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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU for not always being able to hear?!?

55 replies

EnglishBluebell · 11/12/2024 11:43

I know that the obvious answer to my title is “duh! Of course you’re not…! 🙄”
So why is it then, that I keep getting snapped at by family members (including my 9yr old child) when I genuinely cannot hear what they’re saying? I get it’s frustrating having to repeat yourself but that is usually only required if either there’s background noise or they’ve put me on speakerphone and walked too far away from the handset. I’d argue that would cause most people to struggle.

I’m on the waiting list for Audiology but it’s a 7 year wait in my area just to get your first appointment! Presumably there’s then another wait afterwards for an actual NHS hearing aid (and our local branch of Specsavers doesn’t take part in the direct GP referral thingy for the free hearing aid). Paying for one privately is out of the question also.
So I’m just struggling on and doing everything I can to maximise my chances of hearing. Such as removing any background noise that I possibly can and keeping my volume up etc.

Like I said, I realise it’s frustrating from their POV but in my defence, those around me have been reminded countless times that if there’s rattling plastic/a tap running/a phone ringing/a truck driving by etc etc that I will not be able to hear them. Yet the long, drawn out sighing, saying “FGS/FFS” under their breath/the snappy attitude & quite often the “Nevermind” complete with eye roll, continues.

Oh and before anyone tries to infer it, no this is not occurring every single conversation. Not at all. Only when there’s background noise or like I said above, my mum puts me on speaker phone and then walks across the kitchen without raising her voice in the slightest, meaning I cannot decipher a single word.

Am I unreasonable? I ‘called out’ my Mum on this earlier today (I hate that expression but ‘confronted’ sounds hostile & disrespectful in this context) and she flat denied that she gets snappy or frustrated when I can’t hear and turned the entire thing round onto me.

I’ve ended up practically begging her (politely) to not do the speakerphone whilst walking away thing anymore and to try a little bit harder to notice when there’s background noise and remember that I won’t be able to hear her; However that just summoned yet more snappy hostility from her. Ironically when I mentioned the speakerphone thing, she missed my point completely and reminded me that she needs to put it on speakerphone as her hearing is going….😳
“I am old you know. Or had you forgotten that?!”
🤦🏼‍♀️

FYI: I’ve had hearing issues since I was a child (presumably birth) but nothing was ever done about it in childhood. I got a referral from a GP to audiology when I turned 18 but the referral was cancelled as apparently I was “too young for hearing loss” and the GP was told to try “other avenues to determine the cause” but of course the GP ignored this. I tried again 3 years ago and like I said, I have up to another 4 years left to wait.

The snappy responses began earlier than I can even remember. My Mum has always done it and was even worse towards my Dad (whose hearing loss was worse than mine and deteriorated as the years went on). She said he & I “played on it” because we’d say “Pardon?” Then a few seconds later say “Yes, it’s in the other cupboard” for example. So she took it to mean that he/I could hear her all along. When I’ve told her over & over again that no! What’s happened, is we heard a muffled version of what was said and we’ve replayed it in our head to try match the word/few words.
eg: ‘zzzzerd????’ ‘Asssurd?’ ‘Asturd?’ Ohhhh “Mustard!” Gotcha. Yep, it’s in the other cupboard….”

I don’t think she believes me.

Edited to point out that obviously my 9yr old isn’t saying “FFS!” She just closes her eyes and sighs or answers with attitude! Otherwise, she is actually a great kid whose behaviour is brilliant 99% of the time. Genuinely.

OP posts:
EnglishBluebell · 11/12/2024 12:49

museumum · 11/12/2024 12:15

The cheapest boots hearing aids are under £600 and they offer 12 months interest free credit. Could you save up for that or ask family to help? Anything from £20/month would still get you aids quicker than your nhs waiting time.

I can’t get credit due to my low income BUT saving £20 a month is a good idea and you’re right that it would get me them quicker than 4 years, thanks!

OP posts:
TheBluntTurtle · 11/12/2024 12:56

i don’t have any advice but you do have my sympathy OP. I suffer from hearing loss which isn’t all the time but certain situations make it worse. As I am ‘young’ it’s not taken seriously by my work, family or classes I go to even though like you I have asked for very simple adjustments which would mean I wouldn’t be excluded from conversations/ events (as well as everyone else with undisclosed hearing issues). Unfortunately as this requires effort and consideration from others it’s not done. I’m so sorry that you are being excluded OP and it is so frustrating and tiring having to ask for small considerations all the time.
my local NHS trust has similar wait times as you for audiology at the hospital (maybe we’re in the same trust - north of England?) so I can absolutely believe the wait time you have been told and it’s just so awful - it might not be life threatening but you are basically being isolated from life all that time and hearing loss can be dangerous if you don’t hear hazards/ alarms etc.

Nn9011 · 11/12/2024 13:16

EnglishBluebell · 11/12/2024 12:43

This is really interesting thank you. I have ADHD (diagnosed as a child) so this is very possible. Thank you for pointing out 🙏

AHH see I was going to ask about nuerodivergence but not everyone reacts well to the question. I have ADHD too, from the research I've done it doesn't seem like one causes the other but they are often found together.
I have the same issues with my mum and it took me to really explain how upsetting it is when she doesn't listen to what I'm asking for her to make a change but it wasn't permanent and she's back to her old ways again. It's so frustrating they expect you to accommodate their issues but can't support us as their child (even if we are adults)!

Runki · 11/12/2024 13:17

Hello OP, firstly can I say that you are not being unreasonable! I feel your pain. My family and friends took the mickey out of my deafness for years and it used to hurt. A year ago I had a free hearing test at Boots, like you. Can I ask, did they ask you to go back for a second, far more in-depth hearing test, that take about an hour? I had this done ny Boots as well, and it was also free. It turned out that I have mild to moderate hearing loss and I ended up buying hearing aids from them, and they're not cheap. I had to take out a personal loan to pay for them which I hate, but I will say that they have changed my life. I can now hear sounds that I never knew existed. I think someone above suggested perhaps saving up for some hearing aids from Boots? That's awful that it's a seven year waiting list for the NHS! I am also awaiting a response for a PIP application. If you can get a proper diagnosis (if you don't already have one from Boots), perhaps you could do the same and if you were successful, that money could help you with hearing aid costs? Not that I know if it's a viable option, as I haven't had a decision from PIP yet, but might be worth thinking about.

daisychicken · 11/12/2024 13:36

A quick tip from another deafie - look at the accessibility features on your phone. You may have live transcribe, if so, turn it on. If not download xrai glass (the free version).

Neither of these will solve your hearing problems but will help now and when you have your hearing aid (that wait time is horrendous! Kick up a fuss with RNID for help). What they will help with is captioning what people say. It's automatic captions so not perfect and neither work brilliantly in noise but they both help hugely. You can even get small microphones (bluetooth, cost about £10-20) so if having a 1:1 conversation, the other person can clip it on to their top and be across the room from you.

Hope that gives you a little bit of help while you wait for audiology.

RealWorldxo · 11/12/2024 13:38

Can I ask those of you with auditory processing disorder how you got your diagnosis? I am certain I have APD. I struggle to hear with background noise and unfamiliar accents and also speech that is fast. I have had several hearing tests and apparently my hearing is fine! It's quite a demoralising condition, as like you say, people get impatient when you don't hear straight away 😢. Sometimes, I just feel so thick when I struggle to keep up in group conversation when talking is fast and from all directions.

Spondoolies · 11/12/2024 14:02

RealWorldxo · 11/12/2024 13:38

Can I ask those of you with auditory processing disorder how you got your diagnosis? I am certain I have APD. I struggle to hear with background noise and unfamiliar accents and also speech that is fast. I have had several hearing tests and apparently my hearing is fine! It's quite a demoralising condition, as like you say, people get impatient when you don't hear straight away 😢. Sometimes, I just feel so thick when I struggle to keep up in group conversation when talking is fast and from all directions.

Have you looked into Loop earplugs, they filter out unnecessary background noise and are very affordable, tailored for people with ADHD, Autism, noise sensitivities etc?

@EnglishBluebell these might help for your issues as well

AIBU for not always being able to hear?!?
RealWorldxo · 11/12/2024 14:13

Spondoolies · 11/12/2024 14:02

Have you looked into Loop earplugs, they filter out unnecessary background noise and are very affordable, tailored for people with ADHD, Autism, noise sensitivities etc?

@EnglishBluebell these might help for your issues as well

@Spondoolies Thank you so much for this tip. Going to look into it now!

TigerRag · 11/12/2024 14:13

RealWorldxo · 11/12/2024 13:38

Can I ask those of you with auditory processing disorder how you got your diagnosis? I am certain I have APD. I struggle to hear with background noise and unfamiliar accents and also speech that is fast. I have had several hearing tests and apparently my hearing is fine! It's quite a demoralising condition, as like you say, people get impatient when you don't hear straight away 😢. Sometimes, I just feel so thick when I struggle to keep up in group conversation when talking is fast and from all directions.

Like you my hearing test was normal. (Or so I was told - I have mild hearing loss in one ear) But I knew something wasn't right and it wasn't my hyperacusis. I was then referred to Audiology as I wasn't happy with being fobbed off.

He suggested that I had mild hearing loss and the reason for not being able to process sounds (I discovered I had issues when I used to play the ukulele) is because of the way my brain processes sound.

EnglishBluebell · 11/12/2024 14:51

TheBluntTurtle · 11/12/2024 12:56

i don’t have any advice but you do have my sympathy OP. I suffer from hearing loss which isn’t all the time but certain situations make it worse. As I am ‘young’ it’s not taken seriously by my work, family or classes I go to even though like you I have asked for very simple adjustments which would mean I wouldn’t be excluded from conversations/ events (as well as everyone else with undisclosed hearing issues). Unfortunately as this requires effort and consideration from others it’s not done. I’m so sorry that you are being excluded OP and it is so frustrating and tiring having to ask for small considerations all the time.
my local NHS trust has similar wait times as you for audiology at the hospital (maybe we’re in the same trust - north of England?) so I can absolutely believe the wait time you have been told and it’s just so awful - it might not be life threatening but you are basically being isolated from life all that time and hearing loss can be dangerous if you don’t hear hazards/ alarms etc.

Yep, north of England.

It’s hard isn’t it? I just called Audiology and the guy laughed when I said I was 3 years into the waiting list and asked if there was any chance of an appointment within the next 12-18 months….🤨 So much so that I felt mocked.

OP posts:
EnglishBluebell · 11/12/2024 14:53

@spondooliesThank you for taking the time to try help but I expect these would make matters worse as these don’t just remove/muffle background sounds, they muffle all sounds.

OP posts:
EnglishBluebell · 11/12/2024 14:54

daisychicken · 11/12/2024 13:36

A quick tip from another deafie - look at the accessibility features on your phone. You may have live transcribe, if so, turn it on. If not download xrai glass (the free version).

Neither of these will solve your hearing problems but will help now and when you have your hearing aid (that wait time is horrendous! Kick up a fuss with RNID for help). What they will help with is captioning what people say. It's automatic captions so not perfect and neither work brilliantly in noise but they both help hugely. You can even get small microphones (bluetooth, cost about £10-20) so if having a 1:1 conversation, the other person can clip it on to their top and be across the room from you.

Hope that gives you a little bit of help while you wait for audiology.

Oh wow these sound great, thanks

OP posts:
YourNavyPoet · 11/12/2024 14:59

TizerorFizz · 11/12/2024 11:49

I doubt very much that it’s a 7 year wait! My DH was seen pretty quickly! Have you even asked? See your GP now. Doing nothing isn’t a great plan of action. I guess others won’t understand but you need to be proactive. My DH is a bit deaf and he does not concentrate on what people are saying to him. He switches off. A friend is far worse and put off having hearing aids for years. He’s now got dementia and hearing loss people are more prone to this. Therefore ignore the rubbish you have been told in the past and get a NHS hearing test - it’s NOT a 7 year wait!

I’ve been to my GP and was just told to go to Specsavers for a test. I can’t afford hearing aids so I haven’t bothered.

MereDintofPandiculation · 11/12/2024 15:05

If you need hearing aids, would it be possible to take out a loan to pay for these? The quality of aids available privately is much higher than those available on the NHS. Really? When audiogists on AIBU have told us they’re the same models?

RexsSoupCan · 11/12/2024 15:07

EnglishBluebell · 11/12/2024 14:51

Yep, north of England.

It’s hard isn’t it? I just called Audiology and the guy laughed when I said I was 3 years into the waiting list and asked if there was any chance of an appointment within the next 12-18 months….🤨 So much so that I felt mocked.

Oh depending on what kind of "north" you are, Durham and Darlington NHS have been pretty quick for audiology for me. Less than 6 months from requesting a test to getting hearing aids. If that's close ish to you maybe you can choose that trust on the NHS choice thing another PP mentioned.
Hope you get sorted xx

LoveSandbanks · 11/12/2024 15:07

I have auditory processing disorder. If you want me to hear you, look at me. I don’t tolerate people snapping at me over it. I can’t stand people that use speakerphone and, frankly, if they’re going to walk across the room and try to talk to me then I’m just going to hang up. Being stressed makes me hear even less 🤣

I was at DHs Christmas do at the weekend and lots of colleagues talk with their hands over their face. Ffs, are they 7? I lip read a lot so thats useless to me!

RexsSoupCan · 11/12/2024 15:09

MereDintofPandiculation · 11/12/2024 15:05

If you need hearing aids, would it be possible to take out a loan to pay for these? The quality of aids available privately is much higher than those available on the NHS. Really? When audiogists on AIBU have told us they’re the same models?

My NHS trust doesn't offer Widex which is the brand I previously had bought privately. I did find them much slimmer and they seem a bit more whizzy, and the technology they use for the receiver is different (behind the ear aids).
However my NHS ones (now that I qualify) are just as effective. But defo not the same ones the private audiologists round here are using.

Plastictrees · 11/12/2024 15:12

A 7 year wait is shocking, absolutely unacceptable you will have to wait that long. I’m sorry OP, hopefully there might be some increased funding (miracles!!) which means you might be seen quicker. I’ve read that you can’t afford to be seen privately. I think people can have less empathy with hearing loss as it’s another type of invisible disability, and all you can really do is keep reminding people and let them know how much this upsets you. Hopefully they can hold this in mind more and reduce the snappiness. It must be really hard.

MereDintofPandiculation · 11/12/2024 15:14

YourNavyPoet · 11/12/2024 14:59

I’ve been to my GP and was just told to go to Specsavers for a test. I can’t afford hearing aids so I haven’t bothered.

In some areas, the NHS have outsourced to Specsavers. Are you sure the GO was asking you to go private, rather than “NHS fulfilled by Specsavers”?

TheBluntTurtle · 11/12/2024 16:50

EnglishBluebell · 11/12/2024 14:51

Yep, north of England.

It’s hard isn’t it? I just called Audiology and the guy laughed when I said I was 3 years into the waiting list and asked if there was any chance of an appointment within the next 12-18 months….🤨 So much so that I felt mocked.

Awww that’s so poor OP- at least he could respond with sympathy and understanding - there’s no need to mock people who have health conditions which are having impacts on their lives. It’s absolutely 🐶💩

Footle · 11/12/2024 16:58

@EnglishBluebell , I haven't read the whole thread so may have missed someone else saying this, but it isn't true that NHS hearing aids are all inferior to private ones. I'm so sorry to hear you can't get an audiology appointment any time soon. It's so important to start hearing again, before your brain gives up on getting information through your ears.

Spondoolies · 11/12/2024 17:03

EnglishBluebell · 11/12/2024 14:53

@spondooliesThank you for taking the time to try help but I expect these would make matters worse as these don’t just remove/muffle background sounds, they muffle all sounds.

One of them says it filters out background noise to focus on conversation, I think it would be worth emailing the company and asking at least, I believe they do a money back guarantee as well if they don’t work.

UrgentScurryfunge · 11/12/2024 18:04

I was diagnosed with "Obscure Auditory Dysfunction" now known as Auditory Processing Disorder about 25 years ago. I had a long history of ear infections, blocked ears and it all got looked into after an ear infection erupted through my ear drum and I was struggling with my hearing through A-levels/ going to uni. Mechanically, all was fine, but it has always been hard against background noise and I've always had "delayed reaction" hearing. DM always called it "selective hearing" 🙄
While typing I've had to pause the TV a few times to hear the DC's making requests. I know there's no point trying to listen until I've stopped the background noise/ moved closer. It has caused my interest in socialising to dwindle; there's just no point in going to loud bars/ cafes in big groups because I just end up totally losing conversation and end up giving up and retreating into my own thoughts. It gets tiring to constantly manually fill the gaps.

At the point I was diagnosed, hearing aids weren't sophisticated enough to help as they'd just amplify all the auditory clutter too. I know there have been a lot of developments, but I don't know if there's enough to make them useful to me.

I don't know if other neurodiversity is in the equation. DS1 has Sensory Processing Disorder in the mix with autism and dyspraxia. I have a lot of traits common with late diagnosed ADHD women. I might have caused a minor explosion in science at school when my internal monologue drowned out the teacher's verbal instructions and it all went a bit wrong... I was trying so hard to concentrate too!

beholdmylastfuckflyingaway · 11/12/2024 18:41

If you can get to Norfolk, my husband didn't know he had a hearing problem but was offered a hearing test at our local Scrivens alongside a routine sight test.

He walked out the same day having been fitted with two NHS issues hearing aids. It's been life changing for him and didn't cost a penny.

I thought he was just really bloody rude. Turned out he was completely cut off by virtue of being very deaf.

I just looked up Scrivens they appear to be National.... would recommend them.

MereDintofPandiculation · 11/12/2024 20:11

Leeds was less than a month, though that was 4 years ago