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Sick of worrying. It’s absolutely destroying me

39 replies

Savedbythebell1982 · 30/03/2025 18:36

Posting for traffic and apologies for the long post.

I’ll preface by saying I have severe anxiety, particularly health anxiety, and have had for many years. Over the past 15 years I’ve become fixated on lots of health conditions that I’ve convinced myself that either I or my children have. I google and google and google and find myself down a rabbit hole where I am able to join many dots (even those that aren’t really there) and convince myself of a diagnosis. The most recent being autism. My son is 6.5 and a bilateral hearing aid user. This came as a huge shock after his birth and triggered a huge spiral into anxiety and depression once again for me. I have over the years, been medicated, seen professional counselors and had CBT. Nothing seems to offer me a permanent fix. Guess what I’m trying to say is that I’m very aware that this is likely a ‘me’ problem. But I just want to make sure this isn’t masking a real issue with my son. My family are all convinced it’s the former and that he’s absolutely fine but I am absolutely overwhelmed with worry about him. My main concerns are:

he was late to talk (2.5 years) and point (2 years). But once the talking started it didn’t stop. He’s very articulate and no issues with communication now. He is an excellent reader (reading to a high level for his age) and despite some minor issues with his fine motor skills, his writing and maths has come on tremendously and he is now where he need to be for his age. Huge progress over the past six months.

He stims when he’s excited (or what I think is stimming). He jumps or runs about occasionally flapping hands with it and making noises. This usually only happens when he’s very overstimulated and excited/anticipating excitement and he doesn’t seem compelled to do it, rather that he enjoys it and can easily be distracted away from it. He is generally a very excitable and happy child

he mutters under his breath and occasionally repeats something that he or someone else has just said, sometimes in a different intonation. Sometimes it is like he is thinking out loud. My DH thinks this is related to his hearing loss

School raised some concerns in year one about his social interactions and potential issues with social cues. As you can imagine this sent me into a spiral. Anyway, SENCO and teacher of deaf did assessment and all parties agreed that his issues were related to his hearing. They put in some strategies and he is like a different child. He does not seem to have any issues now and has lots of friends and is very very happy at school.

he can sometimes be a bit bossy and want to be in charge when playing with his brother or friends. He does understand about taking turns/sharing and that other people can have different perspectives/preferences to him. He won’t insist on always playing his preferred games etc but he probably prefers it if he does in all honesty. He’s much better at embracing other people’s ideas and games now than he used to be.

He used to be a poor loser and to always want to be first when playing games etc but he seems to have grown out of that now

He doesn’t have any sensory issues or ridgity around routines etc. If anything he embraces the novelty of anything new and exciting. Loves to have other children to play with. Loves a party, play date, trips out, lunch in cafes, loud music and dancing. He doesn’t seem to have any trouble making friends, whether at the park or at his clubs etc. He is also very content to be dropped at his after school clubs or social gatherings where a parent isn’t present. He doesn’t have meltdowns (perhaps the odd temper but nothing unusual for his age). He loves toilet talk and doesn’t seem to have fixed or narrow interests, his interests are varied and at the moment he is enjoying learning about the titanic at school. He loves Lego, football, going to the beach, watching movies etc. He is very sensitive about emotions and will always notice if someone is upset and give kisses and cuddles and want to know if that person is ok. Eye contact generally fine I think. He understands the intricacies of speech beyond his years in my opinion, he isn’t literal and understands jokes and figure of speech/idioms (to a point - he is only 6). He has also been known to tell white lies without any trouble.

Please tell me if this is indeed a me problem or do I do I actually need to be concerned? I hate feeling like this, it seems to be robbing me of the enjoyment of my son and being a mother and I absolutely hate it. But I don’t know how to make it stop.

OP posts:
Illprobsregretthis · 30/03/2025 22:34

Savedbythebell1982 · 30/03/2025 22:22

The intrusive thoughts, rumination and desperation for reassurance are all absolutely me. I also used to get intrusive thoughts as a young teenager, I worried my parents would die (possibly at my hand) and that I was gay being the main two. This is making some sense

This is absolutely classic OCD. The parents dying at your own hand thing - I used to get similar intrusive thoughts. It’s really a whole different beast in terms of treatment so it makes sense that you haven’t been able to help yourself with typical anxiety treatments. Unfortunately for me the only thing that really helps is time, and acknowledging they’re only thoughts. With time, I know I’ll forget what I was fixated on. But giving it attention perversely makes the situation worse.

Hillsmakeyoustrong · 30/03/2025 22:40

Sevendust · 30/03/2025 20:29

Oh, OP Sad
You sound like me 5 years ago, in fact I could have written it myself. I was convinced that my daughter had a health condition and that my house had subsidence (neither of which were true, but like you, I looked for the dots to join up and googled myself silly). I couldn't enjoy even the happiest of days, there was always a sick feeling in my stomach. Over the space of 10 years I had numerous talking therapies for anxiety, none of which helped me at all.

5 years ago I was diagnosed with a form of OCD, much to my shock! I was prescribed Sertraline for the relentless obsessive thoughts. After a few weeks, I felt like someone had pressed the "re-start" button on my brain. There were always a million tabs open, so many worries and what-ifs... But all of a sudden, I could think clearly! It was such a strange and wonderful feeling. I am still doing very well, and can't even recognise the person I used to be. I'm so calm!

I don't work for a pharmaceutical company, I promise!! But please, have a chat with your GP. You don't have to feel like this. Sending you lots of good wishes, I remember how awful I used to feel and it was exactly as you describe x

Edit to add: What the poster below me has said is exactly how I would view the same situation now that I'm "better"

Edited

This. Sertraline was a game changer for me. Also had severe health anxiety through my 20s and 30s, talk to your GP.

Savedbythebell1982 · 30/03/2025 22:45

@Hillsmakeyoustrong @Sevendust is sertraline really that effective? I’ve most recently been on citralopram but it doesn’t do much other than perhaps slightly take the edge off. It certainly doesn’t stop the rumination and obsessive thoughts

OP posts:
mermaidmuscles · 30/03/2025 22:45

In sorry I've not read thoroughly because I'm rushing. I have a child with autism and he's an utter delight, it's not as scary as it first seems but what I want to ask is, have you considered if you might be autistic?

As I have parented my autistic child I've learnt that the autism strategies I've put in place have also benefited me.
Food routines, limits on social expectations, going to the same places regularly at weekends, turning noise off or down, only doing one thing at a time...
When we do this, just like my son, I feel more in control and less panicky. If other things aren't working you could have a look at autism parenting and seeing if some if the strategies would be helpful for you all.

Hillsmakeyoustrong · 30/03/2025 22:57

Savedbythebell1982 · 30/03/2025 22:45

@Hillsmakeyoustrong @Sevendust is sertraline really that effective? I’ve most recently been on citralopram but it doesn’t do much other than perhaps slightly take the edge off. It certainly doesn’t stop the rumination and obsessive thoughts

Yes. And I've known it be a game changer for others like my SIL and DH a few years back. I went on them about 5 years ago (early 40s) and they are still effective. I currently have a superficial skin cancer which would have totally freaked me out before, whereas now, I just apply the cream treatment and forget about it. I used to check my boobs every day, I now have to put a monthly reminder in my calendar. My point is I just dont have the intrusive thoughts anymore and just take care of myself like normal. Talking therapy didn't do it for me but sertraline did. The first 2 weeks can be tricky with headaches, nausea (it was a bit like sea sickness for me) but then it was such a relief.

Definitely worth a chat with the GP. Nothing to lose.

Oh and my son sounds exactly like yours. Dr's aren't convinced it's autism, they think it might be language processing or a processing issue of sorts, but in any case we know we will find our way together and you will too. X

Sevendust · 30/03/2025 22:58

Illprobsregretthis · 30/03/2025 20:40

Ah I just suggested the OP might have OCD! I also suffer with terrible rumination and reassurance seeking. I find by the time I’m posting on MN or Reddit I’m way too far gone to be reasoned with! How do you cope with your OCD now?

Ahh yes, the posting on forums for reassurance (when it's already too late!)
It's how I came to be on Mumsnet in the first place actually! Along with several other forums. Constant reassurance-seeking, when my friends and family were losing patience... I really don't know how they put up with it, looking back. It would never be enough either, I'd post multiple variations of the same thing hoping for yet more reassurance. It's horrible and really distressing.

In terms of how I cope with it now... For me personally, Sertraline was the only answer. I am absolutely fine now, in fact I'm almost the opposite! I have a very laid-back approach to life, which I never would have thought possible a few years ago. Prior to the medication l tried every self-help book, multiple rounds of CBT, meditation, you name it... Like others have said, I feel really sad that I wasted so many years of my life fruitlessly trying to make myself feel better.

I really hope you find a solution too. It's no way to live is it 💐

Hillsmakeyoustrong · 30/03/2025 23:00

On the sertraline front the dosage is 50 mg to 200 mg per day (I think). I've managed to stay on the 50 dose but SIL needed higher to manage her symptoms. I'm sure your GP will guide you but just to say that sometimes it might tale a little longer to find the right dose for you.

Oh and I was terrified of taking the sertraline at first, obvs for health reasons, but I'm so glad I did.

Sevendust · 30/03/2025 23:05

Savedbythebell1982 · 30/03/2025 22:45

@Hillsmakeyoustrong @Sevendust is sertraline really that effective? I’ve most recently been on citralopram but it doesn’t do much other than perhaps slightly take the edge off. It certainly doesn’t stop the rumination and obsessive thoughts

For me, yes, absolutely. It's completely transformed my life, to the point that people I hadn't seen for a while made comments about how different (and happy!) I seemed after starting it, even though they had no idea. The best way I can put it is that I finally know what it is to enjoy life. I hope you find your answer too 💐

Savedbythebell1982 · 30/03/2025 23:23

I will certainly speak to my GP. I don’t want to pin all my hopes on it but it certainly sounds like it’s helped a lot of people in a similar position to me. Thank you so much for your kind wishes and words of advice. I appreciate more than you know. Sometimes I’ve felt so alone with how I felt and just desperate wanting this all to end. Sounds dramatic but it has gotten so bad at times that I would feel like there was only one solution that would put a stop to it but I couldn’t bring myself to deprive my kids of a mother, even the emotionally depleted excuse for the one they have

OP posts:
Hillsmakeyoustrong · 30/03/2025 23:53

Been there. Trust me, it's worth a try. But if yoy do take it, stick with it for 2 to 3 weeks. The GP might start you on the weaning dose of 25. I took it at night to reduce the side effects. Start a thread for support if you need it and tag me. I've supported couple of others through the first couple of weeks.

It doesn't work for everyone but it's worked for me and enough other people that I do feel able to recommend it.

Good luck 👍

Sevendust · 31/03/2025 00:12

Savedbythebell1982 · 30/03/2025 23:23

I will certainly speak to my GP. I don’t want to pin all my hopes on it but it certainly sounds like it’s helped a lot of people in a similar position to me. Thank you so much for your kind wishes and words of advice. I appreciate more than you know. Sometimes I’ve felt so alone with how I felt and just desperate wanting this all to end. Sounds dramatic but it has gotten so bad at times that I would feel like there was only one solution that would put a stop to it but I couldn’t bring myself to deprive my kids of a mother, even the emotionally depleted excuse for the one they have

I know it's not very mumsnetty but I wish I could give you a big hug. I remember feeling like that at times. In the middle of the night, furiously googling one of my worries... I'd feel like I'd exhausted every corner of the internet but was so desperate for more answers, more comfort. There was just nowhere left to go, I wanted to run away... but you can't run away from your own mind and thoughts can you 😫
It's unbearable.

Be kind to yourself OP. You're not alone and it's not your fault that you feel like this. There will be a way to change things and enjoy life, whether that's Sertraline or something else that takes a bit more searching. I also echo what's been said about Sertraline being a rough ride for the first couple of weeks - I almost gave up, but one day I realised that I didn't feel nauseous anymore and that my mind was crystal clear! It was a beautiful feeling, and I still don't take it for granted after so many years of being tortured by my own mind.

I am also happy to talk if you want to DM me or tag me in another thread if you do start Sertraline and want a hand hold.

autisticbookworm · 31/03/2025 04:02

What difference would it make? He would still be the same person.

You say nothing has fixed your anxiety. Anxiety is a feeling isn’t something that can be fixed, if it’s impacting you you seek professional help or work on it yourself but everyone can get anxious. The difference is if you work on it you develop the tools to manage it when it comes.

Savedbythebell1982 · 31/03/2025 08:10

@autisticbookworm its about the additional challenges and/or hardships he would have. He already has the challenge of his hearing which means life is already that little bit harder than it should be. I want the absolute best for him and I want him to be happy. I worry that being autistic may make those things more difficult to achieve. It wouldn’t change how much I love him. I don’t mean to offend anyone but I don’t want him to be autistic. I have spent 15 years working on my anxiety, believe me, no one would choose to feel how I feel. I thought I had exhausted every avenue to getting help but the last few posts on here have genuinely given me hope

OP posts:
ThreeSeaShells · 01/04/2025 21:13

@Savedbythebell1982
I’ve been to my GP countless times, had numerous talking therapies, CBT and antidepressants/anti anxiety meds and it just doesn’t seem to get to the root of the problem,

CBT and NHS Talking Therapies are not 'get to the root' therapies. They are, at best, 'teach you how to cope better, but the problem is always there' therapies.

If you want to get to the root of the problem, you'll want a psychodynamic or psychoanalytic therapy.

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