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Share your dilemmas and get honest opinions from other Mumsnetters.

To be sick of all the newspaper articles saying lies about DLA and PIP

1000 replies

elliejjtiny · 08/04/2025 22:37

To get any DLA or PIP you have to be significantly disabled. To get the higher rate of either part you have to be severely disabled.

A motability car is not free, it's rented. To get one you need to either be unable to walk 50 metres or have a severe learning disability, which is very difficult to get.

It's always happened but since the stuff in the news about changes to PIP it's got worse.

Articles in the newspapers claiming you can get a free car for bed wetting, which just doesn't happen. There will be children like my ds who get DLA because they have a number of problems including bedwetting but nobody gets high rate mobility for bed wetting on its own.

There are other articles about people claiming PIP and DLA for various minor sounding conditions and I am so fed up with it. I know from experience that the newspapers will have talked to people claiming PIP/DLA and twist everything they say to make them sound like a scrounger.

All these articles are giving off the message that anyone with any minor disability can claim loads of benefits.

OP posts:
Thread gallery
14
Wildflowers99 · 12/04/2025 17:58

PensionedCruiser · 12/04/2025 17:27

And that, my dear, is exactly why we 'cannot afford' to pay disability benefits. People are too selfish to consider society as a whole and politicians will not deal with long term financial problems because doing so is a vote loser.

Local authorities are not strapped for cash because of SEN and disabled people. They are struggling because of caring for the elderly - the demographic time bomb that is becoming more and more real. Those who 'tax plan' their estates to avoid elder care costs are at the root of the problem.

We know what to do - set up a national care service like the NHS and pay for it properly out of increased taxation. It's time we stopped being blinkered and put a stop to political 'kicking the can down the road'. Yes, I would vote in favour because it is the right thing to do - who else would?

You’d vote for it as ‘pensioned cruiser’ because it would benefit you at the expense of skint NMW families. Obviously.

Wildflowers99 · 12/04/2025 17:58

OonaStubbs · 12/04/2025 17:16

What if people won't vote for higher taxes?

They won’t, and rightly so.

Wildflowers99 · 12/04/2025 18:00

WalkingonWheels · 12/04/2025 16:47

When I dared to suggest that people should plan accordingly before having children, and ensure they had enough money to support said children as well as secure housing, I was told I was ridiculous.

It's madness, really. We support people who keep breeding with absolutely no means or intention of providing for the multiple children they have, but I had to lie on the floor for seven hours yesterday until my husband came home, because I fainted off my wheelchair in pain and couldn't get up of the floor. If I had the care I should have but can't afford, because my only income is £400 a month PIP, I wouldn't be in hospital now, having a flare up of my illness, hurt and defeated, wasting NHS resources. At least there's food here in hospital, which is more than I can afford at home.

I agree with you completely. More individual responsibility rather than creating a completely foreseeable problem then throwing yourself at the mercy of the state, would be nice. There are families near me where all of their kids are on DLA and they are ‘struggling to cope’ yet expecting another baby..

Wildflowers99 · 12/04/2025 18:01

PandoraSox · 12/04/2025 16:56

How do we get an extra 5 billion a year?

Raise taxes. If we want decent services, we need to pay more tax. But Labour isn't brave enough to do it.

The Tories tried to slash the welfare budget. The policy raised less than half the aimed amount and clearly changed nothing in the longer term.

The PIP changes will be self defeating too. Everyone will be appealing the loss of it, for a start. How much will that all cost? Then there is the impact on unpaid carers and the cost attached to that.

You seem very angry.

I wonder if it is because you don't want to recognise that there really are people out there who despise disabled people and see them as lesser beings. If you think there aren't, you are naive. There has been hate spewed on MN, not just "concern" expressed at the size of the benefits bill.

Edited

Which taxes and by how much?

I’m not angry at all. I haven’t sworn at anyone or used pure insults, which is far more than can be said for most of my respondents.

I always think ‘you seem very angry’ is such a boring, sexist response. Like women can’t be anything other than simpering and agreeable without being ‘angry’ cos god forbid

GivenUpOnSleep · 12/04/2025 18:02

Sirzy · 12/04/2025 16:18

It’s the same with SEN appeals too. The percentage of appeals that win is very high (over 90% in some LAs) yet they spend a fortune fighting, and leaving children unsupported, rather than getting provision correct from the off.

So many of the issues could be resolved if we got things right from the off rather than waiting until things reach crisis point and then trying to fix it. Proper access to early portage and support for parents of children with disabilities could make a massive difference to outcomes and as such mean some children need less support further down the line.

It’s over 99% across the country per the article in The Times today, so very clear evidence of a policy of deliberate law breaking by Local Authorities.

TigerRag · 12/04/2025 18:02

Wildflowers99 · 12/04/2025 17:57

Sorry but this is a load of rubbish.

Why should working people struggling to get by be called selfish for not wanting to pay yet more toward people with disabilities, who frankly have more than their fair share.

1% of the highest earners pay 30% of all income tax. We have the highest tax burden since WW2. Elderly care takes the majority of social care from council tax but not by a big leap - mostly it’s something like 60:40.

We have the equivalent of the population of Scotland on disability benefits and many houses get over £40,000 in benefits. It’s a piss take to say we need to give more.

Yeah sorry for having the audacity to be born with a rare genetic disease and costing the NHS and DWP so much money which would have been far less if my parents concerns had been listened to 30 years ago

Part of the issue for me was rye lack of support with finding work and then placed on an accessible work programme

Golaz · 12/04/2025 18:07

Wildflowers99 · 12/04/2025 17:57

Sorry but this is a load of rubbish.

Why should working people struggling to get by be called selfish for not wanting to pay yet more toward people with disabilities, who frankly have more than their fair share.

1% of the highest earners pay 30% of all income tax. We have the highest tax burden since WW2. Elderly care takes the majority of social care from council tax but not by a big leap - mostly it’s something like 60:40.

We have the equivalent of the population of Scotland on disability benefits and many houses get over £40,000 in benefits. It’s a piss take to say we need to give more.

for not wanting to pay yet more toward people with disabilities, who frankly have more than their fair share
Are you for real? You think the world is disproportionately fair to disabled people? They’re the “have mores”?!

IWonderWhereMySharkPantsWent · 12/04/2025 18:07

Wildflowers99 · 12/04/2025 14:17

That’s very vague. Can you give me a list of practical, tangible things you would like implemented?

Scrap SATs. They serve schools only, they put 10/11 yr old children under great pressure from the end of year 5 onwards, and often have ramifications on their mental health as they enter high school.

Introduce more flexible attendance targets so they work with the children, not the government who dictate unrealistic standards that many children, particularly those with SN, cannot attain. Stop rewarding 100% attendance as this is discriminatory and often rewards children whose parents have sent them in to school ill.

Stop locking loos up. Supervise them better if necessary.

Introduce better procedures to deal with bullying effectively. Very often ND kids are bullied by popular NT kids and teachers turn a blind eye. Anyone bullying should face consequences whoever they are. If it doesn’t stop then escalate it.

Teaching has changed in the last 20 years. It used to be fairly flexible so the children who needed to be pushed were pushed, those who needed a more flexible approach and more encouragement got that. It’s far more a one size fits all situation now.

Allow more schooling options so that more children’s needs can be met. Academies have been great for some, but disastrous for others, even if their GCSE results are good. I know too many children (including my own) who were really harmed by an academy. Unfortunately over the last few years the behaviour policies of them have dripped into LA mainstream schools.

Stop having old etonians who have zero idea of 1. how mainstream schools work and 2. how the “other half” live.
Instead (and this should apply to the NHS too) there should be a panel filled with people who’ve worked in all aspects of education, and include disabled ex pupils who can advise on their experiences.

Give schools more autonomy over the rules they set. Some schools have higher numbers of SN, some have higher rates of very academic children, schools should be trusted to deliver lessons in a way that their pupils will best respond to.

For children who school refuse there should be greater understanding of the stress they are under, and more flexibility around the approach to schooling for them. Give them the respect that adults have around work - more options, allowed to take sick days without being punished and having threats of court and fines.

Look at approaches that other countries take that work, but ideally not try to implement Chinese methods on children who are not brought up in a hothousing communist country.
We have the infrastructure of schools, we could slowly introduce methods that work well elsewhere, but remembering to drop the methods that don’t work (schools seem to pile strategies on top of strategies without dropping the redundant ones, which must been pointless work for teachers and overwhelm for children).

Reopen 14+ colleges. Let them be valid options for disengaged children who may fare better if they can learn a trade. Our nearest is now a 2.5 hour bus ride away which my ds could not cope with. The one 20 minutes drive away was closed.

More flexibility around uniform. Options of polo shirts instead of uncomfortable shirt and tie would make life easier for many children and would look just as smart.

Most schools now have a few quiet areas for children who need them, but very often gatekeep them and stop pupils using them. Let them be used freely. If a child struggles to be in school all day let them go to a quiet room - they’re already supervised, let them go. If these children know that this is always an option they will feel less stressed overall and will be more likely to engage.

Turn off smart boards when not in use.

Have areas in the classroom with dimmer lighting. Check fluorescent type lighting, (or whatever it is that they use) there are usually flickers which are overwhelming.

Remove the acres of shiny laminated shit on the walls - it may be educational shit but after the first week everyone is blind to it apart from the poor autistic kids who are over stimulated by it! OFSTED really fucked up dictating that every square inch be covered in educational material. A few posters up, but a nice calm classroom would benefit most.

Options around seating. Some thrive in groups, some on their own. Mix it up, allow children to learn what works best for them.

Ban phones on school property.

Thats a few to start off with. There are so many things within schools that raise stress levels for many pupils, not just those with SN.

It’s very possible that a better approach using what we know about children would serve them all better, and may mean that teachers aren’t seeing more and more extreme behaviour in the classroom.

The whole thing is a shambles. I know so many teachers who left because they no longer wanted to be part of a system that lets down so many children.

It’s no wonder so many are mentally struggling - teachers and pupils!

PandoraSox · 12/04/2025 18:09

Wildflowers99 · 12/04/2025 18:01

Which taxes and by how much?

I’m not angry at all. I haven’t sworn at anyone or used pure insults, which is far more than can be said for most of my respondents.

I always think ‘you seem very angry’ is such a boring, sexist response. Like women can’t be anything other than simpering and agreeable without being ‘angry’ cos god forbid

Edited

I have no issue with angry women. I am prone to getting a bit narked myself.

Golaz · 12/04/2025 18:12

IWonderWhereMySharkPantsWent · 12/04/2025 18:07

Scrap SATs. They serve schools only, they put 10/11 yr old children under great pressure from the end of year 5 onwards, and often have ramifications on their mental health as they enter high school.

Introduce more flexible attendance targets so they work with the children, not the government who dictate unrealistic standards that many children, particularly those with SN, cannot attain. Stop rewarding 100% attendance as this is discriminatory and often rewards children whose parents have sent them in to school ill.

Stop locking loos up. Supervise them better if necessary.

Introduce better procedures to deal with bullying effectively. Very often ND kids are bullied by popular NT kids and teachers turn a blind eye. Anyone bullying should face consequences whoever they are. If it doesn’t stop then escalate it.

Teaching has changed in the last 20 years. It used to be fairly flexible so the children who needed to be pushed were pushed, those who needed a more flexible approach and more encouragement got that. It’s far more a one size fits all situation now.

Allow more schooling options so that more children’s needs can be met. Academies have been great for some, but disastrous for others, even if their GCSE results are good. I know too many children (including my own) who were really harmed by an academy. Unfortunately over the last few years the behaviour policies of them have dripped into LA mainstream schools.

Stop having old etonians who have zero idea of 1. how mainstream schools work and 2. how the “other half” live.
Instead (and this should apply to the NHS too) there should be a panel filled with people who’ve worked in all aspects of education, and include disabled ex pupils who can advise on their experiences.

Give schools more autonomy over the rules they set. Some schools have higher numbers of SN, some have higher rates of very academic children, schools should be trusted to deliver lessons in a way that their pupils will best respond to.

For children who school refuse there should be greater understanding of the stress they are under, and more flexibility around the approach to schooling for them. Give them the respect that adults have around work - more options, allowed to take sick days without being punished and having threats of court and fines.

Look at approaches that other countries take that work, but ideally not try to implement Chinese methods on children who are not brought up in a hothousing communist country.
We have the infrastructure of schools, we could slowly introduce methods that work well elsewhere, but remembering to drop the methods that don’t work (schools seem to pile strategies on top of strategies without dropping the redundant ones, which must been pointless work for teachers and overwhelm for children).

Reopen 14+ colleges. Let them be valid options for disengaged children who may fare better if they can learn a trade. Our nearest is now a 2.5 hour bus ride away which my ds could not cope with. The one 20 minutes drive away was closed.

More flexibility around uniform. Options of polo shirts instead of uncomfortable shirt and tie would make life easier for many children and would look just as smart.

Most schools now have a few quiet areas for children who need them, but very often gatekeep them and stop pupils using them. Let them be used freely. If a child struggles to be in school all day let them go to a quiet room - they’re already supervised, let them go. If these children know that this is always an option they will feel less stressed overall and will be more likely to engage.

Turn off smart boards when not in use.

Have areas in the classroom with dimmer lighting. Check fluorescent type lighting, (or whatever it is that they use) there are usually flickers which are overwhelming.

Remove the acres of shiny laminated shit on the walls - it may be educational shit but after the first week everyone is blind to it apart from the poor autistic kids who are over stimulated by it! OFSTED really fucked up dictating that every square inch be covered in educational material. A few posters up, but a nice calm classroom would benefit most.

Options around seating. Some thrive in groups, some on their own. Mix it up, allow children to learn what works best for them.

Ban phones on school property.

Thats a few to start off with. There are so many things within schools that raise stress levels for many pupils, not just those with SN.

It’s very possible that a better approach using what we know about children would serve them all better, and may mean that teachers aren’t seeing more and more extreme behaviour in the classroom.

The whole thing is a shambles. I know so many teachers who left because they no longer wanted to be part of a system that lets down so many children.

It’s no wonder so many are mentally struggling - teachers and pupils!

I couldn’t agree with all of this more. Can we vote you into office please?

WalkingonWheels · 12/04/2025 18:52

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Sirzy · 12/04/2025 18:56

It’s a sad reflection on any society when the automatic response to “we need to save money” is “make life harder for the most vulnerable”

Golaz · 12/04/2025 19:07

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

💔 💔
I’m so sorry. Please don’t leave- at least not thinking that this is mumsnet or how people really think. That pp doesn’t have a blessed clue - she wouldn’t say things like this if she was living in reality, so the only way to make sense of it is to understand that she has her head entirely in the clouds. Maybe on the fantasy planet on which she lives the disabled people are the ones who have it all .

I’m so sorry for all you are dealing with , honestly, and that to top it off you just had to read those words. Sending you love. You deserve proper healthcare, and proper social care, and so much more income on which to live that £400 a month. ❤️‍🩹

Golaz · 12/04/2025 19:14

Ok if there is anything this thread has taught me- we need much more bloody PIP!

ruethewhirl · 12/04/2025 19:30

Golaz · 12/04/2025 19:07

💔 💔
I’m so sorry. Please don’t leave- at least not thinking that this is mumsnet or how people really think. That pp doesn’t have a blessed clue - she wouldn’t say things like this if she was living in reality, so the only way to make sense of it is to understand that she has her head entirely in the clouds. Maybe on the fantasy planet on which she lives the disabled people are the ones who have it all .

I’m so sorry for all you are dealing with , honestly, and that to top it off you just had to read those words. Sending you love. You deserve proper healthcare, and proper social care, and so much more income on which to live that £400 a month. ❤️‍🩹

Edited

Hear, hear. Wildflowers seems to be on a mission to upset people and she went too far with that comment. If anything needs deleting on this thread, it’s her vile ‘more than their fair share’ comment, oh and the one about who is ‘essential’ to society and who supposedly isn’t. Although she’s spat so much bile by now that I’ve actually lost track of whether that was on this thread or another one.

I can certainly see why you feel done with Mumsnet @WalkingonWheels, given the tone of some threads on here lately I do too atm, but don’t give Wildflowers the satisfaction of being the reason, her pathetic jibes aren’t worth it.

Golaz · 12/04/2025 19:35

ugh I wish @WalkingonWheels comment hadn’t been deleted. It was so raw and powerful and people need to understand the true reality of these things.

Sirzy · 12/04/2025 19:39

The fact that Wildflowers continual stream of ableist posts have been allowed to stand sadly says a lot about MNHQ

ruethewhirl · 12/04/2025 19:39

Golaz · 12/04/2025 19:35

ugh I wish @WalkingonWheels comment hadn’t been deleted. It was so raw and powerful and people need to understand the true reality of these things.

Totally agree.

Differentstarts · 12/04/2025 19:46

Sirzy · 12/04/2025 19:39

The fact that Wildflowers continual stream of ableist posts have been allowed to stand sadly says a lot about MNHQ

Agree

ruethewhirl · 12/04/2025 19:50

Sirzy · 12/04/2025 19:39

The fact that Wildflowers continual stream of ableist posts have been allowed to stand sadly says a lot about MNHQ

I think so too.

mintydoggyv · 12/04/2025 19:53

What ever is on this thread means Nothing what was there before is still here and nothing has changed . P.i.p remains and so still all other benifits. All our disabled will still be looked after as know . As for the green paper on p.i.p benifits it will change any way and the papers are great at stirring things up and tv . The final version will be very different than the green paper is at the moment . Stand fast do answer any more on this thread

PandoraSox · 12/04/2025 20:17

Sirzy · 12/04/2025 19:39

The fact that Wildflowers continual stream of ableist posts have been allowed to stand sadly says a lot about MNHQ

Agree.

WeylandYutani · 12/04/2025 20:24

Sirzy · 12/04/2025 19:39

The fact that Wildflowers continual stream of ableist posts have been allowed to stand sadly says a lot about MNHQ

Also agree.
I saw WalkingOnWheels post before it was deleted. I really hope it got to its target audience but if it did, I suspect they will come up with some reason about how the cuts are still justified and will continue to spout their vitriol on other threads. They are on every thread to do with benefits.

Golaz · 12/04/2025 20:31

WeylandYutani · 12/04/2025 20:24

Also agree.
I saw WalkingOnWheels post before it was deleted. I really hope it got to its target audience but if it did, I suspect they will come up with some reason about how the cuts are still justified and will continue to spout their vitriol on other threads. They are on every thread to do with benefits.

They’ve been quiet since then, so I’m thinking they read it and finally might have thought twice about what they were actually saying. But maybe I’m naive…

NoSherbert · 12/04/2025 20:33

I don’t have a learning disability and can walk
and I have motability car. Just saying

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