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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Sick of worrying. It’s absolutely destroying me

39 replies

Savedbythebell1982 · 30/03/2025 18:36

Posting for traffic and apologies for the long post.

I’ll preface by saying I have severe anxiety, particularly health anxiety, and have had for many years. Over the past 15 years I’ve become fixated on lots of health conditions that I’ve convinced myself that either I or my children have. I google and google and google and find myself down a rabbit hole where I am able to join many dots (even those that aren’t really there) and convince myself of a diagnosis. The most recent being autism. My son is 6.5 and a bilateral hearing aid user. This came as a huge shock after his birth and triggered a huge spiral into anxiety and depression once again for me. I have over the years, been medicated, seen professional counselors and had CBT. Nothing seems to offer me a permanent fix. Guess what I’m trying to say is that I’m very aware that this is likely a ‘me’ problem. But I just want to make sure this isn’t masking a real issue with my son. My family are all convinced it’s the former and that he’s absolutely fine but I am absolutely overwhelmed with worry about him. My main concerns are:

he was late to talk (2.5 years) and point (2 years). But once the talking started it didn’t stop. He’s very articulate and no issues with communication now. He is an excellent reader (reading to a high level for his age) and despite some minor issues with his fine motor skills, his writing and maths has come on tremendously and he is now where he need to be for his age. Huge progress over the past six months.

He stims when he’s excited (or what I think is stimming). He jumps or runs about occasionally flapping hands with it and making noises. This usually only happens when he’s very overstimulated and excited/anticipating excitement and he doesn’t seem compelled to do it, rather that he enjoys it and can easily be distracted away from it. He is generally a very excitable and happy child

he mutters under his breath and occasionally repeats something that he or someone else has just said, sometimes in a different intonation. Sometimes it is like he is thinking out loud. My DH thinks this is related to his hearing loss

School raised some concerns in year one about his social interactions and potential issues with social cues. As you can imagine this sent me into a spiral. Anyway, SENCO and teacher of deaf did assessment and all parties agreed that his issues were related to his hearing. They put in some strategies and he is like a different child. He does not seem to have any issues now and has lots of friends and is very very happy at school.

he can sometimes be a bit bossy and want to be in charge when playing with his brother or friends. He does understand about taking turns/sharing and that other people can have different perspectives/preferences to him. He won’t insist on always playing his preferred games etc but he probably prefers it if he does in all honesty. He’s much better at embracing other people’s ideas and games now than he used to be.

He used to be a poor loser and to always want to be first when playing games etc but he seems to have grown out of that now

He doesn’t have any sensory issues or ridgity around routines etc. If anything he embraces the novelty of anything new and exciting. Loves to have other children to play with. Loves a party, play date, trips out, lunch in cafes, loud music and dancing. He doesn’t seem to have any trouble making friends, whether at the park or at his clubs etc. He is also very content to be dropped at his after school clubs or social gatherings where a parent isn’t present. He doesn’t have meltdowns (perhaps the odd temper but nothing unusual for his age). He loves toilet talk and doesn’t seem to have fixed or narrow interests, his interests are varied and at the moment he is enjoying learning about the titanic at school. He loves Lego, football, going to the beach, watching movies etc. He is very sensitive about emotions and will always notice if someone is upset and give kisses and cuddles and want to know if that person is ok. Eye contact generally fine I think. He understands the intricacies of speech beyond his years in my opinion, he isn’t literal and understands jokes and figure of speech/idioms (to a point - he is only 6). He has also been known to tell white lies without any trouble.

Please tell me if this is indeed a me problem or do I do I actually need to be concerned? I hate feeling like this, it seems to be robbing me of the enjoyment of my son and being a mother and I absolutely hate it. But I don’t know how to make it stop.

OP posts:
Savedbythebell1982 · 30/03/2025 19:18

Anyone? Totally appreciate my long message has put people off

OP posts:
Savedbythebell1982 · 30/03/2025 20:11

Would really appreciate any advice or thoughts

OP posts:
MrsClatterbuck · 30/03/2025 20:13

Bumping for you

Boredzebra · 30/03/2025 20:13

Hypochondria

Zapx · 30/03/2025 20:14

He sounds lovely. What would your plan be even if he did meet the criteria for an assessment?

FedUpandEatingChocolate · 30/03/2025 20:16

Honestly, no-one can diagnose from a Mumsnet post. If you're really concerned then talk to the SENCO and ask for a referral for an assessment.

I recommend you also have some talking therapy to manage your anxiety. Focus on your wonderful boy and the support he needs to navigate the world with hearing loss.

An autism diagnosis is not the end of the world, your son will still be your son. We've just had our DD diagnosed and it's changed absolutely nothing! It just makes sense of some of her behaviours.

AtrociousCircumstance · 30/03/2025 20:17

He sounds absolutely fine Op! Any issues he may have had were hearing related and have been sorted with appropriate support.

He sounds like a wonderful kid, and you sound like a very caring mum.

So - in short, stop worrying!

Fieldings15 · 30/03/2025 20:19

I don’t know much about this, but do also have a 6 year old boy who has sometimes displayed neurodivergent type behaviours in the past but in general I think is neurotypical- similar to your ds. My boy can have meltdowns, even now, is fairly rigid about rules, used to play in quite a repetitive way (endless lining up of his cars) and chews his cuffs all the time (maybe stimming)? However socially he has always acted fine - friends at school, he has a good sense of humour, imagination, is doing very well with reading, writing and maths. Also went to nursery, preschool and school and nothing has ever been flagged. Overall I’m not too concerned but am keeping an eye on things. I think if they are generally happy, healthy, and doing well at school then try not to worry (easier said than done I know). I’m a born worrier, diagnosed with OCD as a teenager and have been on medication most of my adult life - I know it’s not for everyone but medication has transformed my life. Hope this helps, it’s really hard being a parent sometimes!

ThreeSeaShells · 30/03/2025 20:21

ASD wait lists aren't so bad now, so you can wait a while, but counselling and CBT aren't 'permanent fix' psychotherapies, so they won't be any help to you. Psychodynamic or psychoanalytic therapy might help you get to the root of the struggle for you, and if after a few years of that, you're still worried about DS, get the assessment.

Createausername1970 · 30/03/2025 20:26

No-one can say for sure on here.

But what difference would it make if he did have autism? From what you say he does display some traits, but not to a huge degree. He also seems to be quite high functioning if he is, and has been catching up really well.

My advice is to love, cherish and enjoy the child you have in front of you, with all their quirks and idiosyncrasies.

Let time take it's natural course.

Make a diary note for six months time to reread this thread and see if the same things are still worrying you.

But regardless of what occurs with your son, you sound like you could benefit from a bit of counselling to address your own anxieties. If you can get these under control then it will make it easier to be more pragmatic.

Sevendust · 30/03/2025 20:29

Oh, OP Sad
You sound like me 5 years ago, in fact I could have written it myself. I was convinced that my daughter had a health condition and that my house had subsidence (neither of which were true, but like you, I looked for the dots to join up and googled myself silly). I couldn't enjoy even the happiest of days, there was always a sick feeling in my stomach. Over the space of 10 years I had numerous talking therapies for anxiety, none of which helped me at all.

5 years ago I was diagnosed with a form of OCD, much to my shock! I was prescribed Sertraline for the relentless obsessive thoughts. After a few weeks, I felt like someone had pressed the "re-start" button on my brain. There were always a million tabs open, so many worries and what-ifs... But all of a sudden, I could think clearly! It was such a strange and wonderful feeling. I am still doing very well, and can't even recognise the person I used to be. I'm so calm!

I don't work for a pharmaceutical company, I promise!! But please, have a chat with your GP. You don't have to feel like this. Sending you lots of good wishes, I remember how awful I used to feel and it was exactly as you describe x

Edit to add: What the poster below me has said is exactly how I would view the same situation now that I'm "better"

Wibblywobblybobbly · 30/03/2025 20:33

A question to ask yourself: does it actually matter if your son has autism? You say yourself that he's a happy child who's doing pretty well at school, enjoys new experiences and has friends. Even if he were diagnosed as autistic it wouldn't change any of that. He is who he is, and it sounds like he's a lovely boy leading a happy life. I think that's what you need to focus on, not what labels may or may not apply.

Illprobsregretthis · 30/03/2025 20:38

Oh, friend - I’m sorry you’re going through this. When I read your post, it sounded to me like you were just describing his personality - things like being a bad loser, enjoying socialising etc - they could also describe millions of other people and don’t ring any alarm bells for me.

I think the best idea is to put the phone down and try to forget about it tonight and get some sleep. You very much sound like you’re in an anxiety spiral and by the time you get to post on a forum, you’re looking for reassurance and are way past the point of return. From personal experience, posting always made me more anxious because I overanalysed every reply and just got myself into such a state. Have you heard about “pure O” OCD - where you constantly ruminate on certain thoughts and look for reassurance? It really sounds like your behaviour based on what you said about searching for things online,

Kindly, I think you know this is your anxiety acting up. And even if there is something, what can be done about it tonight? Will it change the way you love him? No, you’ll do your absolute best and find a solution and the best way forward, as you have done so far with every other problem you’ve ever had.

I also suffer with health anxiety so I know what you’re going through. But I do think it’s time to stop obsessively refreshing this thread and go distract yourself. Sending love x

Picklepower · 30/03/2025 20:38

Even if he does have autism he is happy and learning and sounds like he's doing great. What about that would you change if he got some kind of diagnosis?

Illprobsregretthis · 30/03/2025 20:40

Sevendust · 30/03/2025 20:29

Oh, OP Sad
You sound like me 5 years ago, in fact I could have written it myself. I was convinced that my daughter had a health condition and that my house had subsidence (neither of which were true, but like you, I looked for the dots to join up and googled myself silly). I couldn't enjoy even the happiest of days, there was always a sick feeling in my stomach. Over the space of 10 years I had numerous talking therapies for anxiety, none of which helped me at all.

5 years ago I was diagnosed with a form of OCD, much to my shock! I was prescribed Sertraline for the relentless obsessive thoughts. After a few weeks, I felt like someone had pressed the "re-start" button on my brain. There were always a million tabs open, so many worries and what-ifs... But all of a sudden, I could think clearly! It was such a strange and wonderful feeling. I am still doing very well, and can't even recognise the person I used to be. I'm so calm!

I don't work for a pharmaceutical company, I promise!! But please, have a chat with your GP. You don't have to feel like this. Sending you lots of good wishes, I remember how awful I used to feel and it was exactly as you describe x

Edit to add: What the poster below me has said is exactly how I would view the same situation now that I'm "better"

Edited

Ah I just suggested the OP might have OCD! I also suffer with terrible rumination and reassurance seeking. I find by the time I’m posting on MN or Reddit I’m way too far gone to be reasoned with! How do you cope with your OCD now?

Chungai · 30/03/2025 20:41

Is your son happy?

Is he doing well?

It sounds like it, in which case you're winning.

There are parents out there whose kids are not happy and not doing well. Leave the worrying to them.

Savedbythebell1982 · 30/03/2025 20:46

Thanks to everyone who has taken the time to reply, I really am thankful. I know I need to address my anxiety first and foremost. I’m not burying my head in the sand about that, I’m just not sure where to go next. I’ve been to my GP countless times, had numerous talking therapies, CBT and antidepressants/anti anxiety meds and it just doesn’t seem to get to the root of the problem, or it helps for a while and then something triggers it all off again. I can read something online about someone else/another child and that will spark something in my brain to think that this is something that I or, since becoming a mother, the kids have. I worried terribly about autism when DS was a baby until he was about 2 as he was late talking (clearly as a result of his hearing loss but I couldn’t see the wood for the trees at the time) my worries then subsided when the talking started and he seemed absolutely fine and I didn’t give it a second thought again until last few months when all that stuff started at school. Thankfully the issues at school were a short lived thing at school but this has done its damage on me and now I can’t seem to look past it.

I know it won’t change who my son is if he is diagnosed. He is and always will be the center of my universe along with his brother. But I can’t bear the thought of another diagnosis, something else that makes him ‘different’ or could cause his life to be more challenging. I found it very difficult to come to terms with his hearing loss when he was born and I truly believe that I have some trauma surrounding that. I worry about how his life will turn out, it breaks my heart to think he could face a lifetime of struggle which is why I think I feel such overwhelming anxiety about it

OP posts:
Marieb19 · 30/03/2025 21:02

He sounds like a very normal little boy. Your anxiety is the issue. It's you thag needs help

Savedbythebell1982 · 30/03/2025 21:31

Without wanting to self diagnose myself (once again) the pure OCD definitely sounds like it fits

OP posts:
ssd · 30/03/2025 21:36

I ruin my life by worrying too much too op. I hate it.

ssd · 30/03/2025 21:37

Healthy anxiety here too. Awful.

Savedbythebell1982 · 30/03/2025 21:40

@ssd totally agree, it’s stolen the past 15 years of my life and has totally overshadowed my whole mothering experience. It breaks my heart to think that I will never get this time back

OP posts:
Illprobsregretthis · 30/03/2025 22:04

Savedbythebell1982 · 30/03/2025 21:31

Without wanting to self diagnose myself (once again) the pure OCD definitely sounds like it fits

Yeah I thought I was just suffering with “normal” anxiety and was confused as to why the usual CBT techniques weren’t working. I remembered having quite bad intrusive thoughts when I was a teenager and I doing some compulsions - like flicking on and off a light before leaving a room etc - and it led me to consider OCD. I googled it and ended up finding out about pure O and it really fit with what I was experiencing. For me it was the reassurance seeking and ruminating over every possible outcome. I remember reading an article where an OCD specialist lamented the existence of Reddit because he was like, basically everyone is seeking reassurance!! There’s a few Facebook groups for people who suffer with it where we keep each other accountable. You could post about your experience and see if it fits?

Savedbythebell1982 · 30/03/2025 22:22

The intrusive thoughts, rumination and desperation for reassurance are all absolutely me. I also used to get intrusive thoughts as a young teenager, I worried my parents would die (possibly at my hand) and that I was gay being the main two. This is making some sense

OP posts:
Savedbythebell1982 · 30/03/2025 22:24

I hate analyzing every little thing my DS does and attributing it to a potential diagnosis instead of celebrating and enjoying him for who he is. I hate the person it has made me become, I feel like I’m not the mother I should be because of it

OP posts: