s so sad to see someone who was such a bright, witty, intelligent mam who ran his own business now have a co guard look on his face as he struggles to make sense of what’s happening.
And it’s so hard on my mum who is still sharp as a tack in her 80’s to live with this 24/7 - it’s like having a toddler who can’t be left alone even for a couple of hours.

Its a bastard way to end up on your twilight years

JustTalkToThem · 27/04/2025 00:05

My mam died of lung cancer. My dad died after dementia.

I never in my life thought there could be something worse than cancer.

EnhancedVampireEyeballs · 27/04/2025 00:05

It's awful, and painful, and harrowing. I've had too many loved ones struggle through it. I could cry. Nana, Granda, Great Aunt, Great Uncle, Auntie who doted on me.

Thisisittheapocalypse · 27/04/2025 00:12

I'm sorry 😞

PluckyBamboo · 27/04/2025 00:12

100%, we're heading to the end of MIL's 5+ (probably 8 in reality) torturous journey now, she is nothing but a shell with a functional cardio-vascular system.

outerspacepotato · 27/04/2025 00:17

It really is a hellish way to go and just horrible for family. My MIL had it.