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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be confused by benefits cuts to the disabled and ill?

1000 replies

AllyHayHay · 06/03/2025 20:27

As luck would have it, I have not been in this position, but I do know of one disabled lady who has struggled. She was incredibly fortunate to already own her own home prior to her accident.

I am not what you'd call politically astute, but I have been reading about the proposed spring benefits cuts and wonder why people always discuss this ONLY affecting the sick and disabled.
I am also aware that there are many, many rough areas with families who have never worked, people who are struggling with addiction, prison sentences (their kids, spouse, etc) and these people never seem to be included in the Guardian articles and opinion pieces online.

Why would a system wish to make the life of a disabled person worse, yet ignore the growing issues of illiteracy, generational poverty and other issues which are going on in most urban areas just out of sight of the comfortably off?
Why not address the reasons that great swathes of people are living on benefits across the UK who are NOT disabled? I imagine this would drag up questions of why those issues persist - and no one in government wants to address that.

Since benefits claimants who are not in work of on the pension are a minority, are these cuts more of a populist tendency?

OP posts:
Thread gallery
18
Seymour5 · 10/03/2025 04:46

Lele101 · 09/03/2025 23:56

Tell this to millions who commit suicide every year

Any suicide is one too many. But there aren’t millions in the UK, there are thousands. Around 7k in 2023, about 6k of those in England & Wales.

Lifesd · 10/03/2025 04:57

Meadowfinch · 10/03/2025 02:37

'The rich' fall in to two categories. The super rich who simply move to another country if they are taxed too heavily -reducing U.K. tax take, and those earning between £100 and £200k, who are already carrying 70% of the tax burden.

Raising taxes on the second group will drive more of them abroad. We'll end up with fewer doctors, dentists, engineers and entrepreneurs.. Not helpful! We live in a global economy and there are plenty of countries who actively court high earners and the highly skilled.

Instead, Everyone needs to contribute something, or at least take less.

We were in that 70 per cent bracket and left the UK a year ago. I have no issue paying into a system but for us nothing seemed to be working and we could see no long term benefit for us or our DC by staying in the UK. Too many people wanting to take and not enough wanting to put in.

DeathNote11 · 10/03/2025 05:14

I'm increasingly starting to wonder about long term effects of hormonal contraception. But I don't think there's a cat in hells chance it'll ever be researched.

Edit: Quote didn't work. It was responding to a comment about why fibro is more prevalent in women.

Dideon · 10/03/2025 06:42

GarlicStyle · 10/03/2025 03:24

I have a diagnosis of fibromyalgia. I wasn't expecting it and hadn't raised it as a possibility - however, I was sent for a battery of tests related to an assortment of worsening symptoms. When I got the consultant's letter, I discovered he'd been testing for multiple sclerosis but concluded I have fibromyalgia instead.

That's intended as an answer to "what is it even?" It's a nervous system malfunction, similar to MS but without demyelination. Pain and fatigue are common features. Cause unknown, presumed to be autoimmune, not psychological. More women but not sex-specific.

There are obvious internal contradictions when trying to legislate for mental illnesses and 'presumed' autoimmune conditions: there are no definitive tests or cures, so they're easy to fake or exaggerate. Yet they are real and their incidence is known to have ballooned since the pandemic. The same phenomena have been noted after every pandemic, as well. Populations don't just bounce back, depleted but otherwise unharmed, much as we may hope so.

On top of the Covid sequelae and the wider problems impacting our health & social systems, there's an elephant in the room that has been growing since the early 20th century: technological advances kill jobs. Pet subject warning: I don't think this is a bottomless spiral, but it's gonna get worse and there will have to be major disruptions before things change for the better.

Governments have been kicking this can down the road since the 1970s; there comes a point when you can't just kick it any further, you have to pick the damn thing up and deal with it. Full employment, with a 'job' for everyone, is never going to happen again. It doesn't matter how gently you coach all the fucked-up people back into work, if the work no longer exists.

It's possible that, in a roundabout way, the increase in young people's 'unemployability' could prompt the challenging restructures that are going to be necessary. It's unpleasant, though, requiring bold imagination and a determined redistribution of funds. That means much bigger taxes. The same issue's everywhere, which means lots of governments having their own ideas on how to fix it and fighting for the resources to do so. Fun times ahead.

... and I've rambled far, far away from fibromylagia 😳 Hitting 'post' anyway, as I'm only expanding on the thread topic!

Oh there was no rambling there … just well informed insights.

LSADM · 10/03/2025 08:52

BruFord · 09/03/2025 23:38

@LadyKenya I was speaking specifically about the effects of lockdown on teenagers/young adults and I believe @Seymour5 was as well.

What we are saying is that four years down the line, most young people have recovered from the effects of lockdown.

I agree with you if that if a young adult is unwell now, it indicates something serious, not a reaction to lockdown.

My son has autism and muscular dystrophy, other than medical appointments and school he does not leave the house.
Being told to shield during Covid screwed him up. The letter literally said “you can open a window but do not step outside” at 11 years old he didn’t step foot out of his house for 4 months even when his class mates returned to school. It took a lot to get him out and even now he wears a face mask all day at school. He was referred for counselling, after 2 years waiting he has 6 sessions, the conclusion was, he tried hard with counselling, his mental health deteriorated during the 6 weeks due to incidents that happened to him in school (beaten up by 3 kids, more than once filmed and circulated on social media) but we have a huge waiting list so 6 sessions is all I can offer.

Although I agree he’s an “extreme” case, this is why some kids are getting worse and becoming inactive. The huge waiting list for mental health services mean by the time they are seen they’re almost too far gone and need long term treatment to pull them back which simply isn’t available. The government need to be asking the questions whether it’s better to support children effectively whilst they’re developing or pay for a lifetime of supporting broken adults.
The broken kids of Covid are in huge numbers but they’re rarely seen, a lot are Homeschooled.

RedHot2025 · 10/03/2025 14:42

Barrenfieldoffucks · 06/03/2025 21:30

It’s fibromyalgia round here. Rightly or wrongly.

Why is there such an increase in fibromyalgia? What's driven the increase? When did it start increasing?

ScholesPanda · 10/03/2025 15:05

NRTFT. I think your first problem OP, is that you think genuine disability and mental ill-health only affect naice middle class people.

Presumably, the people on 'rough estates' are happy go-lucky types who are best suited to singing Knees up Mother Brown around the piano and couldn't possibly be depressed.

Covertcollie · 10/03/2025 15:18

RedHot2025 · 10/03/2025 14:42

Why is there such an increase in fibromyalgia? What's driven the increase? When did it start increasing?

It’s one of those illnesses with no specific test for so east to blag, so if you can’t be bothered to work and want to hop on benefits, it’s one of the good ones to choose. It’s a bit like the ‘bad back’ of the 1990s.

You have to pity the people who genuinely have this illness. What a nightmare.

XenoBitch · 10/03/2025 20:44

Covertcollie · 10/03/2025 15:18

It’s one of those illnesses with no specific test for so east to blag, so if you can’t be bothered to work and want to hop on benefits, it’s one of the good ones to choose. It’s a bit like the ‘bad back’ of the 1990s.

You have to pity the people who genuinely have this illness. What a nightmare.

Edited

I know a fair few people with fibro, and they all have other health conditions too. It is not always to do with MH. My aunt was diagnosed with it after she had treatment for breast cancer.

LSADM · 11/03/2025 10:59

Covertcollie · 10/03/2025 15:18

It’s one of those illnesses with no specific test for so east to blag, so if you can’t be bothered to work and want to hop on benefits, it’s one of the good ones to choose. It’s a bit like the ‘bad back’ of the 1990s.

You have to pity the people who genuinely have this illness. What a nightmare.

Edited

That the reason why fibro is one of the hardest to get support for. Too many blagging that they’re watering down the value of a diagnosis. Going for PIP with mental heath issues or fibromyalgia will be an uphill battle.

MaggieThatcher134 · 11/03/2025 11:06

This sounds like something a conservative government would do?

MrsSkylerWhite · 11/03/2025 11:12

Covid hit young people much harder than I think is recognised.
Because of his dad’s CEV condition, our youngest was alone with just his parents, trying to study with very poor provision, for 16 months, much of his sixth form years. He spent his 18th birthday with his parents, a takeaway and a film on telly. He didn’t see anyone else the whole time.
He got through it but the problems it caused were apparent. He studied at uni (where social limitations were still in place), gained a first class degree in his subject and is working full time, passed his driving test, bought a car and is saving for a home deposit. All great, on the surface.

He is only recently, though, beginning to make up for his lack of learning in respect of social interactions and confidence.

Hell be fine, we think. He’s a good, strong person. Many others of his age didn’t cope so well and really struggle with making their way in the world.

We need more targeted support for those young people so badly affected by Covid in their formative years, programmes to help them into work.

I’ve read comments by people comparing the Covid generation to those who went through WW2 and came out the other side (supposedly) fine.

The young people then had each other and weren’t expected to cope with such unique circumstances alone.

CherryRipe1 · 11/03/2025 11:49

Maitri108 · 06/03/2025 21:39

It's believed to be a predominantly female problem like autoimmune and dementia. Relatively few resources are dedicated to 'womens problems', so it's anyone's guess.

Perhaps it's because women are completely depleted from working, childcare and running a home.

An immunologist told me it's do do with our xx chromosomes and hormones. These carry material that predisposes women to autoimmune conditions. Men are generally more prone to heart attacks and diabetes. Fibro is believed to be neurological and autoimmune and certainly can be triggered by lifestyle, diet, stress or viruses etc like other ai stuff. The pain signals go completely out of whack & are magnified, in some people to the extent that they are wheelchair bound as is Jonathan Ross's daughter. Men do get ai conditions. I have a few male friends and acquaintances with rheumatoid arthritis, colitis, cidp, ankylosing spondylitis, psoriatic arthritis. All quite disabled & worked all their working lives types, sadly now reliant on ESA/pip etc.

BruFord · 11/03/2025 13:03

I’ve read comments by people comparing the Covid generation to those who went through WW2 and came out the other side (supposedly) fine.

@MrsSkylerWhite I’m sure the people living in Gaza and Ukraine feel that that the Covid lockdowns are comparable to what they’re going through?!

You can’t seriously compare a six-year world war to the Covid experience.

SneakyLilNameChange · 11/03/2025 13:32

Whats the solution though? It cannot be afforded. DH and are are grateful to be well but are exhausted with working flat out, huge amounts going out in tax for piss poor services. We are looking to move abroad as are many many of our friends. All that will be left in the UK are those that need support and no one who can do the supporting.

Balancedcitizen101 · 11/03/2025 13:35

MidnightPatrol · 06/03/2025 20:36

The number of people claiming long-term sickness benefits with no requirement to work has increased by 50% since 2020.

The number of weekly applications from under 40s has gone from 4500 to 11500 over the same period.

1 in 10 adults of working age claims some form of sickness benefits.

The cost of funding this will grow by >50% by 2028.

The numbers of people and cost have accelerated very quickly - and these are more ‘valuable’ benefits ie cost the state a lot.

If you want to live on state benefits, the new ‘wheeze’ seems to be to claim you have mental health problems and then you’re signed off without any requirement to look for work. Apparently.

Its not looking to ‘make disabled people’s lives worse’ - it’s challenging the rapid growth of people claiming these benefits, as the state can’t afford it, and it is a bit strange for such a big increase.

If I were tackling the state’s spending bill I’d be looking at pensions (state and public sector). The latter a black hole no one is discussing.

Or maybe acutally tackle tax avoidance and loopholes for once that cost the state £50 - £100bn a year? You seem to have forgotten to mention the £15bn in unclaimed benefits a year that the state saved as well. No doubt all innocent mistakes.......

MrsSkylerWhite · 11/03/2025 13:40

Bruford

I’m sure the people living in Gaza and Ukraine feel that that the Covid lockdowns are comparable to what they’re going through?
**
You can’t seriously compare a six-year world war to the Covid experience

I don’t. I said I’ve read some posters doing so on other threads.

My mum was born in October 1939 in central London. She remembers the war as a time of strong community, close family and lots of freedom for herself and her friends. They weren’t isolated with no-one of their age to talk to face to face. Born into it, it was her normal. It didn’t suddenly change her life and isolate her from her peers for 16 months at 16.

I’ve no idea why you mention Gaza and Ukraine? Not relevant at all, obviously.

BIossomtoes · 11/03/2025 13:45

MrsSkylerWhite · 11/03/2025 13:40

Bruford

I’m sure the people living in Gaza and Ukraine feel that that the Covid lockdowns are comparable to what they’re going through?
**
You can’t seriously compare a six-year world war to the Covid experience

I don’t. I said I’ve read some posters doing so on other threads.

My mum was born in October 1939 in central London. She remembers the war as a time of strong community, close family and lots of freedom for herself and her friends. They weren’t isolated with no-one of their age to talk to face to face. Born into it, it was her normal. It didn’t suddenly change her life and isolate her from her peers for 16 months at 16.

I’ve no idea why you mention Gaza and Ukraine? Not relevant at all, obviously.

My parents’ nostalgia for the war years was something that completely mystified me. I think it was denial.

JoyousGreyOrca · 11/03/2025 13:59

BIossomtoes · 11/03/2025 13:45

My parents’ nostalgia for the war years was something that completely mystified me. I think it was denial.

For some people it was a good time, just as for some lockdown was a good time.
Women stuck at home as housewives suddenly had the chance to work with other women doing more exciting jobs. To enable it the government ran highly subsidised nurseries and canteens serving cheap food.
For children school became part time and they had more time to play.
Some people had a terrible traumatic time, but just like the pandemic, not everyone did.

MrsSkylerWhite · 11/03/2025 14:00

Adults, possibly. Do young children go into denial or just accept their normal?

Badbadbunny · 11/03/2025 14:04

Balancedcitizen101 · 11/03/2025 13:35

Or maybe acutally tackle tax avoidance and loopholes for once that cost the state £50 - £100bn a year? You seem to have forgotten to mention the £15bn in unclaimed benefits a year that the state saved as well. No doubt all innocent mistakes.......

A huge chunk of the official "tax gap" is the black economy, i.e. "normal" people doing cash in hand work, buying/selling duty free booze and fags, small businesses evading tax by charging cash and not declaring the income, small business VAT fraud (builders, scaffolders, etc), "pretend" self employment, etc etc. Imagine the howls of protest when friends and neighbours get the knock on the door by HMRC tax inspectors wanted to pore through their personal finances!

Personally, I think we need to do it as far too much is lost through deliberate evasion in these areas, but we also need to tackle "mistakes" in tax returns from "normal" people/small businesses, etc., as well as the deliberate evasion as that's another huge chunk of missing tax revenue.

The tax authorities used to be far more proactive back when I started in accountancy in the 80s, but over the decades, they seem to have given up doing routine inspections/enquiries, and without the risk/threat of random inspections, the number of "normal" people deliberately or accidentally evading tax is increasing year on year, as is the "tax gap".

JoyousGreyOrca · 11/03/2025 14:12

The number of civil servants detecting tax fraud has been slashed.

BruFord · 11/03/2025 14:13

MrsSkylerWhite · 11/03/2025 13:40

Bruford

I’m sure the people living in Gaza and Ukraine feel that that the Covid lockdowns are comparable to what they’re going through?
**
You can’t seriously compare a six-year world war to the Covid experience

I don’t. I said I’ve read some posters doing so on other threads.

My mum was born in October 1939 in central London. She remembers the war as a time of strong community, close family and lots of freedom for herself and her friends. They weren’t isolated with no-one of their age to talk to face to face. Born into it, it was her normal. It didn’t suddenly change her life and isolate her from her peers for 16 months at 16.

I’ve no idea why you mention Gaza and Ukraine? Not relevant at all, obviously.

@MrsSkylerWhite I mentioned Gaza and Ukraine because they’re contemporary wars that young people living in those regions are unfortunately experiencing. I honestly don’t think that they’d view the Covid lockdowns as comparable to what they’re going through.

No , people aren’t alone, but war is surely far more scary than Covid isolation with the internet to keep in touch with people. My two played online with their friends a lot, for example. It was a horrible experience, but most young people, like your son and my teenagers, will recover from the effects. Your son sounds amazing!

MrsSkylerWhite · 11/03/2025 14:20

I mentioned Gaza and Ukraine because they’re contemporary wars that young people living in those regions are unfortunately experiencing. I honestly don’t think that they’d view the Covid lockdowns as comparable to what they’re going through

I didn’t suggest that they were?

You mention your two. I think (hope) that would have made a positive difference for them in dealing with the difficult circumstances.

Thank you. I think he is, in his own quiet way..
(We took him to the gp to try to organise some talking therapy for him. 3 years on, nothing. I suppose if disability benefits aren’t priority, talking therapies certainly aren’t.)

BruFord · 11/03/2025 14:35

@MrsSkylerWhite I hear you, I’m in the US and everything health-related has to be paid for, it sounds as if the UK is going the same way in many areas.

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