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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU for not always being able to hear?!?

55 replies

EnglishBluebell · 11/12/2024 11:43

I know that the obvious answer to my title is “duh! Of course you’re not…! 🙄”
So why is it then, that I keep getting snapped at by family members (including my 9yr old child) when I genuinely cannot hear what they’re saying? I get it’s frustrating having to repeat yourself but that is usually only required if either there’s background noise or they’ve put me on speakerphone and walked too far away from the handset. I’d argue that would cause most people to struggle.

I’m on the waiting list for Audiology but it’s a 7 year wait in my area just to get your first appointment! Presumably there’s then another wait afterwards for an actual NHS hearing aid (and our local branch of Specsavers doesn’t take part in the direct GP referral thingy for the free hearing aid). Paying for one privately is out of the question also.
So I’m just struggling on and doing everything I can to maximise my chances of hearing. Such as removing any background noise that I possibly can and keeping my volume up etc.

Like I said, I realise it’s frustrating from their POV but in my defence, those around me have been reminded countless times that if there’s rattling plastic/a tap running/a phone ringing/a truck driving by etc etc that I will not be able to hear them. Yet the long, drawn out sighing, saying “FGS/FFS” under their breath/the snappy attitude & quite often the “Nevermind” complete with eye roll, continues.

Oh and before anyone tries to infer it, no this is not occurring every single conversation. Not at all. Only when there’s background noise or like I said above, my mum puts me on speaker phone and then walks across the kitchen without raising her voice in the slightest, meaning I cannot decipher a single word.

Am I unreasonable? I ‘called out’ my Mum on this earlier today (I hate that expression but ‘confronted’ sounds hostile & disrespectful in this context) and she flat denied that she gets snappy or frustrated when I can’t hear and turned the entire thing round onto me.

I’ve ended up practically begging her (politely) to not do the speakerphone whilst walking away thing anymore and to try a little bit harder to notice when there’s background noise and remember that I won’t be able to hear her; However that just summoned yet more snappy hostility from her. Ironically when I mentioned the speakerphone thing, she missed my point completely and reminded me that she needs to put it on speakerphone as her hearing is going….😳
“I am old you know. Or had you forgotten that?!”
🤦🏼‍♀️

FYI: I’ve had hearing issues since I was a child (presumably birth) but nothing was ever done about it in childhood. I got a referral from a GP to audiology when I turned 18 but the referral was cancelled as apparently I was “too young for hearing loss” and the GP was told to try “other avenues to determine the cause” but of course the GP ignored this. I tried again 3 years ago and like I said, I have up to another 4 years left to wait.

The snappy responses began earlier than I can even remember. My Mum has always done it and was even worse towards my Dad (whose hearing loss was worse than mine and deteriorated as the years went on). She said he & I “played on it” because we’d say “Pardon?” Then a few seconds later say “Yes, it’s in the other cupboard” for example. So she took it to mean that he/I could hear her all along. When I’ve told her over & over again that no! What’s happened, is we heard a muffled version of what was said and we’ve replayed it in our head to try match the word/few words.
eg: ‘zzzzerd????’ ‘Asssurd?’ ‘Asturd?’ Ohhhh “Mustard!” Gotcha. Yep, it’s in the other cupboard….”

I don’t think she believes me.

Edited to point out that obviously my 9yr old isn’t saying “FFS!” She just closes her eyes and sighs or answers with attitude! Otherwise, she is actually a great kid whose behaviour is brilliant 99% of the time. Genuinely.

OP posts:
TizerorFizz · 11/12/2024 11:49

I doubt very much that it’s a 7 year wait! My DH was seen pretty quickly! Have you even asked? See your GP now. Doing nothing isn’t a great plan of action. I guess others won’t understand but you need to be proactive. My DH is a bit deaf and he does not concentrate on what people are saying to him. He switches off. A friend is far worse and put off having hearing aids for years. He’s now got dementia and hearing loss people are more prone to this. Therefore ignore the rubbish you have been told in the past and get a NHS hearing test - it’s NOT a 7 year wait!

wastingtimeonhere · 11/12/2024 11:49

I hear you, OP! 😁
I have Auditory Processing Disorder, diagnosed a few years ago.
I hear volume but not the sounds. Phones, music, and voices all mash to an intelligible noise. Walking away from me, talking over your shoulder.. no, I can't hear what you're saying!
Muttering instead of clear speech. TV programmes are difficult to follow at times.
Drives me nuts!

BumpyaDaisyevna · 11/12/2024 11:49

Have you had a hearing test?

You can just go to a private audiologist for an assessment. It should not cost too much to have a consultation and hearing test? £150 maybe? Why don't you look up local audiologists and make an appointment.

You may well have a congenital hearing loss.

If you need hearing aids, would it be possible to take out a loan to pay for these? The quality of aids available privately is much higher than those available on the NHS.

There are schemes where you can get employer and government contributions to the cost of aids.

It sounds like you have struggled with your hearing for a long time and it needs looking at - for your own benefit.

It must cause you a lot of stress and I don't think you should wait another 4 years.

wastingtimeonhere · 11/12/2024 11:51

There is also a delay in between when I hear and my brain deciphering, so yes I get the 'Pardon?.........oh yeah, top cupboard' type scenario.

MumOfOneAllAlone · 11/12/2024 11:52

Yeah I agree with pp, I'd push much harder against this 7 year wait

Can you pay to have your earwax removed, to start with? It's about £50 which i know isn't always immediately available but could you save?

This does need to be sorted before it gets worse

I've got hearing loss myself. I first realised I had to sort it when my neighbours complained that the TV was too loud (mortified!)

I was seen within in a few months (east london) x

EnglishBluebell · 11/12/2024 11:53

TizerorFizz · 11/12/2024 11:49

I doubt very much that it’s a 7 year wait! My DH was seen pretty quickly! Have you even asked? See your GP now. Doing nothing isn’t a great plan of action. I guess others won’t understand but you need to be proactive. My DH is a bit deaf and he does not concentrate on what people are saying to him. He switches off. A friend is far worse and put off having hearing aids for years. He’s now got dementia and hearing loss people are more prone to this. Therefore ignore the rubbish you have been told in the past and get a NHS hearing test - it’s NOT a 7 year wait!

As I said in my post, I’m 3 years into a very definite 7 year wait. I am not “doing nothing”

OP posts:
EnglishBluebell · 11/12/2024 11:55

MumOfOneAllAlone · 11/12/2024 11:52

Yeah I agree with pp, I'd push much harder against this 7 year wait

Can you pay to have your earwax removed, to start with? It's about £50 which i know isn't always immediately available but could you save?

This does need to be sorted before it gets worse

I've got hearing loss myself. I first realised I had to sort it when my neighbours complained that the TV was too loud (mortified!)

I was seen within in a few months (east london) x

There isn’t any dried earwax, I know this as I have a skin condition so my ears are looked at monthly to make sure the skin within them aren’t flaring up as that’s unbearably itchy when it happens! The nurse often comments how clean my ears are.

OP posts:
Slightlydustcovered · 11/12/2024 11:55

There are options, it's nothing like 7 years around here or for my mother's area either. She recently got hearing aids and the difference is huge. She was driving us to distraction before them. I would try and push for some more help personally.

TigerRag · 11/12/2024 11:56

wastingtimeonhere · 11/12/2024 11:49

I hear you, OP! 😁
I have Auditory Processing Disorder, diagnosed a few years ago.
I hear volume but not the sounds. Phones, music, and voices all mash to an intelligible noise. Walking away from me, talking over your shoulder.. no, I can't hear what you're saying!
Muttering instead of clear speech. TV programmes are difficult to follow at times.
Drives me nuts!

Same! Certain accents are difficult to understand too.

I've lost count of the amount of times I've had to ask (usually dad!) to turn down their music and speak up.

Nogaxeh · 11/12/2024 11:56

I had my hearing tested because of being the same, and it turned out to be fine. The ear doctor asked if all the students could have a look inside my ear so they could see what a normal, functioning, ear looked like.

I've concluded that I have audio processing difficulties as part of my ASD (Autistic Spectrum Disorder) diagnosis. It's hard, particularly when there's background noise - like in the pub - but not insurmountable.

Do you hear things like a kettle boiling normally?

EnglishBluebell · 11/12/2024 11:57

BumpyaDaisyevna · 11/12/2024 11:49

Have you had a hearing test?

You can just go to a private audiologist for an assessment. It should not cost too much to have a consultation and hearing test? £150 maybe? Why don't you look up local audiologists and make an appointment.

You may well have a congenital hearing loss.

If you need hearing aids, would it be possible to take out a loan to pay for these? The quality of aids available privately is much higher than those available on the NHS.

There are schemes where you can get employer and government contributions to the cost of aids.

It sounds like you have struggled with your hearing for a long time and it needs looking at - for your own benefit.

It must cause you a lot of stress and I don't think you should wait another 4 years.

I can’t afford private. I can’t even afford the £150. I’m disabled (& widowed) on a very low income. I’ve had a hearing test (done for free) at Boots and yes, considerable hearing loss.

Our area has the worst (NHS) provision in the country for hearing loss apparently.

OP posts:
biscuitsandbooks · 11/12/2024 11:58

I would be back at the doctors and pushing for more help. A seven year wait is ridiculous and I don't know a single person waiting that length of time.

Have you paid to have a hearing test so that at least you know where you stand?

Rainingandlookslikeitwillneverstop · 11/12/2024 11:58

Go to specsavers . Get the free hearing test. If it’s wax - get removed .

If it’s hearing loss which needs an aid and you can’t afford private - take the report to your gp and ask for an urgent referal. clear evidence of need .

condider nhs chose and book and get referred to audiology anywhere you can travel to.

contact pals and Mp if 7 year week as totally ridiculous

contact rnid for advice.

good luck

EnglishBluebell · 11/12/2024 12:03

Rainingandlookslikeitwillneverstop · 11/12/2024 11:58

Go to specsavers . Get the free hearing test. If it’s wax - get removed .

If it’s hearing loss which needs an aid and you can’t afford private - take the report to your gp and ask for an urgent referal. clear evidence of need .

condider nhs chose and book and get referred to audiology anywhere you can travel to.

contact pals and Mp if 7 year week as totally ridiculous

contact rnid for advice.

good luck

Other than contacting RNID, I’ve done all of this. Except the free hearing test was done at Boots. The GP/PALS couldn’t do anything. We apparently have the worst provision for hearing loss of all NHS Trusts. Conversely however, we have one of the best provisions for Oncology so it’s not that my NHS trust is crap across the board, it’s just this one aspect that is seriously lacking.

I will try again for another area though, providing that the process of doing so, doesn’t boot me off the waiting list I’m already on, as I’m 3 years in….

OP posts:
EnglishBluebell · 11/12/2024 12:04

heldinadream · 11/12/2024 12:01

@EnglishBluebell you have my sympathies. I had temporary deafness post-covid which was awful. As it was (lockdown) almost impossible to get help, I got cheap hearing aids from Amazon and after the worst was over these were brilliant - and cheap!

MEDca BTE Behind the Ear Sound Super Mini Size Sound Enhancer For Better Hearing (Pair) : Amazon.co.uk: Health & Personal Care

Thank you! I’ve tried some amplifiers before and they were rubbish so to have some recommended is great, thanks! Will try these.

OP posts:
EnglishBluebell · 11/12/2024 12:05

biscuitsandbooks · 11/12/2024 11:58

I would be back at the doctors and pushing for more help. A seven year wait is ridiculous and I don't know a single person waiting that length of time.

Have you paid to have a hearing test so that at least you know where you stand?

I’ve already been back to GP 3 times, contacted PALS and MP, no joy.

Also already had a free hearing test from Boots.

OP posts:
Theright1 · 11/12/2024 12:12

Have you looked into the NHS choice framework? I don't fully understand it but from what I have heard it says you have the right to choose where you get referred and treated so could you pick to be referred to somewhere with a shorter wait list?

It's terrible. The "never mind" is so rude, excluding you cos you have hearing loss.

museumum · 11/12/2024 12:15

The cheapest boots hearing aids are under £600 and they offer 12 months interest free credit. Could you save up for that or ask family to help? Anything from £20/month would still get you aids quicker than your nhs waiting time.

Nn9011 · 11/12/2024 12:25

Have you considered auditory processing issues alongside hearing issues? I had problems with my hearing when I was young and it's gotten more difficult as I've gotten older but what I've discovered is that I actually also have an auditory processing disorder. It means that it is harder to process sounds/there's a delay so if you're looking directly at someone and can see their lips it's easier to understand but if on speaker or there's background noise it's harder. I also find I need to use subtitles to hear the TV.
The reason I ask is the delay of working out what was said is quite common with this, people will often be the type to say what or pardon but then answer before it's repeated because you've worked out the question and it's because there's a delay in processing what's been said.
I don't doubt the wait as pre-covid I waited years to see an ENT consultant and they found that whilst I had some hearing issues it wasn't as bad as it felt and that's when they found the processing issues as well.

SoNiceToComeHomeTo · 11/12/2024 12:26

YANBU. I'm visually impaired and my partner has hearing loss, and I know which one of us gets the easier ride. People get far more irritated with people who can't hear them. I think it's sometimes because they feel embarrassed at having to repeat their own not very scintillating remarks.

user1471453601 · 11/12/2024 12:38

You say you understand that it is frustrating for your family. Do they understand it's even more frustrating for you? Social isolation happens when either the hearing impaired person or those they interact with say things like "oh, it doesn't matter" or "it's Not important". It does matter, because you will be isolated socially.

You've probably guessed by now that I'm hearing impaired and feel quite strongly about the discrimination hearing people can suffer because others don't understand (and sometime s don't want to be bothered to understand)

I'd ask your family if they would find it quite as frustrating if it was your sight you were loosing, or your mobility, any other disability?

There are a couple of things you could also do. I always try to sit with my back to a wall, which cuts out some background noise, I also ask people not to sit with a light (bright sunshine for example) behind them. It puts their face in shadow so it's harder to lip read then. Most hearing impaired people subconsciously lip read.

The seven heartbeat thing is woeful. I'm sorry that this is happening to you.

There's an outgoing thread here specifically for hearing impaired folk. You may find some useful information.

EnglishBluebell · 11/12/2024 12:41

Theright1 · 11/12/2024 12:12

Have you looked into the NHS choice framework? I don't fully understand it but from what I have heard it says you have the right to choose where you get referred and treated so could you pick to be referred to somewhere with a shorter wait list?

It's terrible. The "never mind" is so rude, excluding you cos you have hearing loss.

I’m going to look into this, thank you.

Yes I agree completely. It hurts

OP posts:
EnglishBluebell · 11/12/2024 12:43

Nn9011 · 11/12/2024 12:25

Have you considered auditory processing issues alongside hearing issues? I had problems with my hearing when I was young and it's gotten more difficult as I've gotten older but what I've discovered is that I actually also have an auditory processing disorder. It means that it is harder to process sounds/there's a delay so if you're looking directly at someone and can see their lips it's easier to understand but if on speaker or there's background noise it's harder. I also find I need to use subtitles to hear the TV.
The reason I ask is the delay of working out what was said is quite common with this, people will often be the type to say what or pardon but then answer before it's repeated because you've worked out the question and it's because there's a delay in processing what's been said.
I don't doubt the wait as pre-covid I waited years to see an ENT consultant and they found that whilst I had some hearing issues it wasn't as bad as it felt and that's when they found the processing issues as well.

This is really interesting thank you. I have ADHD (diagnosed as a child) so this is very possible. Thank you for pointing out 🙏

OP posts:
EnglishBluebell · 11/12/2024 12:48

user1471453601 · 11/12/2024 12:38

You say you understand that it is frustrating for your family. Do they understand it's even more frustrating for you? Social isolation happens when either the hearing impaired person or those they interact with say things like "oh, it doesn't matter" or "it's Not important". It does matter, because you will be isolated socially.

You've probably guessed by now that I'm hearing impaired and feel quite strongly about the discrimination hearing people can suffer because others don't understand (and sometime s don't want to be bothered to understand)

I'd ask your family if they would find it quite as frustrating if it was your sight you were loosing, or your mobility, any other disability?

There are a couple of things you could also do. I always try to sit with my back to a wall, which cuts out some background noise, I also ask people not to sit with a light (bright sunshine for example) behind them. It puts their face in shadow so it's harder to lip read then. Most hearing impaired people subconsciously lip read.

The seven heartbeat thing is woeful. I'm sorry that this is happening to you.

There's an outgoing thread here specifically for hearing impaired folk. You may find some useful information.

The back to the wall thing is genius! Thank you so much for this. I’m terrible at lip reading but I keep trying.
I’m sorry you’re going through this too. Interesting you mention how they’d feel if I had vision loss, as my mum has a rare eye dystrophy and has had corneal transplants and recently, there was an issue with the transplants that caused her vision to plummet (‘fixed’ now by geniuses at the Eye casualty) so I will definitely ask her how she would feel if I got angry with her for struggling to see something. Though I do agree with the embarrassment aspect on their part.

OP posts: